The impact on life in people with dissociative seizures or drug-resistant epilepsy
- Autores
- Wolfzun, Camila; Sarudiansky, Mercedes; Areco Pico, Maria Marta; Tenreyro, Cristina; Lanzillotti, Alejandra Inés; D`alessio, Luciana; Korman, Guido Pablo
- Año de publicación
- 2025
- Idioma
- inglés
- Tipo de recurso
- artículo
- Estado
- versión publicada
- Descripción
- The aim of this study was to analyze and compare the impact on life in people with dissociative seizures (DS) and drug-resistant epilepsy (DRE). A qualitative approach was employed using the McGill Illness Narrative Interview, which was conducted and analyzed following thematic analysis principles. Ten women diagnosed with DS or DRE participated, all from underserved sectors in Argentina. Three major themes emerged from the interviews: (1) role of emotions (emotional experiences related to the disease, both preceding the seizure and as a consequence of them). Both groups reported unpleasant emotions as a consequence of seizures, such as fear, shame, and sadness. Emotional states, including stress and anxiety, were also described as seizure triggers in both conditions. (2) Impact on social interaction (the way in which the disease impacted on social relationships). Participants with DS experienced interpersonal conflicts, mistreatment, and disbelief more frequently than those with DRE, who reported a higher perception of overprotection and hesitancy to disclose their condition. Both groups acknowledged the importance of social support from family and friends. (3) Impact on daily life activities (the way in which people discontinued activities due to the disease or continued despite it). Seizures disrupted autonomy, work, and recreational activities, though some participants continued working despite limitations. These findings provide insight into the challenges of living with DS and DRE. A deeper understanding of these experiences can inform targeted interventions to improve the quality of life for these patient populations, particularly in resource-limited settings.
Fil: Wolfzun, Camila. Consejo Nacional de Investigaciones Científicas y Técnicas; Argentina. Universidad de Buenos Aires. Facultad de Psicología. Instituto de Investigaciones; Argentina. Gobierno de la Ciudad de Buenos Aires. Hospital General de Agudos "Ramos Mejía"; Argentina
Fil: Sarudiansky, Mercedes. Consejo Nacional de Investigaciones Científicas y Técnicas; Argentina. Universidad de Buenos Aires. Facultad de Psicología. Instituto de Investigaciones; Argentina. Gobierno de la Ciudad de Buenos Aires. Hospital General de Agudos "Ramos Mejía"; Argentina
Fil: Areco Pico, Maria Marta. Consejo Nacional de Investigaciones Científicas y Técnicas; Argentina. Universidad de Buenos Aires. Facultad de Psicología. Instituto de Investigaciones; Argentina. Gobierno de la Ciudad de Buenos Aires. Hospital General de Agudos "Ramos Mejía"; Argentina
Fil: Tenreyro, Cristina. Universidad de Buenos Aires. Facultad de Psicología. Instituto de Investigaciones; Argentina. Gobierno de la Ciudad de Buenos Aires. Hospital General de Agudos "Ramos Mejía"; Argentina
Fil: Lanzillotti, Alejandra Inés. Consejo Nacional de Investigaciones Científicas y Técnicas; Argentina. Universidad de Buenos Aires. Facultad de Psicología. Instituto de Investigaciones; Argentina. Gobierno de la Ciudad de Buenos Aires. Hospital General de Agudos "Ramos Mejía"; Argentina
Fil: D`alessio, Luciana. Consejo Nacional de Investigaciones Científicas y Técnicas. Oficina de Coordinación Administrativa Houssay. Instituto de Biología Celular y Neurociencia "Prof. Eduardo de Robertis". Universidad de Buenos Aires. Facultad de Medicina. Instituto de Biología Celular y Neurociencia; Argentina. Gobierno de la Ciudad de Buenos Aires. Hospital General de Agudos "Ramos Mejía"; Argentina
Fil: Korman, Guido Pablo. Consejo Nacional de Investigaciones Científicas y Técnicas; Argentina. Universidad de Buenos Aires. Facultad de Psicología. Instituto de Investigaciones; Argentina. Gobierno de la Ciudad de Buenos Aires. Hospital General de Agudos "Ramos Mejía"; Argentina - Materia
-
DISSOCIATIVE SEIZURES
DRUG-RESISTANT EPILEPSY
IMPACT ON LIFE
PSYCHOGENIC NON-EPILEPTIC SEIZURES - Nivel de accesibilidad
- acceso abierto
- Condiciones de uso
- https://creativecommons.org/licenses/by/2.5/ar/
- Repositorio
- Institución
- Consejo Nacional de Investigaciones Científicas y Técnicas
- OAI Identificador
- oai:ri.conicet.gov.ar:11336/266598
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The impact on life in people with dissociative seizures or drug-resistant epilepsyWolfzun, CamilaSarudiansky, MercedesAreco Pico, Maria MartaTenreyro, CristinaLanzillotti, Alejandra InésD`alessio, LucianaKorman, Guido PabloDISSOCIATIVE SEIZURESDRUG-RESISTANT EPILEPSYIMPACT ON LIFEPSYCHOGENIC NON-EPILEPTIC SEIZUREShttps://purl.org/becyt/ford/5.1https://purl.org/becyt/ford/5The aim of this study was to analyze and compare the impact on life in people with dissociative seizures (DS) and drug-resistant epilepsy (DRE). A qualitative approach was employed using the McGill Illness Narrative Interview, which was conducted and analyzed following thematic analysis principles. Ten women diagnosed with DS or DRE participated, all from underserved sectors in Argentina. Three major themes emerged from the interviews: (1) role of emotions (emotional experiences related to the disease, both preceding the seizure and as a consequence of them). Both groups reported unpleasant emotions as a consequence of seizures, such as fear, shame, and sadness. Emotional states, including stress and anxiety, were also described as seizure triggers in both conditions. (2) Impact on social interaction (the way in which the disease impacted on social relationships). Participants with DS experienced interpersonal conflicts, mistreatment, and disbelief more frequently than those with DRE, who reported a higher perception of overprotection and hesitancy to disclose their condition. Both groups acknowledged the importance of social support from family and friends. (3) Impact on daily life activities (the way in which people discontinued activities due to the disease or continued despite it). Seizures disrupted autonomy, work, and recreational activities, though some participants continued working despite limitations. These findings provide insight into the challenges of living with DS and DRE. A deeper understanding of these experiences can inform targeted interventions to improve the quality of life for these patient populations, particularly in resource-limited settings.Fil: Wolfzun, Camila. Consejo Nacional de Investigaciones Científicas y Técnicas; Argentina. Universidad de Buenos Aires. Facultad de Psicología. Instituto de Investigaciones; Argentina. Gobierno de la Ciudad de Buenos Aires. Hospital General de Agudos "Ramos Mejía"; ArgentinaFil: Sarudiansky, Mercedes. Consejo Nacional de Investigaciones Científicas y Técnicas; Argentina. Universidad de Buenos Aires. Facultad de Psicología. Instituto de Investigaciones; Argentina. Gobierno de la Ciudad de Buenos Aires. Hospital General de Agudos "Ramos Mejía"; ArgentinaFil: Areco Pico, Maria Marta. Consejo Nacional de Investigaciones Científicas y Técnicas; Argentina. Universidad de Buenos Aires. Facultad de Psicología. Instituto de Investigaciones; Argentina. Gobierno de la Ciudad de Buenos Aires. Hospital General de Agudos "Ramos Mejía"; ArgentinaFil: Tenreyro, Cristina. Universidad de Buenos Aires. Facultad de Psicología. Instituto de Investigaciones; Argentina. Gobierno de la Ciudad de Buenos Aires. Hospital General de Agudos "Ramos Mejía"; ArgentinaFil: Lanzillotti, Alejandra Inés. Consejo Nacional de Investigaciones Científicas y Técnicas; Argentina. Universidad de Buenos Aires. Facultad de Psicología. Instituto de Investigaciones; Argentina. Gobierno de la Ciudad de Buenos Aires. Hospital General de Agudos "Ramos Mejía"; ArgentinaFil: D`alessio, Luciana. Consejo Nacional de Investigaciones Científicas y Técnicas. Oficina de Coordinación Administrativa Houssay. Instituto de Biología Celular y Neurociencia "Prof. Eduardo de Robertis". Universidad de Buenos Aires. Facultad de Medicina. Instituto de Biología Celular y Neurociencia; Argentina. Gobierno de la Ciudad de Buenos Aires. Hospital General de Agudos "Ramos Mejía"; ArgentinaFil: Korman, Guido Pablo. Consejo Nacional de Investigaciones Científicas y Técnicas; Argentina. Universidad de Buenos Aires. Facultad de Psicología. Instituto de Investigaciones; Argentina. Gobierno de la Ciudad de Buenos Aires. Hospital General de Agudos "Ramos Mejía"; ArgentinaAccScience Publishing2025-04info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionhttp://purl.org/coar/resource_type/c_6501info:ar-repo/semantics/articuloapplication/pdfapplication/pdfhttp://hdl.handle.net/11336/266598Wolfzun, Camila; Sarudiansky, Mercedes; Areco Pico, Maria Marta; Tenreyro, Cristina; Lanzillotti, Alejandra Inés; et al.; The impact on life in people with dissociative seizures or drug-resistant epilepsy; AccScience Publishing; Journal of Clinical and Basic Psychosomatics; 3; 3; 4-2025; 1-123060-85622972-4414CONICET DigitalCONICETenginfo:eu-repo/semantics/altIdentifier/url/https://accscience.com/journal/JCBP/articles/online_first/4768info:eu-repo/semantics/altIdentifier/doi/10.36922/jcbp.8112info:eu-repo/semantics/openAccesshttps://creativecommons.org/licenses/by/2.5/ar/reponame:CONICET Digital (CONICET)instname:Consejo Nacional de Investigaciones Científicas y Técnicas2025-09-29T09:42:26Zoai:ri.conicet.gov.ar:11336/266598instacron:CONICETInstitucionalhttp://ri.conicet.gov.ar/Organismo científico-tecnológicoNo correspondehttp://ri.conicet.gov.ar/oai/requestdasensio@conicet.gov.ar; lcarlino@conicet.gov.arArgentinaNo correspondeNo correspondeNo correspondeopendoar:34982025-09-29 09:42:26.592CONICET Digital (CONICET) - Consejo Nacional de Investigaciones Científicas y Técnicasfalse |
dc.title.none.fl_str_mv |
The impact on life in people with dissociative seizures or drug-resistant epilepsy |
title |
The impact on life in people with dissociative seizures or drug-resistant epilepsy |
spellingShingle |
The impact on life in people with dissociative seizures or drug-resistant epilepsy Wolfzun, Camila DISSOCIATIVE SEIZURES DRUG-RESISTANT EPILEPSY IMPACT ON LIFE PSYCHOGENIC NON-EPILEPTIC SEIZURES |
title_short |
The impact on life in people with dissociative seizures or drug-resistant epilepsy |
title_full |
The impact on life in people with dissociative seizures or drug-resistant epilepsy |
title_fullStr |
The impact on life in people with dissociative seizures or drug-resistant epilepsy |
title_full_unstemmed |
The impact on life in people with dissociative seizures or drug-resistant epilepsy |
title_sort |
The impact on life in people with dissociative seizures or drug-resistant epilepsy |
dc.creator.none.fl_str_mv |
Wolfzun, Camila Sarudiansky, Mercedes Areco Pico, Maria Marta Tenreyro, Cristina Lanzillotti, Alejandra Inés D`alessio, Luciana Korman, Guido Pablo |
author |
Wolfzun, Camila |
author_facet |
Wolfzun, Camila Sarudiansky, Mercedes Areco Pico, Maria Marta Tenreyro, Cristina Lanzillotti, Alejandra Inés D`alessio, Luciana Korman, Guido Pablo |
author_role |
author |
author2 |
Sarudiansky, Mercedes Areco Pico, Maria Marta Tenreyro, Cristina Lanzillotti, Alejandra Inés D`alessio, Luciana Korman, Guido Pablo |
author2_role |
author author author author author author |
dc.subject.none.fl_str_mv |
DISSOCIATIVE SEIZURES DRUG-RESISTANT EPILEPSY IMPACT ON LIFE PSYCHOGENIC NON-EPILEPTIC SEIZURES |
topic |
DISSOCIATIVE SEIZURES DRUG-RESISTANT EPILEPSY IMPACT ON LIFE PSYCHOGENIC NON-EPILEPTIC SEIZURES |
purl_subject.fl_str_mv |
https://purl.org/becyt/ford/5.1 https://purl.org/becyt/ford/5 |
dc.description.none.fl_txt_mv |
The aim of this study was to analyze and compare the impact on life in people with dissociative seizures (DS) and drug-resistant epilepsy (DRE). A qualitative approach was employed using the McGill Illness Narrative Interview, which was conducted and analyzed following thematic analysis principles. Ten women diagnosed with DS or DRE participated, all from underserved sectors in Argentina. Three major themes emerged from the interviews: (1) role of emotions (emotional experiences related to the disease, both preceding the seizure and as a consequence of them). Both groups reported unpleasant emotions as a consequence of seizures, such as fear, shame, and sadness. Emotional states, including stress and anxiety, were also described as seizure triggers in both conditions. (2) Impact on social interaction (the way in which the disease impacted on social relationships). Participants with DS experienced interpersonal conflicts, mistreatment, and disbelief more frequently than those with DRE, who reported a higher perception of overprotection and hesitancy to disclose their condition. Both groups acknowledged the importance of social support from family and friends. (3) Impact on daily life activities (the way in which people discontinued activities due to the disease or continued despite it). Seizures disrupted autonomy, work, and recreational activities, though some participants continued working despite limitations. These findings provide insight into the challenges of living with DS and DRE. A deeper understanding of these experiences can inform targeted interventions to improve the quality of life for these patient populations, particularly in resource-limited settings. Fil: Wolfzun, Camila. Consejo Nacional de Investigaciones Científicas y Técnicas; Argentina. Universidad de Buenos Aires. Facultad de Psicología. Instituto de Investigaciones; Argentina. Gobierno de la Ciudad de Buenos Aires. Hospital General de Agudos "Ramos Mejía"; Argentina Fil: Sarudiansky, Mercedes. Consejo Nacional de Investigaciones Científicas y Técnicas; Argentina. Universidad de Buenos Aires. Facultad de Psicología. Instituto de Investigaciones; Argentina. Gobierno de la Ciudad de Buenos Aires. Hospital General de Agudos "Ramos Mejía"; Argentina Fil: Areco Pico, Maria Marta. Consejo Nacional de Investigaciones Científicas y Técnicas; Argentina. Universidad de Buenos Aires. Facultad de Psicología. Instituto de Investigaciones; Argentina. Gobierno de la Ciudad de Buenos Aires. Hospital General de Agudos "Ramos Mejía"; Argentina Fil: Tenreyro, Cristina. Universidad de Buenos Aires. Facultad de Psicología. Instituto de Investigaciones; Argentina. Gobierno de la Ciudad de Buenos Aires. Hospital General de Agudos "Ramos Mejía"; Argentina Fil: Lanzillotti, Alejandra Inés. Consejo Nacional de Investigaciones Científicas y Técnicas; Argentina. Universidad de Buenos Aires. Facultad de Psicología. Instituto de Investigaciones; Argentina. Gobierno de la Ciudad de Buenos Aires. Hospital General de Agudos "Ramos Mejía"; Argentina Fil: D`alessio, Luciana. Consejo Nacional de Investigaciones Científicas y Técnicas. Oficina de Coordinación Administrativa Houssay. Instituto de Biología Celular y Neurociencia "Prof. Eduardo de Robertis". Universidad de Buenos Aires. Facultad de Medicina. Instituto de Biología Celular y Neurociencia; Argentina. Gobierno de la Ciudad de Buenos Aires. Hospital General de Agudos "Ramos Mejía"; Argentina Fil: Korman, Guido Pablo. Consejo Nacional de Investigaciones Científicas y Técnicas; Argentina. Universidad de Buenos Aires. Facultad de Psicología. Instituto de Investigaciones; Argentina. Gobierno de la Ciudad de Buenos Aires. Hospital General de Agudos "Ramos Mejía"; Argentina |
description |
The aim of this study was to analyze and compare the impact on life in people with dissociative seizures (DS) and drug-resistant epilepsy (DRE). A qualitative approach was employed using the McGill Illness Narrative Interview, which was conducted and analyzed following thematic analysis principles. Ten women diagnosed with DS or DRE participated, all from underserved sectors in Argentina. Three major themes emerged from the interviews: (1) role of emotions (emotional experiences related to the disease, both preceding the seizure and as a consequence of them). Both groups reported unpleasant emotions as a consequence of seizures, such as fear, shame, and sadness. Emotional states, including stress and anxiety, were also described as seizure triggers in both conditions. (2) Impact on social interaction (the way in which the disease impacted on social relationships). Participants with DS experienced interpersonal conflicts, mistreatment, and disbelief more frequently than those with DRE, who reported a higher perception of overprotection and hesitancy to disclose their condition. Both groups acknowledged the importance of social support from family and friends. (3) Impact on daily life activities (the way in which people discontinued activities due to the disease or continued despite it). Seizures disrupted autonomy, work, and recreational activities, though some participants continued working despite limitations. These findings provide insight into the challenges of living with DS and DRE. A deeper understanding of these experiences can inform targeted interventions to improve the quality of life for these patient populations, particularly in resource-limited settings. |
publishDate |
2025 |
dc.date.none.fl_str_mv |
2025-04 |
dc.type.none.fl_str_mv |
info:eu-repo/semantics/article info:eu-repo/semantics/publishedVersion http://purl.org/coar/resource_type/c_6501 info:ar-repo/semantics/articulo |
format |
article |
status_str |
publishedVersion |
dc.identifier.none.fl_str_mv |
http://hdl.handle.net/11336/266598 Wolfzun, Camila; Sarudiansky, Mercedes; Areco Pico, Maria Marta; Tenreyro, Cristina; Lanzillotti, Alejandra Inés; et al.; The impact on life in people with dissociative seizures or drug-resistant epilepsy; AccScience Publishing; Journal of Clinical and Basic Psychosomatics; 3; 3; 4-2025; 1-12 3060-8562 2972-4414 CONICET Digital CONICET |
url |
http://hdl.handle.net/11336/266598 |
identifier_str_mv |
Wolfzun, Camila; Sarudiansky, Mercedes; Areco Pico, Maria Marta; Tenreyro, Cristina; Lanzillotti, Alejandra Inés; et al.; The impact on life in people with dissociative seizures or drug-resistant epilepsy; AccScience Publishing; Journal of Clinical and Basic Psychosomatics; 3; 3; 4-2025; 1-12 3060-8562 2972-4414 CONICET Digital CONICET |
dc.language.none.fl_str_mv |
eng |
language |
eng |
dc.relation.none.fl_str_mv |
info:eu-repo/semantics/altIdentifier/url/https://accscience.com/journal/JCBP/articles/online_first/4768 info:eu-repo/semantics/altIdentifier/doi/10.36922/jcbp.8112 |
dc.rights.none.fl_str_mv |
info:eu-repo/semantics/openAccess https://creativecommons.org/licenses/by/2.5/ar/ |
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openAccess |
rights_invalid_str_mv |
https://creativecommons.org/licenses/by/2.5/ar/ |
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application/pdf application/pdf |
dc.publisher.none.fl_str_mv |
AccScience Publishing |
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AccScience Publishing |
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CONICET Digital (CONICET) |
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Consejo Nacional de Investigaciones Científicas y Técnicas |
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CONICET Digital (CONICET) - Consejo Nacional de Investigaciones Científicas y Técnicas |
repository.mail.fl_str_mv |
dasensio@conicet.gov.ar; lcarlino@conicet.gov.ar |
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13.070432 |