National Health Care Network for children with oral clefts: organization, functioning, and preliminary outcomes

Autores
Cassinelli, Agustina; Pauselli, Nadia; Piola, Agustina; Martinelli, Claudia; Alves De Azevedo, José L.; Bidondo, Mariá P.; Groisman, Boris; Barbero, Pablo Miguel; Liascovich, Rosa; Sala, Ana
Año de publicación
2018
Idioma
español castellano
Tipo de recurso
artículo
Estado
versión publicada
Descripción
Introduction. Oral clefts are major congenital anomalies that may affect the lip and/or palate, and that may also involve the nose and nostrils. In Argentina, their prevalence is approximately 15 per 10 000 births. In 2015, the Ministry of Health of Argentina created a national health care network for children with oral clefts in Argentina through the joint work with the National Registry of Congenital Anomalies (Red Nacional de Anomaliás Congénitas, RENAC) (coordinating center for the national network) and the SUMAR Program. The objective of this study was to describe the health care network and its preliminary outcomes. Population and methods. A total of 61 centers that provided a comprehensive treatment for oral clefts or in collaboration with other centers were identified and accredited. Maternity centers were connected with treating centers grouped in health care network nodes. Results. In the period between March 2015 and February 2016, 550 newborn infants who were exclusively covered by the public health care system were identified. Among these, 18% had a cleft lip; 62%, cleft lip and palate; and 20%, cleft palate only; 75% were isolated cases and 25%, in association with other congenital anomalies. Conclusion. Approximately 70% of children were assessed by a certified treating institution and are receiving treatment. The network seeks to improve data systematization, include the largest number of centers possible, strengthen interdisciplinary team work, and promote highquality standards for treatments.
Fil: Cassinelli, Agustina. Dirección Nacional de Instituto de Investigación. Administración Nacional de Laboratorios e Institutos de Salud "Dr. Carlos G. Malbrán". Centro Nacional de Genética Médica; Argentina
Fil: Pauselli, Nadia. Dirección Nacional de Instituto de Investigación. Administración Nacional de Laboratorios e Institutos de Salud "Dr. Carlos G. Malbrán". Centro Nacional de Genética Médica; Argentina
Fil: Piola, Agustina. Dirección Nacional de Instituto de Investigación. Administración Nacional de Laboratorios e Institutos de Salud "Dr. Carlos G. Malbrán". Centro Nacional de Genética Médica; Argentina
Fil: Martinelli, Claudia. Ministerio de Salud de la Nación; Argentina
Fil: Alves De Azevedo, José L.. Ministerio de Salud de la Nación; Argentina
Fil: Bidondo, Mariá P.. Dirección Nacional de Instituto de Investigación. Administración Nacional de Laboratorios e Institutos de Salud "Dr. Carlos G. Malbrán". Centro Nacional de Genética Médica; Argentina
Fil: Groisman, Boris. Dirección Nacional de Instituto de Investigación. Administración Nacional de Laboratorios e Institutos de Salud "Dr. Carlos G. Malbrán". Centro Nacional de Genética Médica; Argentina. Consejo Nacional de Investigaciones Científicas y Técnicas; Argentina
Fil: Barbero, Pablo Miguel. Dirección Nacional de Instituto de Investigación. Administración Nacional de Laboratorios e Institutos de Salud "Dr. Carlos G. Malbrán". Centro Nacional de Genética Médica; Argentina
Fil: Liascovich, Rosa. Consejo Nacional de Investigaciones Científicas y Técnicas; Argentina. Dirección Nacional de Instituto de Investigación. Administración Nacional de Laboratorios e Institutos de Salud "Dr. Carlos G. Malbrán". Centro Nacional de Genética Médica; Argentina
Fil: Sala, Ana. Ministerio de Salud de la Nación; Argentina
Materia
CONGENITAL ANOMALIES
NETWORKS
OROFACIAL CLEFT
PUBLIC HEALTH
Nivel de accesibilidad
acceso abierto
Condiciones de uso
https://creativecommons.org/licenses/by-nc-sa/2.5/ar/
Repositorio
CONICET Digital (CONICET)
Institución
Consejo Nacional de Investigaciones Científicas y Técnicas
OAI Identificador
oai:ri.conicet.gov.ar:11336/117570
Acceder
id CONICETDig_d16d629a074b8f49fe9597cf58613f36
oai_identifier_str oai:ri.conicet.gov.ar:11336/117570
network_acronym_str CONICETDig
repository_id_str 3498
network_name_str CONICET Digital (CONICET)
spelling National Health Care Network for children with oral clefts: organization, functioning, and preliminary outcomesCassinelli, AgustinaPauselli, NadiaPiola, AgustinaMartinelli, ClaudiaAlves De Azevedo, José L.Bidondo, Mariá P.Groisman, BorisBarbero, Pablo MiguelLiascovich, RosaSala, AnaCONGENITAL ANOMALIESNETWORKSOROFACIAL CLEFTPUBLIC HEALTHhttps://purl.org/becyt/ford/3.3https://purl.org/becyt/ford/3Introduction. Oral clefts are major congenital anomalies that may affect the lip and/or palate, and that may also involve the nose and nostrils. In Argentina, their prevalence is approximately 15 per 10 000 births. In 2015, the Ministry of Health of Argentina created a national health care network for children with oral clefts in Argentina through the joint work with the National Registry of Congenital Anomalies (Red Nacional de Anomaliás Congénitas, RENAC) (coordinating center for the national network) and the SUMAR Program. The objective of this study was to describe the health care network and its preliminary outcomes. Population and methods. A total of 61 centers that provided a comprehensive treatment for oral clefts or in collaboration with other centers were identified and accredited. Maternity centers were connected with treating centers grouped in health care network nodes. Results. In the period between March 2015 and February 2016, 550 newborn infants who were exclusively covered by the public health care system were identified. Among these, 18% had a cleft lip; 62%, cleft lip and palate; and 20%, cleft palate only; 75% were isolated cases and 25%, in association with other congenital anomalies. Conclusion. Approximately 70% of children were assessed by a certified treating institution and are receiving treatment. The network seeks to improve data systematization, include the largest number of centers possible, strengthen interdisciplinary team work, and promote highquality standards for treatments.Fil: Cassinelli, Agustina. Dirección Nacional de Instituto de Investigación. Administración Nacional de Laboratorios e Institutos de Salud "Dr. Carlos G. Malbrán". Centro Nacional de Genética Médica; ArgentinaFil: Pauselli, Nadia. Dirección Nacional de Instituto de Investigación. Administración Nacional de Laboratorios e Institutos de Salud "Dr. Carlos G. Malbrán". Centro Nacional de Genética Médica; ArgentinaFil: Piola, Agustina. Dirección Nacional de Instituto de Investigación. Administración Nacional de Laboratorios e Institutos de Salud "Dr. Carlos G. Malbrán". Centro Nacional de Genética Médica; ArgentinaFil: Martinelli, Claudia. Ministerio de Salud de la Nación; ArgentinaFil: Alves De Azevedo, José L.. Ministerio de Salud de la Nación; ArgentinaFil: Bidondo, Mariá P.. Dirección Nacional de Instituto de Investigación. Administración Nacional de Laboratorios e Institutos de Salud "Dr. Carlos G. Malbrán". Centro Nacional de Genética Médica; ArgentinaFil: Groisman, Boris. Dirección Nacional de Instituto de Investigación. Administración Nacional de Laboratorios e Institutos de Salud "Dr. Carlos G. Malbrán". Centro Nacional de Genética Médica; Argentina. Consejo Nacional de Investigaciones Científicas y Técnicas; ArgentinaFil: Barbero, Pablo Miguel. Dirección Nacional de Instituto de Investigación. Administración Nacional de Laboratorios e Institutos de Salud "Dr. Carlos G. Malbrán". Centro Nacional de Genética Médica; ArgentinaFil: Liascovich, Rosa. Consejo Nacional de Investigaciones Científicas y Técnicas; Argentina. Dirección Nacional de Instituto de Investigación. Administración Nacional de Laboratorios e Institutos de Salud "Dr. Carlos G. Malbrán". Centro Nacional de Genética Médica; ArgentinaFil: Sala, Ana. Ministerio de Salud de la Nación; ArgentinaSociedad Argentina de Pediatría2018-02info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionhttp://purl.org/coar/resource_type/c_6501info:ar-repo/semantics/articuloapplication/pdfapplication/pdfhttp://hdl.handle.net/11336/117570Cassinelli, Agustina; Pauselli, Nadia; Piola, Agustina; Martinelli, Claudia; Alves De Azevedo, José L.; et al.; National Health Care Network for children with oral clefts: organization, functioning, and preliminary outcomes; Sociedad Argentina de Pediatría; Archivos Argentinos de Pediatría; 116; 1; 2-2018; 26-330325-00751668-3501CONICET DigitalCONICETspainfo:eu-repo/semantics/altIdentifier/doi/10.5546/aap.2018.eng.e26info:eu-repo/semantics/openAccesshttps://creativecommons.org/licenses/by-nc-sa/2.5/ar/reponame:CONICET Digital (CONICET)instname:Consejo Nacional de Investigaciones Científicas y Técnicas2025-10-22T11:15:13Zoai:ri.conicet.gov.ar:11336/117570instacron:CONICETInstitucionalhttp://ri.conicet.gov.ar/Organismo científico-tecnológicoNo correspondehttp://ri.conicet.gov.ar/oai/requestdasensio@conicet.gov.ar; lcarlino@conicet.gov.arArgentinaNo correspondeNo correspondeNo correspondeopendoar:34982025-10-22 11:15:14.226CONICET Digital (CONICET) - Consejo Nacional de Investigaciones Científicas y Técnicasfalse
dc.title.none.fl_str_mv National Health Care Network for children with oral clefts: organization, functioning, and preliminary outcomes
title National Health Care Network for children with oral clefts: organization, functioning, and preliminary outcomes
spellingShingle National Health Care Network for children with oral clefts: organization, functioning, and preliminary outcomes
Cassinelli, Agustina
CONGENITAL ANOMALIES
NETWORKS
OROFACIAL CLEFT
PUBLIC HEALTH
title_short National Health Care Network for children with oral clefts: organization, functioning, and preliminary outcomes
title_full National Health Care Network for children with oral clefts: organization, functioning, and preliminary outcomes
title_fullStr National Health Care Network for children with oral clefts: organization, functioning, and preliminary outcomes
title_full_unstemmed National Health Care Network for children with oral clefts: organization, functioning, and preliminary outcomes
title_sort National Health Care Network for children with oral clefts: organization, functioning, and preliminary outcomes
dc.creator.none.fl_str_mv Cassinelli, Agustina
Pauselli, Nadia
Piola, Agustina
Martinelli, Claudia
Alves De Azevedo, José L.
Bidondo, Mariá P.
Groisman, Boris
Barbero, Pablo Miguel
Liascovich, Rosa
Sala, Ana
author Cassinelli, Agustina
author_facet Cassinelli, Agustina
Pauselli, Nadia
Piola, Agustina
Martinelli, Claudia
Alves De Azevedo, José L.
Bidondo, Mariá P.
Groisman, Boris
Barbero, Pablo Miguel
Liascovich, Rosa
Sala, Ana
author_role author
author2 Pauselli, Nadia
Piola, Agustina
Martinelli, Claudia
Alves De Azevedo, José L.
Bidondo, Mariá P.
Groisman, Boris
Barbero, Pablo Miguel
Liascovich, Rosa
Sala, Ana
author2_role author
author
author
author
author
author
author
author
author
dc.subject.none.fl_str_mv CONGENITAL ANOMALIES
NETWORKS
OROFACIAL CLEFT
PUBLIC HEALTH
topic CONGENITAL ANOMALIES
NETWORKS
OROFACIAL CLEFT
PUBLIC HEALTH
purl_subject.fl_str_mv https://purl.org/becyt/ford/3.3
https://purl.org/becyt/ford/3
dc.description.none.fl_txt_mv Introduction. Oral clefts are major congenital anomalies that may affect the lip and/or palate, and that may also involve the nose and nostrils. In Argentina, their prevalence is approximately 15 per 10 000 births. In 2015, the Ministry of Health of Argentina created a national health care network for children with oral clefts in Argentina through the joint work with the National Registry of Congenital Anomalies (Red Nacional de Anomaliás Congénitas, RENAC) (coordinating center for the national network) and the SUMAR Program. The objective of this study was to describe the health care network and its preliminary outcomes. Population and methods. A total of 61 centers that provided a comprehensive treatment for oral clefts or in collaboration with other centers were identified and accredited. Maternity centers were connected with treating centers grouped in health care network nodes. Results. In the period between March 2015 and February 2016, 550 newborn infants who were exclusively covered by the public health care system were identified. Among these, 18% had a cleft lip; 62%, cleft lip and palate; and 20%, cleft palate only; 75% were isolated cases and 25%, in association with other congenital anomalies. Conclusion. Approximately 70% of children were assessed by a certified treating institution and are receiving treatment. The network seeks to improve data systematization, include the largest number of centers possible, strengthen interdisciplinary team work, and promote highquality standards for treatments.
Fil: Cassinelli, Agustina. Dirección Nacional de Instituto de Investigación. Administración Nacional de Laboratorios e Institutos de Salud "Dr. Carlos G. Malbrán". Centro Nacional de Genética Médica; Argentina
Fil: Pauselli, Nadia. Dirección Nacional de Instituto de Investigación. Administración Nacional de Laboratorios e Institutos de Salud "Dr. Carlos G. Malbrán". Centro Nacional de Genética Médica; Argentina
Fil: Piola, Agustina. Dirección Nacional de Instituto de Investigación. Administración Nacional de Laboratorios e Institutos de Salud "Dr. Carlos G. Malbrán". Centro Nacional de Genética Médica; Argentina
Fil: Martinelli, Claudia. Ministerio de Salud de la Nación; Argentina
Fil: Alves De Azevedo, José L.. Ministerio de Salud de la Nación; Argentina
Fil: Bidondo, Mariá P.. Dirección Nacional de Instituto de Investigación. Administración Nacional de Laboratorios e Institutos de Salud "Dr. Carlos G. Malbrán". Centro Nacional de Genética Médica; Argentina
Fil: Groisman, Boris. Dirección Nacional de Instituto de Investigación. Administración Nacional de Laboratorios e Institutos de Salud "Dr. Carlos G. Malbrán". Centro Nacional de Genética Médica; Argentina. Consejo Nacional de Investigaciones Científicas y Técnicas; Argentina
Fil: Barbero, Pablo Miguel. Dirección Nacional de Instituto de Investigación. Administración Nacional de Laboratorios e Institutos de Salud "Dr. Carlos G. Malbrán". Centro Nacional de Genética Médica; Argentina
Fil: Liascovich, Rosa. Consejo Nacional de Investigaciones Científicas y Técnicas; Argentina. Dirección Nacional de Instituto de Investigación. Administración Nacional de Laboratorios e Institutos de Salud "Dr. Carlos G. Malbrán". Centro Nacional de Genética Médica; Argentina
Fil: Sala, Ana. Ministerio de Salud de la Nación; Argentina
description Introduction. Oral clefts are major congenital anomalies that may affect the lip and/or palate, and that may also involve the nose and nostrils. In Argentina, their prevalence is approximately 15 per 10 000 births. In 2015, the Ministry of Health of Argentina created a national health care network for children with oral clefts in Argentina through the joint work with the National Registry of Congenital Anomalies (Red Nacional de Anomaliás Congénitas, RENAC) (coordinating center for the national network) and the SUMAR Program. The objective of this study was to describe the health care network and its preliminary outcomes. Population and methods. A total of 61 centers that provided a comprehensive treatment for oral clefts or in collaboration with other centers were identified and accredited. Maternity centers were connected with treating centers grouped in health care network nodes. Results. In the period between March 2015 and February 2016, 550 newborn infants who were exclusively covered by the public health care system were identified. Among these, 18% had a cleft lip; 62%, cleft lip and palate; and 20%, cleft palate only; 75% were isolated cases and 25%, in association with other congenital anomalies. Conclusion. Approximately 70% of children were assessed by a certified treating institution and are receiving treatment. The network seeks to improve data systematization, include the largest number of centers possible, strengthen interdisciplinary team work, and promote highquality standards for treatments.
publishDate 2018
dc.date.none.fl_str_mv 2018-02
dc.type.none.fl_str_mv info:eu-repo/semantics/article
info:eu-repo/semantics/publishedVersion
http://purl.org/coar/resource_type/c_6501
info:ar-repo/semantics/articulo
format article
status_str publishedVersion
dc.identifier.none.fl_str_mv http://hdl.handle.net/11336/117570
Cassinelli, Agustina; Pauselli, Nadia; Piola, Agustina; Martinelli, Claudia; Alves De Azevedo, José L.; et al.; National Health Care Network for children with oral clefts: organization, functioning, and preliminary outcomes; Sociedad Argentina de Pediatría; Archivos Argentinos de Pediatría; 116; 1; 2-2018; 26-33
0325-0075
1668-3501
CONICET Digital
CONICET
url http://hdl.handle.net/11336/117570
identifier_str_mv Cassinelli, Agustina; Pauselli, Nadia; Piola, Agustina; Martinelli, Claudia; Alves De Azevedo, José L.; et al.; National Health Care Network for children with oral clefts: organization, functioning, and preliminary outcomes; Sociedad Argentina de Pediatría; Archivos Argentinos de Pediatría; 116; 1; 2-2018; 26-33
0325-0075
1668-3501
CONICET Digital
CONICET
dc.language.none.fl_str_mv spa
language spa
dc.relation.none.fl_str_mv info:eu-repo/semantics/altIdentifier/doi/10.5546/aap.2018.eng.e26
dc.rights.none.fl_str_mv info:eu-repo/semantics/openAccess
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eu_rights_str_mv openAccess
rights_invalid_str_mv https://creativecommons.org/licenses/by-nc-sa/2.5/ar/
dc.format.none.fl_str_mv application/pdf
application/pdf
dc.publisher.none.fl_str_mv Sociedad Argentina de Pediatría
publisher.none.fl_str_mv Sociedad Argentina de Pediatría
dc.source.none.fl_str_mv reponame:CONICET Digital (CONICET)
instname:Consejo Nacional de Investigaciones Científicas y Técnicas
reponame_str CONICET Digital (CONICET)
collection CONICET Digital (CONICET)
instname_str Consejo Nacional de Investigaciones Científicas y Técnicas
repository.name.fl_str_mv CONICET Digital (CONICET) - Consejo Nacional de Investigaciones Científicas y Técnicas
repository.mail.fl_str_mv dasensio@conicet.gov.ar; lcarlino@conicet.gov.ar
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