The role of registries in improving health and bridging healthcare, research, education, innovation and development: A research department perspective

Autores
Posadas Martinez, Maria Lourdes; Vicens, Jimena; Dawidowski, Adriana Ruth; Martinez Von Scheidt, Marcela Alejandra; Pagotto, Vanina Laura; Blugerman, Gabriela Alejandra; Schpilberg, Monica Gabriela; Gadano, Adrián Carlos
Año de publicación
2024
Idioma
inglés
Tipo de recurso
artículo
Estado
versión publicada
Descripción
Health registries are organized systems that collect data on individuals with a particular disease, condition or exposure. The aim of this narrative review was to provide an integrated perspective from the Research Department at the Hospital Italiano de Buenos Aires, Argentina, on how health registries can be used as a bridge between healthcare, research, education, innovation and development while addressing ethical challenges. The review includes a description of the experience of a registry implemented at our institution, which has provided healthcare for 170 years, and is committed to support, education and research. We focus on the potential of health registries to provide better value healthcare by reducing healthcare costs and improving health outcomes and quality of care, and to improve medical knowledge. However, we also acknowledge and discuss the challenges that accompany these achievements, such as that of ethical issues. Through effective collaboration and integration with other healthcare stakeholders, health registries can be a powerful tool to promote better health.
Fil: Posadas Martinez, Maria Lourdes. Hospital Italiano; Argentina. Consejo Nacional de Investigaciones Científicas y Técnicas. Oficina de Coordinación Administrativa Houssay. Instituto de Medicina Traslacional e Ingeniería Biomédica - Hospital Italiano. Instituto de Medicina Traslacional e Ingeniería Biomédica.- Instituto Universitario Hospital Italiano de Buenos Aires. Instituto de Medicina Traslacional e Ingeniería Biomédica; Argentina
Fil: Vicens, Jimena. Hospital Italiano; Argentina
Fil: Dawidowski, Adriana Ruth. Hospital Italiano; Argentina
Fil: Martinez Von Scheidt, Marcela Alejandra. Hospital Italiano; Argentina
Fil: Pagotto, Vanina Laura. Hospital Italiano; Argentina
Fil: Blugerman, Gabriela Alejandra. Hospital Italiano; Argentina
Fil: Schpilberg, Monica Gabriela. Hospital Italiano; Argentina
Fil: Gadano, Adrián Carlos. Hospital Italiano; Argentina
Materia
Registros
Investigacion clinica
Nivel de accesibilidad
acceso abierto
Condiciones de uso
https://creativecommons.org/licenses/by-nc/2.5/ar/
Repositorio
CONICET Digital (CONICET)
Institución
Consejo Nacional de Investigaciones Científicas y Técnicas
OAI Identificador
oai:ri.conicet.gov.ar:11336/268609
Acceder
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network_name_str CONICET Digital (CONICET)
spelling The role of registries in improving health and bridging healthcare, research, education, innovation and development: A research department perspectivePosadas Martinez, Maria LourdesVicens, JimenaDawidowski, Adriana RuthMartinez Von Scheidt, Marcela AlejandraPagotto, Vanina LauraBlugerman, Gabriela AlejandraSchpilberg, Monica GabrielaGadano, Adrián CarlosRegistrosInvestigacion clinicahttps://purl.org/becyt/ford/3.2https://purl.org/becyt/ford/3Health registries are organized systems that collect data on individuals with a particular disease, condition or exposure. The aim of this narrative review was to provide an integrated perspective from the Research Department at the Hospital Italiano de Buenos Aires, Argentina, on how health registries can be used as a bridge between healthcare, research, education, innovation and development while addressing ethical challenges. The review includes a description of the experience of a registry implemented at our institution, which has provided healthcare for 170 years, and is committed to support, education and research. We focus on the potential of health registries to provide better value healthcare by reducing healthcare costs and improving health outcomes and quality of care, and to improve medical knowledge. However, we also acknowledge and discuss the challenges that accompany these achievements, such as that of ethical issues. Through effective collaboration and integration with other healthcare stakeholders, health registries can be a powerful tool to promote better health.Fil: Posadas Martinez, Maria Lourdes. Hospital Italiano; Argentina. Consejo Nacional de Investigaciones Científicas y Técnicas. Oficina de Coordinación Administrativa Houssay. Instituto de Medicina Traslacional e Ingeniería Biomédica - Hospital Italiano. Instituto de Medicina Traslacional e Ingeniería Biomédica.- Instituto Universitario Hospital Italiano de Buenos Aires. Instituto de Medicina Traslacional e Ingeniería Biomédica; ArgentinaFil: Vicens, Jimena. Hospital Italiano; ArgentinaFil: Dawidowski, Adriana Ruth. Hospital Italiano; ArgentinaFil: Martinez Von Scheidt, Marcela Alejandra. Hospital Italiano; ArgentinaFil: Pagotto, Vanina Laura. Hospital Italiano; ArgentinaFil: Blugerman, Gabriela Alejandra. Hospital Italiano; ArgentinaFil: Schpilberg, Monica Gabriela. Hospital Italiano; ArgentinaFil: Gadano, Adrián Carlos. Hospital Italiano; ArgentinaSAGE Publications2024-03info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionhttp://purl.org/coar/resource_type/c_6501info:ar-repo/semantics/articuloapplication/pdfapplication/pdfapplication/pdfapplication/pdfapplication/pdfhttp://hdl.handle.net/11336/268609Posadas Martinez, Maria Lourdes; Vicens, Jimena; Dawidowski, Adriana Ruth; Martinez Von Scheidt, Marcela Alejandra; Pagotto, Vanina Laura; et al.; The role of registries in improving health and bridging healthcare, research, education, innovation and development: A research department perspective; SAGE Publications; Journal Of International Medical Research; 52; 3; 3-2024; 1-130300-06051473-2300CONICET DigitalCONICETenginfo:eu-repo/semantics/altIdentifier/url/http://journals.sagepub.com/doi/10.1177/03000605241233140info:eu-repo/semantics/altIdentifier/doi/10.1177/03000605241233140info:eu-repo/semantics/openAccesshttps://creativecommons.org/licenses/by-nc/2.5/ar/reponame:CONICET Digital (CONICET)instname:Consejo Nacional de Investigaciones Científicas y Técnicas2025-12-23T13:26:36Zoai:ri.conicet.gov.ar:11336/268609instacron:CONICETInstitucionalhttp://ri.conicet.gov.ar/Organismo científico-tecnológicoNo correspondehttp://ri.conicet.gov.ar/oai/requestdasensio@conicet.gov.ar; lcarlino@conicet.gov.arArgentinaNo correspondeNo correspondeNo correspondeopendoar:34982025-12-23 13:26:36.851CONICET Digital (CONICET) - Consejo Nacional de Investigaciones Científicas y Técnicasfalse
dc.title.none.fl_str_mv The role of registries in improving health and bridging healthcare, research, education, innovation and development: A research department perspective
title The role of registries in improving health and bridging healthcare, research, education, innovation and development: A research department perspective
spellingShingle The role of registries in improving health and bridging healthcare, research, education, innovation and development: A research department perspective
Posadas Martinez, Maria Lourdes
Registros
Investigacion clinica
title_short The role of registries in improving health and bridging healthcare, research, education, innovation and development: A research department perspective
title_full The role of registries in improving health and bridging healthcare, research, education, innovation and development: A research department perspective
title_fullStr The role of registries in improving health and bridging healthcare, research, education, innovation and development: A research department perspective
title_full_unstemmed The role of registries in improving health and bridging healthcare, research, education, innovation and development: A research department perspective
title_sort The role of registries in improving health and bridging healthcare, research, education, innovation and development: A research department perspective
dc.creator.none.fl_str_mv Posadas Martinez, Maria Lourdes
Vicens, Jimena
Dawidowski, Adriana Ruth
Martinez Von Scheidt, Marcela Alejandra
Pagotto, Vanina Laura
Blugerman, Gabriela Alejandra
Schpilberg, Monica Gabriela
Gadano, Adrián Carlos
author Posadas Martinez, Maria Lourdes
author_facet Posadas Martinez, Maria Lourdes
Vicens, Jimena
Dawidowski, Adriana Ruth
Martinez Von Scheidt, Marcela Alejandra
Pagotto, Vanina Laura
Blugerman, Gabriela Alejandra
Schpilberg, Monica Gabriela
Gadano, Adrián Carlos
author_role author
author2 Vicens, Jimena
Dawidowski, Adriana Ruth
Martinez Von Scheidt, Marcela Alejandra
Pagotto, Vanina Laura
Blugerman, Gabriela Alejandra
Schpilberg, Monica Gabriela
Gadano, Adrián Carlos
author2_role author
author
author
author
author
author
author
dc.subject.none.fl_str_mv Registros
Investigacion clinica
topic Registros
Investigacion clinica
purl_subject.fl_str_mv https://purl.org/becyt/ford/3.2
https://purl.org/becyt/ford/3
dc.description.none.fl_txt_mv Health registries are organized systems that collect data on individuals with a particular disease, condition or exposure. The aim of this narrative review was to provide an integrated perspective from the Research Department at the Hospital Italiano de Buenos Aires, Argentina, on how health registries can be used as a bridge between healthcare, research, education, innovation and development while addressing ethical challenges. The review includes a description of the experience of a registry implemented at our institution, which has provided healthcare for 170 years, and is committed to support, education and research. We focus on the potential of health registries to provide better value healthcare by reducing healthcare costs and improving health outcomes and quality of care, and to improve medical knowledge. However, we also acknowledge and discuss the challenges that accompany these achievements, such as that of ethical issues. Through effective collaboration and integration with other healthcare stakeholders, health registries can be a powerful tool to promote better health.
Fil: Posadas Martinez, Maria Lourdes. Hospital Italiano; Argentina. Consejo Nacional de Investigaciones Científicas y Técnicas. Oficina de Coordinación Administrativa Houssay. Instituto de Medicina Traslacional e Ingeniería Biomédica - Hospital Italiano. Instituto de Medicina Traslacional e Ingeniería Biomédica.- Instituto Universitario Hospital Italiano de Buenos Aires. Instituto de Medicina Traslacional e Ingeniería Biomédica; Argentina
Fil: Vicens, Jimena. Hospital Italiano; Argentina
Fil: Dawidowski, Adriana Ruth. Hospital Italiano; Argentina
Fil: Martinez Von Scheidt, Marcela Alejandra. Hospital Italiano; Argentina
Fil: Pagotto, Vanina Laura. Hospital Italiano; Argentina
Fil: Blugerman, Gabriela Alejandra. Hospital Italiano; Argentina
Fil: Schpilberg, Monica Gabriela. Hospital Italiano; Argentina
Fil: Gadano, Adrián Carlos. Hospital Italiano; Argentina
description Health registries are organized systems that collect data on individuals with a particular disease, condition or exposure. The aim of this narrative review was to provide an integrated perspective from the Research Department at the Hospital Italiano de Buenos Aires, Argentina, on how health registries can be used as a bridge between healthcare, research, education, innovation and development while addressing ethical challenges. The review includes a description of the experience of a registry implemented at our institution, which has provided healthcare for 170 years, and is committed to support, education and research. We focus on the potential of health registries to provide better value healthcare by reducing healthcare costs and improving health outcomes and quality of care, and to improve medical knowledge. However, we also acknowledge and discuss the challenges that accompany these achievements, such as that of ethical issues. Through effective collaboration and integration with other healthcare stakeholders, health registries can be a powerful tool to promote better health.
publishDate 2024
dc.date.none.fl_str_mv 2024-03
dc.type.none.fl_str_mv info:eu-repo/semantics/article
info:eu-repo/semantics/publishedVersion
http://purl.org/coar/resource_type/c_6501
info:ar-repo/semantics/articulo
format article
status_str publishedVersion
dc.identifier.none.fl_str_mv http://hdl.handle.net/11336/268609
Posadas Martinez, Maria Lourdes; Vicens, Jimena; Dawidowski, Adriana Ruth; Martinez Von Scheidt, Marcela Alejandra; Pagotto, Vanina Laura; et al.; The role of registries in improving health and bridging healthcare, research, education, innovation and development: A research department perspective; SAGE Publications; Journal Of International Medical Research; 52; 3; 3-2024; 1-13
0300-0605
1473-2300
CONICET Digital
CONICET
url http://hdl.handle.net/11336/268609
identifier_str_mv Posadas Martinez, Maria Lourdes; Vicens, Jimena; Dawidowski, Adriana Ruth; Martinez Von Scheidt, Marcela Alejandra; Pagotto, Vanina Laura; et al.; The role of registries in improving health and bridging healthcare, research, education, innovation and development: A research department perspective; SAGE Publications; Journal Of International Medical Research; 52; 3; 3-2024; 1-13
0300-0605
1473-2300
CONICET Digital
CONICET
dc.language.none.fl_str_mv eng
language eng
dc.relation.none.fl_str_mv info:eu-repo/semantics/altIdentifier/url/http://journals.sagepub.com/doi/10.1177/03000605241233140
info:eu-repo/semantics/altIdentifier/doi/10.1177/03000605241233140
dc.rights.none.fl_str_mv info:eu-repo/semantics/openAccess
https://creativecommons.org/licenses/by-nc/2.5/ar/
eu_rights_str_mv openAccess
rights_invalid_str_mv https://creativecommons.org/licenses/by-nc/2.5/ar/
dc.format.none.fl_str_mv application/pdf
application/pdf
application/pdf
application/pdf
application/pdf
dc.publisher.none.fl_str_mv SAGE Publications
publisher.none.fl_str_mv SAGE Publications
dc.source.none.fl_str_mv reponame:CONICET Digital (CONICET)
instname:Consejo Nacional de Investigaciones Científicas y Técnicas
reponame_str CONICET Digital (CONICET)
collection CONICET Digital (CONICET)
instname_str Consejo Nacional de Investigaciones Científicas y Técnicas
repository.name.fl_str_mv CONICET Digital (CONICET) - Consejo Nacional de Investigaciones Científicas y Técnicas
repository.mail.fl_str_mv dasensio@conicet.gov.ar; lcarlino@conicet.gov.ar
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score 12.952241

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