Coping experiences in individuals with drug-resistant epilepsy and functional/dissociative seizures: A qualitative study

Autores
Gonzalez Molina, Lucila; Wolfzun, Camila; Sarudiansky, Mercedes; Pereira de Silva, Nahuel Fernando; D`alessio, Luciana; Korman, Guido Pablo
Año de publicación
2025
Idioma
inglés
Tipo de recurso
artículo
Estado
versión publicada
Descripción
Individuals diagnosed with drug-resistant epilepsy (DRE) and functional/dissociative seizures (FDS) face multiple social, economic, and psychological difficulties. Coping is central to adaptation and psychological well-being in chronic health conditions. This study explores and describes the coping strategies of patients with DRE and FDS from Buenos Aires, Argentina. To our knowledge, this is one of the first studies in Latin America to pursue this objective. A qualitative exploratory design was used for this study. Eight adult participants (four with DRE and four with FDS), aged 33–56 years, were recruited from the J.M. Ramos Mejía Hospital between 2021 and 2023. Data were collected through semi-structured interviews, based on the McGill Illness Narrative Interview, and analyzed using thematic analysis principles to capture patients’ experiences. Four coping strategies were identified from the analysis. First, both groups perceived social support from relatives and friends through emotional and practical assistance. Second, religiosity provided meaning, hope, and emotional relief through faith and religious practices. Third, participants reported seeking distraction as a way to distance themselves from intrusive negative thoughts. Finally, engaging in meaningful daily activities promoted autonomy and improved mood. This study offers a preliminary exploration and contributes to understanding the coping strategies of patients with DRE and FDS in Argentina. These strategies were perceived as valuable for managing the challenges and consequences of their seizures. Understanding these narratives enhances the professional–patient relationship and provides a more comprehensive perspective on living with seizures.
Fil: Gonzalez Molina, Lucila. Universidad de Buenos Aires. Facultad de Psicología; Argentina. Consejo Nacional de Investigaciones Científicas y Técnicas; Argentina
Fil: Wolfzun, Camila. Universidad de Buenos Aires. Facultad de Psicología; Argentina. Consejo Nacional de Investigaciones Científicas y Técnicas; Argentina
Fil: Sarudiansky, Mercedes. Consejo Nacional de Investigaciones Científicas y Técnicas; Argentina. Universidad de Buenos Aires. Facultad de Psicología; Argentina
Fil: Pereira de Silva, Nahuel Fernando. Gobierno de la Ciudad de Buenos Aires. Hospital General de Agudos "Ramos Mejía"; Argentina
Fil: D`alessio, Luciana. Consejo Nacional de Investigaciones Científicas y Técnicas; Argentina. Gobierno de la Ciudad de Buenos Aires. Hospital General de Agudos "Ramos Mejía"; Argentina
Fil: Korman, Guido Pablo. Universidad de Buenos Aires. Facultad de Psicología; Argentina. Consejo Nacional de Investigaciones Científicas y Técnicas; Argentina
Materia
DRUG-RESISTANT EPILEPSY
FUNCTIONAL/DISSOCIATIVE SEIZURES
COPING STRATEGIES
QUALITATIVE RESEARCH
Nivel de accesibilidad
acceso abierto
Condiciones de uso
https://creativecommons.org/licenses/by/2.5/ar/
Repositorio
CONICET Digital (CONICET)
Institución
Consejo Nacional de Investigaciones Científicas y Técnicas
OAI Identificador
oai:ri.conicet.gov.ar:11336/274701
Acceder
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network_acronym_str CONICETDig
repository_id_str 3498
network_name_str CONICET Digital (CONICET)
spelling Coping experiences in individuals with drug-resistant epilepsy and functional/dissociative seizures: A qualitative studyGonzalez Molina, LucilaWolfzun, CamilaSarudiansky, MercedesPereira de Silva, Nahuel FernandoD`alessio, LucianaKorman, Guido PabloDRUG-RESISTANT EPILEPSYFUNCTIONAL/DISSOCIATIVE SEIZURESCOPING STRATEGIESQUALITATIVE RESEARCHhttps://purl.org/becyt/ford/5.1https://purl.org/becyt/ford/5Individuals diagnosed with drug-resistant epilepsy (DRE) and functional/dissociative seizures (FDS) face multiple social, economic, and psychological difficulties. Coping is central to adaptation and psychological well-being in chronic health conditions. This study explores and describes the coping strategies of patients with DRE and FDS from Buenos Aires, Argentina. To our knowledge, this is one of the first studies in Latin America to pursue this objective. A qualitative exploratory design was used for this study. Eight adult participants (four with DRE and four with FDS), aged 33–56 years, were recruited from the J.M. Ramos Mejía Hospital between 2021 and 2023. Data were collected through semi-structured interviews, based on the McGill Illness Narrative Interview, and analyzed using thematic analysis principles to capture patients’ experiences. Four coping strategies were identified from the analysis. First, both groups perceived social support from relatives and friends through emotional and practical assistance. Second, religiosity provided meaning, hope, and emotional relief through faith and religious practices. Third, participants reported seeking distraction as a way to distance themselves from intrusive negative thoughts. Finally, engaging in meaningful daily activities promoted autonomy and improved mood. This study offers a preliminary exploration and contributes to understanding the coping strategies of patients with DRE and FDS in Argentina. These strategies were perceived as valuable for managing the challenges and consequences of their seizures. Understanding these narratives enhances the professional–patient relationship and provides a more comprehensive perspective on living with seizures.Fil: Gonzalez Molina, Lucila. Universidad de Buenos Aires. Facultad de Psicología; Argentina. Consejo Nacional de Investigaciones Científicas y Técnicas; ArgentinaFil: Wolfzun, Camila. Universidad de Buenos Aires. Facultad de Psicología; Argentina. Consejo Nacional de Investigaciones Científicas y Técnicas; ArgentinaFil: Sarudiansky, Mercedes. Consejo Nacional de Investigaciones Científicas y Técnicas; Argentina. Universidad de Buenos Aires. Facultad de Psicología; ArgentinaFil: Pereira de Silva, Nahuel Fernando. Gobierno de la Ciudad de Buenos Aires. Hospital General de Agudos "Ramos Mejía"; ArgentinaFil: D`alessio, Luciana. Consejo Nacional de Investigaciones Científicas y Técnicas; Argentina. Gobierno de la Ciudad de Buenos Aires. Hospital General de Agudos "Ramos Mejía"; ArgentinaFil: Korman, Guido Pablo. Universidad de Buenos Aires. Facultad de Psicología; Argentina. Consejo Nacional de Investigaciones Científicas y Técnicas; ArgentinaAccScience Publishing2025-10info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionhttp://purl.org/coar/resource_type/c_6501info:ar-repo/semantics/articuloapplication/pdfapplication/pdfapplication/pdfapplication/pdfapplication/pdfhttp://hdl.handle.net/11336/274701Gonzalez Molina, Lucila; Wolfzun, Camila; Sarudiansky, Mercedes; Pereira de Silva, Nahuel Fernando; D`alessio, Luciana; et al.; Coping experiences in individuals with drug-resistant epilepsy and functional/dissociative seizures: A qualitative study; AccScience Publishing; Journal of Clinical and Basic Psychosomatics; 10-2025; 1-92972-4414CONICET DigitalCONICETenginfo:eu-repo/semantics/altIdentifier/url/https://accscience.com/journal/JCBP/articles/online_first/5723info:eu-repo/semantics/altIdentifier/doi/10.36922/JCBP025370070info:eu-repo/semantics/openAccesshttps://creativecommons.org/licenses/by/2.5/ar/reponame:CONICET Digital (CONICET)instname:Consejo Nacional de Investigaciones Científicas y Técnicas2025-11-26T08:48:37Zoai:ri.conicet.gov.ar:11336/274701instacron:CONICETInstitucionalhttp://ri.conicet.gov.ar/Organismo científico-tecnológicoNo correspondehttp://ri.conicet.gov.ar/oai/requestdasensio@conicet.gov.ar; lcarlino@conicet.gov.arArgentinaNo correspondeNo correspondeNo correspondeopendoar:34982025-11-26 08:48:37.363CONICET Digital (CONICET) - Consejo Nacional de Investigaciones Científicas y Técnicasfalse
dc.title.none.fl_str_mv Coping experiences in individuals with drug-resistant epilepsy and functional/dissociative seizures: A qualitative study
title Coping experiences in individuals with drug-resistant epilepsy and functional/dissociative seizures: A qualitative study
spellingShingle Coping experiences in individuals with drug-resistant epilepsy and functional/dissociative seizures: A qualitative study
Gonzalez Molina, Lucila
DRUG-RESISTANT EPILEPSY
FUNCTIONAL/DISSOCIATIVE SEIZURES
COPING STRATEGIES
QUALITATIVE RESEARCH
title_short Coping experiences in individuals with drug-resistant epilepsy and functional/dissociative seizures: A qualitative study
title_full Coping experiences in individuals with drug-resistant epilepsy and functional/dissociative seizures: A qualitative study
title_fullStr Coping experiences in individuals with drug-resistant epilepsy and functional/dissociative seizures: A qualitative study
title_full_unstemmed Coping experiences in individuals with drug-resistant epilepsy and functional/dissociative seizures: A qualitative study
title_sort Coping experiences in individuals with drug-resistant epilepsy and functional/dissociative seizures: A qualitative study
dc.creator.none.fl_str_mv Gonzalez Molina, Lucila
Wolfzun, Camila
Sarudiansky, Mercedes
Pereira de Silva, Nahuel Fernando
D`alessio, Luciana
Korman, Guido Pablo
author Gonzalez Molina, Lucila
author_facet Gonzalez Molina, Lucila
Wolfzun, Camila
Sarudiansky, Mercedes
Pereira de Silva, Nahuel Fernando
D`alessio, Luciana
Korman, Guido Pablo
author_role author
author2 Wolfzun, Camila
Sarudiansky, Mercedes
Pereira de Silva, Nahuel Fernando
D`alessio, Luciana
Korman, Guido Pablo
author2_role author
author
author
author
author
dc.subject.none.fl_str_mv DRUG-RESISTANT EPILEPSY
FUNCTIONAL/DISSOCIATIVE SEIZURES
COPING STRATEGIES
QUALITATIVE RESEARCH
topic DRUG-RESISTANT EPILEPSY
FUNCTIONAL/DISSOCIATIVE SEIZURES
COPING STRATEGIES
QUALITATIVE RESEARCH
purl_subject.fl_str_mv https://purl.org/becyt/ford/5.1
https://purl.org/becyt/ford/5
dc.description.none.fl_txt_mv Individuals diagnosed with drug-resistant epilepsy (DRE) and functional/dissociative seizures (FDS) face multiple social, economic, and psychological difficulties. Coping is central to adaptation and psychological well-being in chronic health conditions. This study explores and describes the coping strategies of patients with DRE and FDS from Buenos Aires, Argentina. To our knowledge, this is one of the first studies in Latin America to pursue this objective. A qualitative exploratory design was used for this study. Eight adult participants (four with DRE and four with FDS), aged 33–56 years, were recruited from the J.M. Ramos Mejía Hospital between 2021 and 2023. Data were collected through semi-structured interviews, based on the McGill Illness Narrative Interview, and analyzed using thematic analysis principles to capture patients’ experiences. Four coping strategies were identified from the analysis. First, both groups perceived social support from relatives and friends through emotional and practical assistance. Second, religiosity provided meaning, hope, and emotional relief through faith and religious practices. Third, participants reported seeking distraction as a way to distance themselves from intrusive negative thoughts. Finally, engaging in meaningful daily activities promoted autonomy and improved mood. This study offers a preliminary exploration and contributes to understanding the coping strategies of patients with DRE and FDS in Argentina. These strategies were perceived as valuable for managing the challenges and consequences of their seizures. Understanding these narratives enhances the professional–patient relationship and provides a more comprehensive perspective on living with seizures.
Fil: Gonzalez Molina, Lucila. Universidad de Buenos Aires. Facultad de Psicología; Argentina. Consejo Nacional de Investigaciones Científicas y Técnicas; Argentina
Fil: Wolfzun, Camila. Universidad de Buenos Aires. Facultad de Psicología; Argentina. Consejo Nacional de Investigaciones Científicas y Técnicas; Argentina
Fil: Sarudiansky, Mercedes. Consejo Nacional de Investigaciones Científicas y Técnicas; Argentina. Universidad de Buenos Aires. Facultad de Psicología; Argentina
Fil: Pereira de Silva, Nahuel Fernando. Gobierno de la Ciudad de Buenos Aires. Hospital General de Agudos "Ramos Mejía"; Argentina
Fil: D`alessio, Luciana. Consejo Nacional de Investigaciones Científicas y Técnicas; Argentina. Gobierno de la Ciudad de Buenos Aires. Hospital General de Agudos "Ramos Mejía"; Argentina
Fil: Korman, Guido Pablo. Universidad de Buenos Aires. Facultad de Psicología; Argentina. Consejo Nacional de Investigaciones Científicas y Técnicas; Argentina
description Individuals diagnosed with drug-resistant epilepsy (DRE) and functional/dissociative seizures (FDS) face multiple social, economic, and psychological difficulties. Coping is central to adaptation and psychological well-being in chronic health conditions. This study explores and describes the coping strategies of patients with DRE and FDS from Buenos Aires, Argentina. To our knowledge, this is one of the first studies in Latin America to pursue this objective. A qualitative exploratory design was used for this study. Eight adult participants (four with DRE and four with FDS), aged 33–56 years, were recruited from the J.M. Ramos Mejía Hospital between 2021 and 2023. Data were collected through semi-structured interviews, based on the McGill Illness Narrative Interview, and analyzed using thematic analysis principles to capture patients’ experiences. Four coping strategies were identified from the analysis. First, both groups perceived social support from relatives and friends through emotional and practical assistance. Second, religiosity provided meaning, hope, and emotional relief through faith and religious practices. Third, participants reported seeking distraction as a way to distance themselves from intrusive negative thoughts. Finally, engaging in meaningful daily activities promoted autonomy and improved mood. This study offers a preliminary exploration and contributes to understanding the coping strategies of patients with DRE and FDS in Argentina. These strategies were perceived as valuable for managing the challenges and consequences of their seizures. Understanding these narratives enhances the professional–patient relationship and provides a more comprehensive perspective on living with seizures.
publishDate 2025
dc.date.none.fl_str_mv 2025-10
dc.type.none.fl_str_mv info:eu-repo/semantics/article
info:eu-repo/semantics/publishedVersion
http://purl.org/coar/resource_type/c_6501
info:ar-repo/semantics/articulo
format article
status_str publishedVersion
dc.identifier.none.fl_str_mv http://hdl.handle.net/11336/274701
Gonzalez Molina, Lucila; Wolfzun, Camila; Sarudiansky, Mercedes; Pereira de Silva, Nahuel Fernando; D`alessio, Luciana; et al.; Coping experiences in individuals with drug-resistant epilepsy and functional/dissociative seizures: A qualitative study; AccScience Publishing; Journal of Clinical and Basic Psychosomatics; 10-2025; 1-9
2972-4414
CONICET Digital
CONICET
url http://hdl.handle.net/11336/274701
identifier_str_mv Gonzalez Molina, Lucila; Wolfzun, Camila; Sarudiansky, Mercedes; Pereira de Silva, Nahuel Fernando; D`alessio, Luciana; et al.; Coping experiences in individuals with drug-resistant epilepsy and functional/dissociative seizures: A qualitative study; AccScience Publishing; Journal of Clinical and Basic Psychosomatics; 10-2025; 1-9
2972-4414
CONICET Digital
CONICET
dc.language.none.fl_str_mv eng
language eng
dc.relation.none.fl_str_mv info:eu-repo/semantics/altIdentifier/url/https://accscience.com/journal/JCBP/articles/online_first/5723
info:eu-repo/semantics/altIdentifier/doi/10.36922/JCBP025370070
dc.rights.none.fl_str_mv info:eu-repo/semantics/openAccess
https://creativecommons.org/licenses/by/2.5/ar/
eu_rights_str_mv openAccess
rights_invalid_str_mv https://creativecommons.org/licenses/by/2.5/ar/
dc.format.none.fl_str_mv application/pdf
application/pdf
application/pdf
application/pdf
application/pdf
dc.publisher.none.fl_str_mv AccScience Publishing
publisher.none.fl_str_mv AccScience Publishing
dc.source.none.fl_str_mv reponame:CONICET Digital (CONICET)
instname:Consejo Nacional de Investigaciones Científicas y Técnicas
reponame_str CONICET Digital (CONICET)
collection CONICET Digital (CONICET)
instname_str Consejo Nacional de Investigaciones Científicas y Técnicas
repository.name.fl_str_mv CONICET Digital (CONICET) - Consejo Nacional de Investigaciones Científicas y Técnicas
repository.mail.fl_str_mv dasensio@conicet.gov.ar; lcarlino@conicet.gov.ar
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score 13.011256

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