Protecting privacy and family life in the era of recreational genetics and big data

Autores
Lafferrière, Jorge Nicolás
Año de publicación
2016
Idioma
inglés
Tipo de recurso
artículo
Estado
versión publicada
Descripción
Fil: Lafferrière, Jorge Nicolás. Universidad Católica Argentina. Facultad de Derecho; Argentina
Fil: Lafferrière, Jorge Nicolás. Universidad de Buenos Aires; Argentina
Abstract: Since the complete sequencing of the human genome was achieved, genetic information has become a valuable asset. Big databases are built to collect and analyze human genetic information. Some of these biobanks collect genetic information through online websites, offering direct-to-consumer genetic testing. People receive advertisements and propaganda encouraging them to submit their biological samples and to have a complete copy of their genetic information. A variety of reasons can lead a person to submit this information to a big database. In some cases, this kind of genetic testing is done only for recreational purposes and without meeting proper standards concerning the protection of privacy. Bad use of this information can lead to various forms of genetic discrimination. Genetic information involves not just an individual, but also those who share his or her genes. Its use may affect not only the person whose genome has been collected, but also the related family. My goal in this paper is to address the problems created by recreational genomics.
Fuente
International Journal of the Jurisprudence of the Family Vol. 7, 2016
Materia
DERECHO DE FAMILIA
BIG DATA
GENETICA
PRIVACIDAD
VIDA FAMILIAR
GENOMA HUMANO
INFORMACION GENETICA
PUBLICIDAD
Nivel de accesibilidad
acceso abierto
Condiciones de uso
https://creativecommons.org/licenses/by-nc-sa/4.0/
Repositorio
Repositorio Institucional (UCA)
Institución
Pontificia Universidad Católica Argentina
OAI Identificador
oai:ucacris:123456789/3131
Acceder
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oai_identifier_str oai:ucacris:123456789/3131
network_acronym_str RIUCA
repository_id_str 2585
network_name_str Repositorio Institucional (UCA)
spelling Protecting privacy and family life in the era of recreational genetics and big dataLafferrière, Jorge NicolásDERECHO DE FAMILIABIG DATAGENETICAPRIVACIDADVIDA FAMILIARGENOMA HUMANOINFORMACION GENETICAPUBLICIDADFil: Lafferrière, Jorge Nicolás. Universidad Católica Argentina. Facultad de Derecho; ArgentinaFil: Lafferrière, Jorge Nicolás. Universidad de Buenos Aires; ArgentinaAbstract: Since the complete sequencing of the human genome was achieved, genetic information has become a valuable asset. Big databases are built to collect and analyze human genetic information. Some of these biobanks collect genetic information through online websites, offering direct-to-consumer genetic testing. People receive advertisements and propaganda encouraging them to submit their biological samples and to have a complete copy of their genetic information. A variety of reasons can lead a person to submit this information to a big database. In some cases, this kind of genetic testing is done only for recreational purposes and without meeting proper standards concerning the protection of privacy. Bad use of this information can lead to various forms of genetic discrimination. Genetic information involves not just an individual, but also those who share his or her genes. Its use may affect not only the person whose genome has been collected, but also the related family. My goal in this paper is to address the problems created by recreational genomics.William S. Hein & Co., Inc.2016info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionhttp://purl.org/coar/resource_type/c_6501info:ar-repo/semantics/articuloapplication/pdfhttps://repositorio.uca.edu.ar/handle/123456789/31312165-7653Lafferrière, J. N. (2016). Protecting privacy and family life in the era of recreational genetics and big data [en línea] International Journal of the Jurisprudence of the Family 7. Disponible en: https://repositorio.uca.edu.ar/handle/123456789/3131International Journal of the Jurisprudence of the Family Vol. 7, 2016reponame:Repositorio Institucional (UCA)instname:Pontificia Universidad Católica ArgentinaengLa información genética en salud en América Latina : algunos aspectos éticos y jurídicosinfo:eu-repo/semantics/openAccesshttps://creativecommons.org/licenses/by-nc-sa/4.0/2025-07-03T10:55:38Zoai:ucacris:123456789/3131instacron:UCAInstitucionalhttps://repositorio.uca.edu.ar/Universidad privadaNo correspondehttps://repositorio.uca.edu.ar/oaiclaudia_fernandez@uca.edu.arArgentinaNo correspondeNo correspondeNo correspondeopendoar:25852025-07-03 10:55:39.06Repositorio Institucional (UCA) - Pontificia Universidad Católica Argentinafalse
dc.title.none.fl_str_mv Protecting privacy and family life in the era of recreational genetics and big data
title Protecting privacy and family life in the era of recreational genetics and big data
spellingShingle Protecting privacy and family life in the era of recreational genetics and big data
Lafferrière, Jorge Nicolás
DERECHO DE FAMILIA
BIG DATA
GENETICA
PRIVACIDAD
VIDA FAMILIAR
GENOMA HUMANO
INFORMACION GENETICA
PUBLICIDAD
title_short Protecting privacy and family life in the era of recreational genetics and big data
title_full Protecting privacy and family life in the era of recreational genetics and big data
title_fullStr Protecting privacy and family life in the era of recreational genetics and big data
title_full_unstemmed Protecting privacy and family life in the era of recreational genetics and big data
title_sort Protecting privacy and family life in the era of recreational genetics and big data
dc.creator.none.fl_str_mv Lafferrière, Jorge Nicolás
author Lafferrière, Jorge Nicolás
author_facet Lafferrière, Jorge Nicolás
author_role author
dc.subject.none.fl_str_mv DERECHO DE FAMILIA
BIG DATA
GENETICA
PRIVACIDAD
VIDA FAMILIAR
GENOMA HUMANO
INFORMACION GENETICA
PUBLICIDAD
topic DERECHO DE FAMILIA
BIG DATA
GENETICA
PRIVACIDAD
VIDA FAMILIAR
GENOMA HUMANO
INFORMACION GENETICA
PUBLICIDAD
dc.description.none.fl_txt_mv Fil: Lafferrière, Jorge Nicolás. Universidad Católica Argentina. Facultad de Derecho; Argentina
Fil: Lafferrière, Jorge Nicolás. Universidad de Buenos Aires; Argentina
Abstract: Since the complete sequencing of the human genome was achieved, genetic information has become a valuable asset. Big databases are built to collect and analyze human genetic information. Some of these biobanks collect genetic information through online websites, offering direct-to-consumer genetic testing. People receive advertisements and propaganda encouraging them to submit their biological samples and to have a complete copy of their genetic information. A variety of reasons can lead a person to submit this information to a big database. In some cases, this kind of genetic testing is done only for recreational purposes and without meeting proper standards concerning the protection of privacy. Bad use of this information can lead to various forms of genetic discrimination. Genetic information involves not just an individual, but also those who share his or her genes. Its use may affect not only the person whose genome has been collected, but also the related family. My goal in this paper is to address the problems created by recreational genomics.
description Fil: Lafferrière, Jorge Nicolás. Universidad Católica Argentina. Facultad de Derecho; Argentina
publishDate 2016
dc.date.none.fl_str_mv 2016
dc.type.none.fl_str_mv info:eu-repo/semantics/article
info:eu-repo/semantics/publishedVersion
http://purl.org/coar/resource_type/c_6501
info:ar-repo/semantics/articulo
format article
status_str publishedVersion
dc.identifier.none.fl_str_mv https://repositorio.uca.edu.ar/handle/123456789/3131
2165-7653
Lafferrière, J. N. (2016). Protecting privacy and family life in the era of recreational genetics and big data [en línea] International Journal of the Jurisprudence of the Family 7. Disponible en: https://repositorio.uca.edu.ar/handle/123456789/3131
url https://repositorio.uca.edu.ar/handle/123456789/3131
identifier_str_mv 2165-7653
Lafferrière, J. N. (2016). Protecting privacy and family life in the era of recreational genetics and big data [en línea] International Journal of the Jurisprudence of the Family 7. Disponible en: https://repositorio.uca.edu.ar/handle/123456789/3131
dc.language.none.fl_str_mv eng
language eng
dc.relation.none.fl_str_mv La información genética en salud en América Latina : algunos aspectos éticos y jurídicos
dc.rights.none.fl_str_mv info:eu-repo/semantics/openAccess
https://creativecommons.org/licenses/by-nc-sa/4.0/
eu_rights_str_mv openAccess
rights_invalid_str_mv https://creativecommons.org/licenses/by-nc-sa/4.0/
dc.format.none.fl_str_mv application/pdf
dc.publisher.none.fl_str_mv William S. Hein & Co., Inc.
publisher.none.fl_str_mv William S. Hein & Co., Inc.
dc.source.none.fl_str_mv International Journal of the Jurisprudence of the Family Vol. 7, 2016
reponame:Repositorio Institucional (UCA)
instname:Pontificia Universidad Católica Argentina
reponame_str Repositorio Institucional (UCA)
collection Repositorio Institucional (UCA)
instname_str Pontificia Universidad Católica Argentina
repository.name.fl_str_mv Repositorio Institucional (UCA) - Pontificia Universidad Católica Argentina
repository.mail.fl_str_mv claudia_fernandez@uca.edu.ar
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score 13.070432

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