Designing an Atopic Dermatitis Community that Integrates Patient Self-Uploaded Information into the EHR to Optimize Follow-up

Autores
Colussi, Giuliana; Inda, Delfina; Zin, Yael; De Matos Lima, Santiago; Angles, Maria Valeria; Bruey, Silvina; Sambrizzi, Ana; Mazzuoccolo, Luis; Luna, Daniel Roberto; Plazzotta, Fernando
Año de publicación
2022
Idioma
inglés
Tipo de recurso
artículo
Estado
versión publicada
Descripción
Atopic dermatitis is a common chronic dermatological disease in childhood that can affect people's quality of life. The aim of this study was to inquire about the difficulties, needs and interests related to the disease that people with eczema and their caregivers have; in order to develop a tool that is useful for the follow-up of the illness. Electronic surveys were sent to potential users and interviews were conducted with professionals who are specialized on the subject. The main findings allowed us to understand the challenges and situations they face on a daily basis, such as the difficulties related to the family support, the queries on the eczema flare-ups, the struggles with the adherence to treatment and the needs of optimizing their quality of life. These results helped us design a tool that allows patients and their companions to better monitor their disease while optimizing communication with their health professionals.
Fil: Colussi, Giuliana. Hospital Italiano. Departamento de Informática En Salud.; Argentina
Fil: Inda, Delfina. Hospital Italiano. Departamento de Informática En Salud.; Argentina
Fil: Zin, Yael. Hospital Italiano. Departamento de Informática En Salud.; Argentina
Fil: De Matos Lima, Santiago. Hospital Italiano. Departamento de Informática En Salud.; Argentina
Fil: Angles, Maria Valeria. Hospital Italiano; Argentina
Fil: Bruey, Silvina. Hospital Italiano; Argentina
Fil: Sambrizzi, Ana. Hospital Italiano; Argentina
Fil: Mazzuoccolo, Luis. Servicio de Dermatologia; Hospital Italiano de Bs As; Argentina
Fil: Luna, Daniel Roberto. Hospital Italiano. Departamento de Informática En Salud.; Argentina. Consejo Nacional de Investigaciones Científicas y Técnicas. Oficina de Coordinación Administrativa Houssay. Instituto de Medicina Traslacional e Ingeniería Biomédica - Hospital Italiano. Instituto de Medicina Traslacional e Ingeniería Biomédica.- Instituto Universitario Hospital Italiano de Buenos Aires. Instituto de Medicina Traslacional e Ingeniería Biomédica; Argentina
Fil: Plazzotta, Fernando. Hospital Italiano. Departamento de Informática En Salud.; Argentina
Materia
ATOPIC DERMATITIS
PERSONAL HEALTH RECORDS
VIRTUAL COMMUNITY
Nivel de accesibilidad
acceso abierto
Condiciones de uso
https://creativecommons.org/licenses/by-nc/2.5/ar/
Repositorio
CONICET Digital (CONICET)
Institución
Consejo Nacional de Investigaciones Científicas y Técnicas
OAI Identificador
oai:ri.conicet.gov.ar:11336/210673
Acceder
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repository_id_str 3498
network_name_str CONICET Digital (CONICET)
spelling Designing an Atopic Dermatitis Community that Integrates Patient Self-Uploaded Information into the EHR to Optimize Follow-upColussi, GiulianaInda, DelfinaZin, YaelDe Matos Lima, SantiagoAngles, Maria ValeriaBruey, SilvinaSambrizzi, AnaMazzuoccolo, LuisLuna, Daniel RobertoPlazzotta, FernandoATOPIC DERMATITISPERSONAL HEALTH RECORDSVIRTUAL COMMUNITYhttps://purl.org/becyt/ford/3.3https://purl.org/becyt/ford/3Atopic dermatitis is a common chronic dermatological disease in childhood that can affect people's quality of life. The aim of this study was to inquire about the difficulties, needs and interests related to the disease that people with eczema and their caregivers have; in order to develop a tool that is useful for the follow-up of the illness. Electronic surveys were sent to potential users and interviews were conducted with professionals who are specialized on the subject. The main findings allowed us to understand the challenges and situations they face on a daily basis, such as the difficulties related to the family support, the queries on the eczema flare-ups, the struggles with the adherence to treatment and the needs of optimizing their quality of life. These results helped us design a tool that allows patients and their companions to better monitor their disease while optimizing communication with their health professionals.Fil: Colussi, Giuliana. Hospital Italiano. Departamento de Informática En Salud.; ArgentinaFil: Inda, Delfina. Hospital Italiano. Departamento de Informática En Salud.; ArgentinaFil: Zin, Yael. Hospital Italiano. Departamento de Informática En Salud.; ArgentinaFil: De Matos Lima, Santiago. Hospital Italiano. Departamento de Informática En Salud.; ArgentinaFil: Angles, Maria Valeria. Hospital Italiano; ArgentinaFil: Bruey, Silvina. Hospital Italiano; ArgentinaFil: Sambrizzi, Ana. Hospital Italiano; ArgentinaFil: Mazzuoccolo, Luis. Servicio de Dermatologia; Hospital Italiano de Bs As; ArgentinaFil: Luna, Daniel Roberto. Hospital Italiano. Departamento de Informática En Salud.; Argentina. Consejo Nacional de Investigaciones Científicas y Técnicas. Oficina de Coordinación Administrativa Houssay. Instituto de Medicina Traslacional e Ingeniería Biomédica - Hospital Italiano. Instituto de Medicina Traslacional e Ingeniería Biomédica.- Instituto Universitario Hospital Italiano de Buenos Aires. Instituto de Medicina Traslacional e Ingeniería Biomédica; ArgentinaFil: Plazzotta, Fernando. Hospital Italiano. Departamento de Informática En Salud.; ArgentinaIOS Press2022-06info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionhttp://purl.org/coar/resource_type/c_6501info:ar-repo/semantics/articuloapplication/pdfapplication/pdfhttp://hdl.handle.net/11336/210673Colussi, Giuliana; Inda, Delfina; Zin, Yael; De Matos Lima, Santiago; Angles, Maria Valeria; et al.; Designing an Atopic Dermatitis Community that Integrates Patient Self-Uploaded Information into the EHR to Optimize Follow-up; IOS Press; Studies in Health Technology and Informatics; 290; 6-2022; 540-5421879-8365CONICET DigitalCONICETenginfo:eu-repo/semantics/altIdentifier/doi/10.3233/SHTI220135info:eu-repo/semantics/openAccesshttps://creativecommons.org/licenses/by-nc/2.5/ar/reponame:CONICET Digital (CONICET)instname:Consejo Nacional de Investigaciones Científicas y Técnicas2025-12-17T14:34:22Zoai:ri.conicet.gov.ar:11336/210673instacron:CONICETInstitucionalhttp://ri.conicet.gov.ar/Organismo científico-tecnológicoNo correspondehttp://ri.conicet.gov.ar/oai/requestdasensio@conicet.gov.ar; lcarlino@conicet.gov.arArgentinaNo correspondeNo correspondeNo correspondeopendoar:34982025-12-17 14:34:22.751CONICET Digital (CONICET) - Consejo Nacional de Investigaciones Científicas y Técnicasfalse
dc.title.none.fl_str_mv Designing an Atopic Dermatitis Community that Integrates Patient Self-Uploaded Information into the EHR to Optimize Follow-up
title Designing an Atopic Dermatitis Community that Integrates Patient Self-Uploaded Information into the EHR to Optimize Follow-up
spellingShingle Designing an Atopic Dermatitis Community that Integrates Patient Self-Uploaded Information into the EHR to Optimize Follow-up
Colussi, Giuliana
ATOPIC DERMATITIS
PERSONAL HEALTH RECORDS
VIRTUAL COMMUNITY
title_short Designing an Atopic Dermatitis Community that Integrates Patient Self-Uploaded Information into the EHR to Optimize Follow-up
title_full Designing an Atopic Dermatitis Community that Integrates Patient Self-Uploaded Information into the EHR to Optimize Follow-up
title_fullStr Designing an Atopic Dermatitis Community that Integrates Patient Self-Uploaded Information into the EHR to Optimize Follow-up
title_full_unstemmed Designing an Atopic Dermatitis Community that Integrates Patient Self-Uploaded Information into the EHR to Optimize Follow-up
title_sort Designing an Atopic Dermatitis Community that Integrates Patient Self-Uploaded Information into the EHR to Optimize Follow-up
dc.creator.none.fl_str_mv Colussi, Giuliana
Inda, Delfina
Zin, Yael
De Matos Lima, Santiago
Angles, Maria Valeria
Bruey, Silvina
Sambrizzi, Ana
Mazzuoccolo, Luis
Luna, Daniel Roberto
Plazzotta, Fernando
author Colussi, Giuliana
author_facet Colussi, Giuliana
Inda, Delfina
Zin, Yael
De Matos Lima, Santiago
Angles, Maria Valeria
Bruey, Silvina
Sambrizzi, Ana
Mazzuoccolo, Luis
Luna, Daniel Roberto
Plazzotta, Fernando
author_role author
author2 Inda, Delfina
Zin, Yael
De Matos Lima, Santiago
Angles, Maria Valeria
Bruey, Silvina
Sambrizzi, Ana
Mazzuoccolo, Luis
Luna, Daniel Roberto
Plazzotta, Fernando
author2_role author
author
author
author
author
author
author
author
author
dc.subject.none.fl_str_mv ATOPIC DERMATITIS
PERSONAL HEALTH RECORDS
VIRTUAL COMMUNITY
topic ATOPIC DERMATITIS
PERSONAL HEALTH RECORDS
VIRTUAL COMMUNITY
purl_subject.fl_str_mv https://purl.org/becyt/ford/3.3
https://purl.org/becyt/ford/3
dc.description.none.fl_txt_mv Atopic dermatitis is a common chronic dermatological disease in childhood that can affect people's quality of life. The aim of this study was to inquire about the difficulties, needs and interests related to the disease that people with eczema and their caregivers have; in order to develop a tool that is useful for the follow-up of the illness. Electronic surveys were sent to potential users and interviews were conducted with professionals who are specialized on the subject. The main findings allowed us to understand the challenges and situations they face on a daily basis, such as the difficulties related to the family support, the queries on the eczema flare-ups, the struggles with the adherence to treatment and the needs of optimizing their quality of life. These results helped us design a tool that allows patients and their companions to better monitor their disease while optimizing communication with their health professionals.
Fil: Colussi, Giuliana. Hospital Italiano. Departamento de Informática En Salud.; Argentina
Fil: Inda, Delfina. Hospital Italiano. Departamento de Informática En Salud.; Argentina
Fil: Zin, Yael. Hospital Italiano. Departamento de Informática En Salud.; Argentina
Fil: De Matos Lima, Santiago. Hospital Italiano. Departamento de Informática En Salud.; Argentina
Fil: Angles, Maria Valeria. Hospital Italiano; Argentina
Fil: Bruey, Silvina. Hospital Italiano; Argentina
Fil: Sambrizzi, Ana. Hospital Italiano; Argentina
Fil: Mazzuoccolo, Luis. Servicio de Dermatologia; Hospital Italiano de Bs As; Argentina
Fil: Luna, Daniel Roberto. Hospital Italiano. Departamento de Informática En Salud.; Argentina. Consejo Nacional de Investigaciones Científicas y Técnicas. Oficina de Coordinación Administrativa Houssay. Instituto de Medicina Traslacional e Ingeniería Biomédica - Hospital Italiano. Instituto de Medicina Traslacional e Ingeniería Biomédica.- Instituto Universitario Hospital Italiano de Buenos Aires. Instituto de Medicina Traslacional e Ingeniería Biomédica; Argentina
Fil: Plazzotta, Fernando. Hospital Italiano. Departamento de Informática En Salud.; Argentina
description Atopic dermatitis is a common chronic dermatological disease in childhood that can affect people's quality of life. The aim of this study was to inquire about the difficulties, needs and interests related to the disease that people with eczema and their caregivers have; in order to develop a tool that is useful for the follow-up of the illness. Electronic surveys were sent to potential users and interviews were conducted with professionals who are specialized on the subject. The main findings allowed us to understand the challenges and situations they face on a daily basis, such as the difficulties related to the family support, the queries on the eczema flare-ups, the struggles with the adherence to treatment and the needs of optimizing their quality of life. These results helped us design a tool that allows patients and their companions to better monitor their disease while optimizing communication with their health professionals.
publishDate 2022
dc.date.none.fl_str_mv 2022-06
dc.type.none.fl_str_mv info:eu-repo/semantics/article
info:eu-repo/semantics/publishedVersion
http://purl.org/coar/resource_type/c_6501
info:ar-repo/semantics/articulo
format article
status_str publishedVersion
dc.identifier.none.fl_str_mv http://hdl.handle.net/11336/210673
Colussi, Giuliana; Inda, Delfina; Zin, Yael; De Matos Lima, Santiago; Angles, Maria Valeria; et al.; Designing an Atopic Dermatitis Community that Integrates Patient Self-Uploaded Information into the EHR to Optimize Follow-up; IOS Press; Studies in Health Technology and Informatics; 290; 6-2022; 540-542
1879-8365
CONICET Digital
CONICET
url http://hdl.handle.net/11336/210673
identifier_str_mv Colussi, Giuliana; Inda, Delfina; Zin, Yael; De Matos Lima, Santiago; Angles, Maria Valeria; et al.; Designing an Atopic Dermatitis Community that Integrates Patient Self-Uploaded Information into the EHR to Optimize Follow-up; IOS Press; Studies in Health Technology and Informatics; 290; 6-2022; 540-542
1879-8365
CONICET Digital
CONICET
dc.language.none.fl_str_mv eng
language eng
dc.relation.none.fl_str_mv info:eu-repo/semantics/altIdentifier/doi/10.3233/SHTI220135
dc.rights.none.fl_str_mv info:eu-repo/semantics/openAccess
https://creativecommons.org/licenses/by-nc/2.5/ar/
eu_rights_str_mv openAccess
rights_invalid_str_mv https://creativecommons.org/licenses/by-nc/2.5/ar/
dc.format.none.fl_str_mv application/pdf
application/pdf
dc.publisher.none.fl_str_mv IOS Press
publisher.none.fl_str_mv IOS Press
dc.source.none.fl_str_mv reponame:CONICET Digital (CONICET)
instname:Consejo Nacional de Investigaciones Científicas y Técnicas
reponame_str CONICET Digital (CONICET)
collection CONICET Digital (CONICET)
instname_str Consejo Nacional de Investigaciones Científicas y Técnicas
repository.name.fl_str_mv CONICET Digital (CONICET) - Consejo Nacional de Investigaciones Científicas y Técnicas
repository.mail.fl_str_mv dasensio@conicet.gov.ar; lcarlino@conicet.gov.ar
_version_ 1851852311450615808
score 13.176297

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