A consensus statement on birth defects surveillance, prevention, and care in Latin America and the Caribbean

Autores
Zarante, Ignacio; Hurtado Villa, Paula; Walani, Salimah R.; Kancherla, Vijaya; López Camelo, Jorge Santiago; Giugliani, Roberto; Groisman, Boris; Howson, Christopher P.; Durán, Adrián Pablo
Año de publicación
2019
Idioma
español castellano
Tipo de recurso
artículo
Estado
versión publicada
Descripción
Birth defects contribute up to 21% of the mortality in those under 5 years of age in Latin America and the Caribbean (LAC), and that burden has been compounded by the Zika virus epidemic. In 2001, the March of Dimes launched a series of biennial assemblies called the International Conference on Birth Defects and Disabilities in the Developing World (ICBD). The latest ICBD, in 2017, convened in Bogotá, Colombia, and was attended by over 300 professionals, policymakers, and donors. The conference attendees, a majority of whom were from LAC, supported a call to action in the form of a consensus statement. The consensus statement lists key actions for maximizing birth defects surveillance, prevention, and care in LAC: 1) improving surveillance; 2) reducing risks for birth defects; 3) fortifying staple foods; 4) preventing and treating infections associated with birth defects; 5) implementing newborn screening; 6) providing care and services for people with birth defects and disabilities; 7) involving governments, civil society, and international agencies; and 8) advancing research for birth defects. Implementation and scale-up of evidence-based interventions using multisectoral and multidisciplinary collaborative approaches were endorsed. LAC countries can leverage technology and social media to advance and advocate for approaches identified in the consensus statement. The consensus statement can be used as a guide by both governments and nongovernmental agencies to take immediate steps for improving the quality of life of those living with birth defects and associated disabilities in the LAC countries.
Fil: Zarante, Ignacio. Pontificia Universidad Javeriana; Colombia
Fil: Hurtado Villa, Paula. Pontificia Universidad Javeriana; Colombia
Fil: Walani, Salimah R.. No especifíca;
Fil: Kancherla, Vijaya. University of Emory; Estados Unidos
Fil: López Camelo, Jorge Santiago. Consejo Nacional de Investigaciones Científicas y Técnicas. Oficina de Coordinación Administrativa Parque Centenario. CEMIC-CONICET. Centro de Educaciones Médicas e Investigaciones Clínicas "Norberto Quirno". CEMIC-CONICET; Argentina
Fil: Giugliani, Roberto. Hospital de Clinicas de Porto Alegre; Brasil
Fil: Groisman, Boris. Dirección Nacional de Instituto de Investigación. Administración Nacional de Laboratorios e Institutos de Salud "Dr. Carlos G. Malbrán". Centro Nacional de Genética Médica; Argentina. Consejo Nacional de Investigaciones Científicas y Técnicas; Argentina
Fil: Howson, Christopher P.. Howson & Partners For Global Health Howson & Partners; Estados Unidos
Fil: Durán, Adrián Pablo. Organizacion Mundial de la Salud; Argentina
Materia
CONGENITAL ABNORMALITIES
LATIN AMERICA
WEST INDIES
EPIDEMIOLOGY
Nivel de accesibilidad
acceso abierto
Condiciones de uso
https://creativecommons.org/licenses/by-nc-nd/2.5/ar/
Repositorio
CONICET Digital (CONICET)
Institución
Consejo Nacional de Investigaciones Científicas y Técnicas
OAI Identificador
oai:ri.conicet.gov.ar:11336/119314
Acceder
id CONICETDig_60249d201740a8f216fce7d48a14ca08
oai_identifier_str oai:ri.conicet.gov.ar:11336/119314
network_acronym_str CONICETDig
repository_id_str 3498
network_name_str CONICET Digital (CONICET)
spelling A consensus statement on birth defects surveillance, prevention, and care in Latin America and the CaribbeanZarante, IgnacioHurtado Villa, PaulaWalani, Salimah R.Kancherla, VijayaLópez Camelo, Jorge SantiagoGiugliani, RobertoGroisman, BorisHowson, Christopher P.Durán, Adrián PabloCONGENITAL ABNORMALITIESLATIN AMERICAWEST INDIESEPIDEMIOLOGYhttps://purl.org/becyt/ford/3.3https://purl.org/becyt/ford/3Birth defects contribute up to 21% of the mortality in those under 5 years of age in Latin America and the Caribbean (LAC), and that burden has been compounded by the Zika virus epidemic. In 2001, the March of Dimes launched a series of biennial assemblies called the International Conference on Birth Defects and Disabilities in the Developing World (ICBD). The latest ICBD, in 2017, convened in Bogotá, Colombia, and was attended by over 300 professionals, policymakers, and donors. The conference attendees, a majority of whom were from LAC, supported a call to action in the form of a consensus statement. The consensus statement lists key actions for maximizing birth defects surveillance, prevention, and care in LAC: 1) improving surveillance; 2) reducing risks for birth defects; 3) fortifying staple foods; 4) preventing and treating infections associated with birth defects; 5) implementing newborn screening; 6) providing care and services for people with birth defects and disabilities; 7) involving governments, civil society, and international agencies; and 8) advancing research for birth defects. Implementation and scale-up of evidence-based interventions using multisectoral and multidisciplinary collaborative approaches were endorsed. LAC countries can leverage technology and social media to advance and advocate for approaches identified in the consensus statement. The consensus statement can be used as a guide by both governments and nongovernmental agencies to take immediate steps for improving the quality of life of those living with birth defects and associated disabilities in the LAC countries.Fil: Zarante, Ignacio. Pontificia Universidad Javeriana; ColombiaFil: Hurtado Villa, Paula. Pontificia Universidad Javeriana; ColombiaFil: Walani, Salimah R.. No especifíca;Fil: Kancherla, Vijaya. University of Emory; Estados UnidosFil: López Camelo, Jorge Santiago. Consejo Nacional de Investigaciones Científicas y Técnicas. Oficina de Coordinación Administrativa Parque Centenario. CEMIC-CONICET. Centro de Educaciones Médicas e Investigaciones Clínicas "Norberto Quirno". CEMIC-CONICET; ArgentinaFil: Giugliani, Roberto. Hospital de Clinicas de Porto Alegre; BrasilFil: Groisman, Boris. Dirección Nacional de Instituto de Investigación. Administración Nacional de Laboratorios e Institutos de Salud "Dr. Carlos G. Malbrán". Centro Nacional de Genética Médica; Argentina. Consejo Nacional de Investigaciones Científicas y Técnicas; ArgentinaFil: Howson, Christopher P.. Howson & Partners For Global Health Howson & Partners; Estados UnidosFil: Durán, Adrián Pablo. Organizacion Mundial de la Salud; ArgentinaOrganización Panamericana de la Salud2019-02info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionhttp://purl.org/coar/resource_type/c_6501info:ar-repo/semantics/articuloapplication/pdfapplication/pdfhttp://hdl.handle.net/11336/119314Zarante, Ignacio; Hurtado Villa, Paula; Walani, Salimah R.; Kancherla, Vijaya; López Camelo, Jorge Santiago; et al.; A consensus statement on birth defects surveillance, prevention, and care in Latin America and the Caribbean; Organización Panamericana de la Salud; Revista Panamericana de Salud Pública; 2-2019; 1-61680-5348CONICET DigitalCONICETspainfo:eu-repo/semantics/altIdentifier/url/http://iris.paho.org/xmlui/handle/123456789/50473info:eu-repo/semantics/altIdentifier/doi/10.26633/RPSP.2019.2info:eu-repo/semantics/openAccesshttps://creativecommons.org/licenses/by-nc-nd/2.5/ar/reponame:CONICET Digital (CONICET)instname:Consejo Nacional de Investigaciones Científicas y Técnicas2025-10-15T14:25:33Zoai:ri.conicet.gov.ar:11336/119314instacron:CONICETInstitucionalhttp://ri.conicet.gov.ar/Organismo científico-tecnológicoNo correspondehttp://ri.conicet.gov.ar/oai/requestdasensio@conicet.gov.ar; lcarlino@conicet.gov.arArgentinaNo correspondeNo correspondeNo correspondeopendoar:34982025-10-15 14:25:33.682CONICET Digital (CONICET) - Consejo Nacional de Investigaciones Científicas y Técnicasfalse
dc.title.none.fl_str_mv A consensus statement on birth defects surveillance, prevention, and care in Latin America and the Caribbean
title A consensus statement on birth defects surveillance, prevention, and care in Latin America and the Caribbean
spellingShingle A consensus statement on birth defects surveillance, prevention, and care in Latin America and the Caribbean
Zarante, Ignacio
CONGENITAL ABNORMALITIES
LATIN AMERICA
WEST INDIES
EPIDEMIOLOGY
title_short A consensus statement on birth defects surveillance, prevention, and care in Latin America and the Caribbean
title_full A consensus statement on birth defects surveillance, prevention, and care in Latin America and the Caribbean
title_fullStr A consensus statement on birth defects surveillance, prevention, and care in Latin America and the Caribbean
title_full_unstemmed A consensus statement on birth defects surveillance, prevention, and care in Latin America and the Caribbean
title_sort A consensus statement on birth defects surveillance, prevention, and care in Latin America and the Caribbean
dc.creator.none.fl_str_mv Zarante, Ignacio
Hurtado Villa, Paula
Walani, Salimah R.
Kancherla, Vijaya
López Camelo, Jorge Santiago
Giugliani, Roberto
Groisman, Boris
Howson, Christopher P.
Durán, Adrián Pablo
author Zarante, Ignacio
author_facet Zarante, Ignacio
Hurtado Villa, Paula
Walani, Salimah R.
Kancherla, Vijaya
López Camelo, Jorge Santiago
Giugliani, Roberto
Groisman, Boris
Howson, Christopher P.
Durán, Adrián Pablo
author_role author
author2 Hurtado Villa, Paula
Walani, Salimah R.
Kancherla, Vijaya
López Camelo, Jorge Santiago
Giugliani, Roberto
Groisman, Boris
Howson, Christopher P.
Durán, Adrián Pablo
author2_role author
author
author
author
author
author
author
author
dc.subject.none.fl_str_mv CONGENITAL ABNORMALITIES
LATIN AMERICA
WEST INDIES
EPIDEMIOLOGY
topic CONGENITAL ABNORMALITIES
LATIN AMERICA
WEST INDIES
EPIDEMIOLOGY
purl_subject.fl_str_mv https://purl.org/becyt/ford/3.3
https://purl.org/becyt/ford/3
dc.description.none.fl_txt_mv Birth defects contribute up to 21% of the mortality in those under 5 years of age in Latin America and the Caribbean (LAC), and that burden has been compounded by the Zika virus epidemic. In 2001, the March of Dimes launched a series of biennial assemblies called the International Conference on Birth Defects and Disabilities in the Developing World (ICBD). The latest ICBD, in 2017, convened in Bogotá, Colombia, and was attended by over 300 professionals, policymakers, and donors. The conference attendees, a majority of whom were from LAC, supported a call to action in the form of a consensus statement. The consensus statement lists key actions for maximizing birth defects surveillance, prevention, and care in LAC: 1) improving surveillance; 2) reducing risks for birth defects; 3) fortifying staple foods; 4) preventing and treating infections associated with birth defects; 5) implementing newborn screening; 6) providing care and services for people with birth defects and disabilities; 7) involving governments, civil society, and international agencies; and 8) advancing research for birth defects. Implementation and scale-up of evidence-based interventions using multisectoral and multidisciplinary collaborative approaches were endorsed. LAC countries can leverage technology and social media to advance and advocate for approaches identified in the consensus statement. The consensus statement can be used as a guide by both governments and nongovernmental agencies to take immediate steps for improving the quality of life of those living with birth defects and associated disabilities in the LAC countries.
Fil: Zarante, Ignacio. Pontificia Universidad Javeriana; Colombia
Fil: Hurtado Villa, Paula. Pontificia Universidad Javeriana; Colombia
Fil: Walani, Salimah R.. No especifíca;
Fil: Kancherla, Vijaya. University of Emory; Estados Unidos
Fil: López Camelo, Jorge Santiago. Consejo Nacional de Investigaciones Científicas y Técnicas. Oficina de Coordinación Administrativa Parque Centenario. CEMIC-CONICET. Centro de Educaciones Médicas e Investigaciones Clínicas "Norberto Quirno". CEMIC-CONICET; Argentina
Fil: Giugliani, Roberto. Hospital de Clinicas de Porto Alegre; Brasil
Fil: Groisman, Boris. Dirección Nacional de Instituto de Investigación. Administración Nacional de Laboratorios e Institutos de Salud "Dr. Carlos G. Malbrán". Centro Nacional de Genética Médica; Argentina. Consejo Nacional de Investigaciones Científicas y Técnicas; Argentina
Fil: Howson, Christopher P.. Howson & Partners For Global Health Howson & Partners; Estados Unidos
Fil: Durán, Adrián Pablo. Organizacion Mundial de la Salud; Argentina
description Birth defects contribute up to 21% of the mortality in those under 5 years of age in Latin America and the Caribbean (LAC), and that burden has been compounded by the Zika virus epidemic. In 2001, the March of Dimes launched a series of biennial assemblies called the International Conference on Birth Defects and Disabilities in the Developing World (ICBD). The latest ICBD, in 2017, convened in Bogotá, Colombia, and was attended by over 300 professionals, policymakers, and donors. The conference attendees, a majority of whom were from LAC, supported a call to action in the form of a consensus statement. The consensus statement lists key actions for maximizing birth defects surveillance, prevention, and care in LAC: 1) improving surveillance; 2) reducing risks for birth defects; 3) fortifying staple foods; 4) preventing and treating infections associated with birth defects; 5) implementing newborn screening; 6) providing care and services for people with birth defects and disabilities; 7) involving governments, civil society, and international agencies; and 8) advancing research for birth defects. Implementation and scale-up of evidence-based interventions using multisectoral and multidisciplinary collaborative approaches were endorsed. LAC countries can leverage technology and social media to advance and advocate for approaches identified in the consensus statement. The consensus statement can be used as a guide by both governments and nongovernmental agencies to take immediate steps for improving the quality of life of those living with birth defects and associated disabilities in the LAC countries.
publishDate 2019
dc.date.none.fl_str_mv 2019-02
dc.type.none.fl_str_mv info:eu-repo/semantics/article
info:eu-repo/semantics/publishedVersion
http://purl.org/coar/resource_type/c_6501
info:ar-repo/semantics/articulo
format article
status_str publishedVersion
dc.identifier.none.fl_str_mv http://hdl.handle.net/11336/119314
Zarante, Ignacio; Hurtado Villa, Paula; Walani, Salimah R.; Kancherla, Vijaya; López Camelo, Jorge Santiago; et al.; A consensus statement on birth defects surveillance, prevention, and care in Latin America and the Caribbean; Organización Panamericana de la Salud; Revista Panamericana de Salud Pública; 2-2019; 1-6
1680-5348
CONICET Digital
CONICET
url http://hdl.handle.net/11336/119314
identifier_str_mv Zarante, Ignacio; Hurtado Villa, Paula; Walani, Salimah R.; Kancherla, Vijaya; López Camelo, Jorge Santiago; et al.; A consensus statement on birth defects surveillance, prevention, and care in Latin America and the Caribbean; Organización Panamericana de la Salud; Revista Panamericana de Salud Pública; 2-2019; 1-6
1680-5348
CONICET Digital
CONICET
dc.language.none.fl_str_mv spa
language spa
dc.relation.none.fl_str_mv info:eu-repo/semantics/altIdentifier/url/http://iris.paho.org/xmlui/handle/123456789/50473
info:eu-repo/semantics/altIdentifier/doi/10.26633/RPSP.2019.2
dc.rights.none.fl_str_mv info:eu-repo/semantics/openAccess
https://creativecommons.org/licenses/by-nc-nd/2.5/ar/
eu_rights_str_mv openAccess
rights_invalid_str_mv https://creativecommons.org/licenses/by-nc-nd/2.5/ar/
dc.format.none.fl_str_mv application/pdf
application/pdf
dc.publisher.none.fl_str_mv Organización Panamericana de la Salud
publisher.none.fl_str_mv Organización Panamericana de la Salud
dc.source.none.fl_str_mv reponame:CONICET Digital (CONICET)
instname:Consejo Nacional de Investigaciones Científicas y Técnicas
reponame_str CONICET Digital (CONICET)
collection CONICET Digital (CONICET)
instname_str Consejo Nacional de Investigaciones Científicas y Técnicas
repository.name.fl_str_mv CONICET Digital (CONICET) - Consejo Nacional de Investigaciones Científicas y Técnicas
repository.mail.fl_str_mv dasensio@conicet.gov.ar; lcarlino@conicet.gov.ar
_version_ 1846082691877830656
score 13.22299

Publicaciones similares