The impact on life in people with dissociative seizures or drug-resistant epilepsy

Autores
Wolfzun, Camila; Sarudiansky, Mercedes; Areco Pico, Maria Marta; Tenreyro, Cristina; Lanzillotti, Alejandra Inés; D`alessio, Luciana; Korman, Guido Pablo
Año de publicación
2025
Idioma
inglés
Tipo de recurso
artículo
Estado
versión publicada
Descripción
The aim of this study was to analyze and compare the impact on life in people with dissociative seizures (DS) and drug-resistant epilepsy (DRE). A qualitative approach was employed using the McGill Illness Narrative Interview, which was conducted and analyzed following thematic analysis principles. Ten women diagnosed with DS or DRE participated, all from underserved sectors in Argentina. Three major themes emerged from the interviews: (1) role of emotions (emotional experiences related to the disease, both preceding the seizure and as a consequence of them). Both groups reported unpleasant emotions as a consequence of seizures, such as fear, shame, and sadness. Emotional states, including stress and anxiety, were also described as seizure triggers in both conditions. (2) Impact on social interaction (the way in which the disease impacted on social relationships). Participants with DS experienced interpersonal conflicts, mistreatment, and disbelief more frequently than those with DRE, who reported a higher perception of overprotection and hesitancy to disclose their condition. Both groups acknowledged the importance of social support from family and friends. (3) Impact on daily life activities (the way in which people discontinued activities due to the disease or continued despite it). Seizures disrupted autonomy, work, and recreational activities, though some participants continued working despite limitations. These findings provide insight into the challenges of living with DS and DRE. A deeper understanding of these experiences can inform targeted interventions to improve the quality of life for these patient populations, particularly in resource-limited settings.
Fil: Wolfzun, Camila. Consejo Nacional de Investigaciones Científicas y Técnicas; Argentina. Universidad de Buenos Aires. Facultad de Psicología. Instituto de Investigaciones; Argentina. Gobierno de la Ciudad de Buenos Aires. Hospital General de Agudos "Ramos Mejía"; Argentina
Fil: Sarudiansky, Mercedes. Consejo Nacional de Investigaciones Científicas y Técnicas; Argentina. Universidad de Buenos Aires. Facultad de Psicología. Instituto de Investigaciones; Argentina. Gobierno de la Ciudad de Buenos Aires. Hospital General de Agudos "Ramos Mejía"; Argentina
Fil: Areco Pico, Maria Marta. Consejo Nacional de Investigaciones Científicas y Técnicas; Argentina. Universidad de Buenos Aires. Facultad de Psicología. Instituto de Investigaciones; Argentina. Gobierno de la Ciudad de Buenos Aires. Hospital General de Agudos "Ramos Mejía"; Argentina
Fil: Tenreyro, Cristina. Universidad de Buenos Aires. Facultad de Psicología. Instituto de Investigaciones; Argentina. Gobierno de la Ciudad de Buenos Aires. Hospital General de Agudos "Ramos Mejía"; Argentina
Fil: Lanzillotti, Alejandra Inés. Consejo Nacional de Investigaciones Científicas y Técnicas; Argentina. Universidad de Buenos Aires. Facultad de Psicología. Instituto de Investigaciones; Argentina. Gobierno de la Ciudad de Buenos Aires. Hospital General de Agudos "Ramos Mejía"; Argentina
Fil: D`alessio, Luciana. Consejo Nacional de Investigaciones Científicas y Técnicas. Oficina de Coordinación Administrativa Houssay. Instituto de Biología Celular y Neurociencia "Prof. Eduardo de Robertis". Universidad de Buenos Aires. Facultad de Medicina. Instituto de Biología Celular y Neurociencia; Argentina. Gobierno de la Ciudad de Buenos Aires. Hospital General de Agudos "Ramos Mejía"; Argentina
Fil: Korman, Guido Pablo. Consejo Nacional de Investigaciones Científicas y Técnicas; Argentina. Universidad de Buenos Aires. Facultad de Psicología. Instituto de Investigaciones; Argentina. Gobierno de la Ciudad de Buenos Aires. Hospital General de Agudos "Ramos Mejía"; Argentina
Materia
DISSOCIATIVE SEIZURES
DRUG-RESISTANT EPILEPSY
IMPACT ON LIFE
PSYCHOGENIC NON-EPILEPTIC SEIZURES
Nivel de accesibilidad
acceso abierto
Condiciones de uso
https://creativecommons.org/licenses/by/2.5/ar/
Repositorio
CONICET Digital (CONICET)
Institución
Consejo Nacional de Investigaciones Científicas y Técnicas
OAI Identificador
oai:ri.conicet.gov.ar:11336/266598
Acceder
id CONICETDig_ed8f241c94f334b9f45de7fea48d0099
oai_identifier_str oai:ri.conicet.gov.ar:11336/266598
network_acronym_str CONICETDig
repository_id_str 3498
network_name_str CONICET Digital (CONICET)
spelling The impact on life in people with dissociative seizures or drug-resistant epilepsyWolfzun, CamilaSarudiansky, MercedesAreco Pico, Maria MartaTenreyro, CristinaLanzillotti, Alejandra InésD`alessio, LucianaKorman, Guido PabloDISSOCIATIVE SEIZURESDRUG-RESISTANT EPILEPSYIMPACT ON LIFEPSYCHOGENIC NON-EPILEPTIC SEIZUREShttps://purl.org/becyt/ford/5.1https://purl.org/becyt/ford/5The aim of this study was to analyze and compare the impact on life in people with dissociative seizures (DS) and drug-resistant epilepsy (DRE). A qualitative approach was employed using the McGill Illness Narrative Interview, which was conducted and analyzed following thematic analysis principles. Ten women diagnosed with DS or DRE participated, all from underserved sectors in Argentina. Three major themes emerged from the interviews: (1) role of emotions (emotional experiences related to the disease, both preceding the seizure and as a consequence of them). Both groups reported unpleasant emotions as a consequence of seizures, such as fear, shame, and sadness. Emotional states, including stress and anxiety, were also described as seizure triggers in both conditions. (2) Impact on social interaction (the way in which the disease impacted on social relationships). Participants with DS experienced interpersonal conflicts, mistreatment, and disbelief more frequently than those with DRE, who reported a higher perception of overprotection and hesitancy to disclose their condition. Both groups acknowledged the importance of social support from family and friends. (3) Impact on daily life activities (the way in which people discontinued activities due to the disease or continued despite it). Seizures disrupted autonomy, work, and recreational activities, though some participants continued working despite limitations. These findings provide insight into the challenges of living with DS and DRE. A deeper understanding of these experiences can inform targeted interventions to improve the quality of life for these patient populations, particularly in resource-limited settings.Fil: Wolfzun, Camila. Consejo Nacional de Investigaciones Científicas y Técnicas; Argentina. Universidad de Buenos Aires. Facultad de Psicología. Instituto de Investigaciones; Argentina. Gobierno de la Ciudad de Buenos Aires. Hospital General de Agudos "Ramos Mejía"; ArgentinaFil: Sarudiansky, Mercedes. Consejo Nacional de Investigaciones Científicas y Técnicas; Argentina. Universidad de Buenos Aires. Facultad de Psicología. Instituto de Investigaciones; Argentina. Gobierno de la Ciudad de Buenos Aires. Hospital General de Agudos "Ramos Mejía"; ArgentinaFil: Areco Pico, Maria Marta. Consejo Nacional de Investigaciones Científicas y Técnicas; Argentina. Universidad de Buenos Aires. Facultad de Psicología. Instituto de Investigaciones; Argentina. Gobierno de la Ciudad de Buenos Aires. Hospital General de Agudos "Ramos Mejía"; ArgentinaFil: Tenreyro, Cristina. Universidad de Buenos Aires. Facultad de Psicología. Instituto de Investigaciones; Argentina. Gobierno de la Ciudad de Buenos Aires. Hospital General de Agudos "Ramos Mejía"; ArgentinaFil: Lanzillotti, Alejandra Inés. Consejo Nacional de Investigaciones Científicas y Técnicas; Argentina. Universidad de Buenos Aires. Facultad de Psicología. Instituto de Investigaciones; Argentina. Gobierno de la Ciudad de Buenos Aires. Hospital General de Agudos "Ramos Mejía"; ArgentinaFil: D`alessio, Luciana. Consejo Nacional de Investigaciones Científicas y Técnicas. Oficina de Coordinación Administrativa Houssay. Instituto de Biología Celular y Neurociencia "Prof. Eduardo de Robertis". Universidad de Buenos Aires. Facultad de Medicina. Instituto de Biología Celular y Neurociencia; Argentina. Gobierno de la Ciudad de Buenos Aires. Hospital General de Agudos "Ramos Mejía"; ArgentinaFil: Korman, Guido Pablo. Consejo Nacional de Investigaciones Científicas y Técnicas; Argentina. Universidad de Buenos Aires. Facultad de Psicología. Instituto de Investigaciones; Argentina. Gobierno de la Ciudad de Buenos Aires. Hospital General de Agudos "Ramos Mejía"; ArgentinaAccScience Publishing2025-04info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionhttp://purl.org/coar/resource_type/c_6501info:ar-repo/semantics/articuloapplication/pdfapplication/pdfhttp://hdl.handle.net/11336/266598Wolfzun, Camila; Sarudiansky, Mercedes; Areco Pico, Maria Marta; Tenreyro, Cristina; Lanzillotti, Alejandra Inés; et al.; The impact on life in people with dissociative seizures or drug-resistant epilepsy; AccScience Publishing; Journal of Clinical and Basic Psychosomatics; 3; 3; 4-2025; 1-123060-85622972-4414CONICET DigitalCONICETenginfo:eu-repo/semantics/altIdentifier/url/https://accscience.com/journal/JCBP/articles/online_first/4768info:eu-repo/semantics/altIdentifier/doi/10.36922/jcbp.8112info:eu-repo/semantics/openAccesshttps://creativecommons.org/licenses/by/2.5/ar/reponame:CONICET Digital (CONICET)instname:Consejo Nacional de Investigaciones Científicas y Técnicas2025-10-15T14:35:29Zoai:ri.conicet.gov.ar:11336/266598instacron:CONICETInstitucionalhttp://ri.conicet.gov.ar/Organismo científico-tecnológicoNo correspondehttp://ri.conicet.gov.ar/oai/requestdasensio@conicet.gov.ar; lcarlino@conicet.gov.arArgentinaNo correspondeNo correspondeNo correspondeopendoar:34982025-10-15 14:35:29.933CONICET Digital (CONICET) - Consejo Nacional de Investigaciones Científicas y Técnicasfalse
dc.title.none.fl_str_mv The impact on life in people with dissociative seizures or drug-resistant epilepsy
title The impact on life in people with dissociative seizures or drug-resistant epilepsy
spellingShingle The impact on life in people with dissociative seizures or drug-resistant epilepsy
Wolfzun, Camila
DISSOCIATIVE SEIZURES
DRUG-RESISTANT EPILEPSY
IMPACT ON LIFE
PSYCHOGENIC NON-EPILEPTIC SEIZURES
title_short The impact on life in people with dissociative seizures or drug-resistant epilepsy
title_full The impact on life in people with dissociative seizures or drug-resistant epilepsy
title_fullStr The impact on life in people with dissociative seizures or drug-resistant epilepsy
title_full_unstemmed The impact on life in people with dissociative seizures or drug-resistant epilepsy
title_sort The impact on life in people with dissociative seizures or drug-resistant epilepsy
dc.creator.none.fl_str_mv Wolfzun, Camila
Sarudiansky, Mercedes
Areco Pico, Maria Marta
Tenreyro, Cristina
Lanzillotti, Alejandra Inés
D`alessio, Luciana
Korman, Guido Pablo
author Wolfzun, Camila
author_facet Wolfzun, Camila
Sarudiansky, Mercedes
Areco Pico, Maria Marta
Tenreyro, Cristina
Lanzillotti, Alejandra Inés
D`alessio, Luciana
Korman, Guido Pablo
author_role author
author2 Sarudiansky, Mercedes
Areco Pico, Maria Marta
Tenreyro, Cristina
Lanzillotti, Alejandra Inés
D`alessio, Luciana
Korman, Guido Pablo
author2_role author
author
author
author
author
author
dc.subject.none.fl_str_mv DISSOCIATIVE SEIZURES
DRUG-RESISTANT EPILEPSY
IMPACT ON LIFE
PSYCHOGENIC NON-EPILEPTIC SEIZURES
topic DISSOCIATIVE SEIZURES
DRUG-RESISTANT EPILEPSY
IMPACT ON LIFE
PSYCHOGENIC NON-EPILEPTIC SEIZURES
purl_subject.fl_str_mv https://purl.org/becyt/ford/5.1
https://purl.org/becyt/ford/5
dc.description.none.fl_txt_mv The aim of this study was to analyze and compare the impact on life in people with dissociative seizures (DS) and drug-resistant epilepsy (DRE). A qualitative approach was employed using the McGill Illness Narrative Interview, which was conducted and analyzed following thematic analysis principles. Ten women diagnosed with DS or DRE participated, all from underserved sectors in Argentina. Three major themes emerged from the interviews: (1) role of emotions (emotional experiences related to the disease, both preceding the seizure and as a consequence of them). Both groups reported unpleasant emotions as a consequence of seizures, such as fear, shame, and sadness. Emotional states, including stress and anxiety, were also described as seizure triggers in both conditions. (2) Impact on social interaction (the way in which the disease impacted on social relationships). Participants with DS experienced interpersonal conflicts, mistreatment, and disbelief more frequently than those with DRE, who reported a higher perception of overprotection and hesitancy to disclose their condition. Both groups acknowledged the importance of social support from family and friends. (3) Impact on daily life activities (the way in which people discontinued activities due to the disease or continued despite it). Seizures disrupted autonomy, work, and recreational activities, though some participants continued working despite limitations. These findings provide insight into the challenges of living with DS and DRE. A deeper understanding of these experiences can inform targeted interventions to improve the quality of life for these patient populations, particularly in resource-limited settings.
Fil: Wolfzun, Camila. Consejo Nacional de Investigaciones Científicas y Técnicas; Argentina. Universidad de Buenos Aires. Facultad de Psicología. Instituto de Investigaciones; Argentina. Gobierno de la Ciudad de Buenos Aires. Hospital General de Agudos "Ramos Mejía"; Argentina
Fil: Sarudiansky, Mercedes. Consejo Nacional de Investigaciones Científicas y Técnicas; Argentina. Universidad de Buenos Aires. Facultad de Psicología. Instituto de Investigaciones; Argentina. Gobierno de la Ciudad de Buenos Aires. Hospital General de Agudos "Ramos Mejía"; Argentina
Fil: Areco Pico, Maria Marta. Consejo Nacional de Investigaciones Científicas y Técnicas; Argentina. Universidad de Buenos Aires. Facultad de Psicología. Instituto de Investigaciones; Argentina. Gobierno de la Ciudad de Buenos Aires. Hospital General de Agudos "Ramos Mejía"; Argentina
Fil: Tenreyro, Cristina. Universidad de Buenos Aires. Facultad de Psicología. Instituto de Investigaciones; Argentina. Gobierno de la Ciudad de Buenos Aires. Hospital General de Agudos "Ramos Mejía"; Argentina
Fil: Lanzillotti, Alejandra Inés. Consejo Nacional de Investigaciones Científicas y Técnicas; Argentina. Universidad de Buenos Aires. Facultad de Psicología. Instituto de Investigaciones; Argentina. Gobierno de la Ciudad de Buenos Aires. Hospital General de Agudos "Ramos Mejía"; Argentina
Fil: D`alessio, Luciana. Consejo Nacional de Investigaciones Científicas y Técnicas. Oficina de Coordinación Administrativa Houssay. Instituto de Biología Celular y Neurociencia "Prof. Eduardo de Robertis". Universidad de Buenos Aires. Facultad de Medicina. Instituto de Biología Celular y Neurociencia; Argentina. Gobierno de la Ciudad de Buenos Aires. Hospital General de Agudos "Ramos Mejía"; Argentina
Fil: Korman, Guido Pablo. Consejo Nacional de Investigaciones Científicas y Técnicas; Argentina. Universidad de Buenos Aires. Facultad de Psicología. Instituto de Investigaciones; Argentina. Gobierno de la Ciudad de Buenos Aires. Hospital General de Agudos "Ramos Mejía"; Argentina
description The aim of this study was to analyze and compare the impact on life in people with dissociative seizures (DS) and drug-resistant epilepsy (DRE). A qualitative approach was employed using the McGill Illness Narrative Interview, which was conducted and analyzed following thematic analysis principles. Ten women diagnosed with DS or DRE participated, all from underserved sectors in Argentina. Three major themes emerged from the interviews: (1) role of emotions (emotional experiences related to the disease, both preceding the seizure and as a consequence of them). Both groups reported unpleasant emotions as a consequence of seizures, such as fear, shame, and sadness. Emotional states, including stress and anxiety, were also described as seizure triggers in both conditions. (2) Impact on social interaction (the way in which the disease impacted on social relationships). Participants with DS experienced interpersonal conflicts, mistreatment, and disbelief more frequently than those with DRE, who reported a higher perception of overprotection and hesitancy to disclose their condition. Both groups acknowledged the importance of social support from family and friends. (3) Impact on daily life activities (the way in which people discontinued activities due to the disease or continued despite it). Seizures disrupted autonomy, work, and recreational activities, though some participants continued working despite limitations. These findings provide insight into the challenges of living with DS and DRE. A deeper understanding of these experiences can inform targeted interventions to improve the quality of life for these patient populations, particularly in resource-limited settings.
publishDate 2025
dc.date.none.fl_str_mv 2025-04
dc.type.none.fl_str_mv info:eu-repo/semantics/article
info:eu-repo/semantics/publishedVersion
http://purl.org/coar/resource_type/c_6501
info:ar-repo/semantics/articulo
format article
status_str publishedVersion
dc.identifier.none.fl_str_mv http://hdl.handle.net/11336/266598
Wolfzun, Camila; Sarudiansky, Mercedes; Areco Pico, Maria Marta; Tenreyro, Cristina; Lanzillotti, Alejandra Inés; et al.; The impact on life in people with dissociative seizures or drug-resistant epilepsy; AccScience Publishing; Journal of Clinical and Basic Psychosomatics; 3; 3; 4-2025; 1-12
3060-8562
2972-4414
CONICET Digital
CONICET
url http://hdl.handle.net/11336/266598
identifier_str_mv Wolfzun, Camila; Sarudiansky, Mercedes; Areco Pico, Maria Marta; Tenreyro, Cristina; Lanzillotti, Alejandra Inés; et al.; The impact on life in people with dissociative seizures or drug-resistant epilepsy; AccScience Publishing; Journal of Clinical and Basic Psychosomatics; 3; 3; 4-2025; 1-12
3060-8562
2972-4414
CONICET Digital
CONICET
dc.language.none.fl_str_mv eng
language eng
dc.relation.none.fl_str_mv info:eu-repo/semantics/altIdentifier/url/https://accscience.com/journal/JCBP/articles/online_first/4768
info:eu-repo/semantics/altIdentifier/doi/10.36922/jcbp.8112
dc.rights.none.fl_str_mv info:eu-repo/semantics/openAccess
https://creativecommons.org/licenses/by/2.5/ar/
eu_rights_str_mv openAccess
rights_invalid_str_mv https://creativecommons.org/licenses/by/2.5/ar/
dc.format.none.fl_str_mv application/pdf
application/pdf
dc.publisher.none.fl_str_mv AccScience Publishing
publisher.none.fl_str_mv AccScience Publishing
dc.source.none.fl_str_mv reponame:CONICET Digital (CONICET)
instname:Consejo Nacional de Investigaciones Científicas y Técnicas
reponame_str CONICET Digital (CONICET)
collection CONICET Digital (CONICET)
instname_str Consejo Nacional de Investigaciones Científicas y Técnicas
repository.name.fl_str_mv CONICET Digital (CONICET) - Consejo Nacional de Investigaciones Científicas y Técnicas
repository.mail.fl_str_mv dasensio@conicet.gov.ar; lcarlino@conicet.gov.ar
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score 13.22299

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