Global Application of the Assessment of Communication Skills of Paediatric Endocrinology Fellows in the Management of Differences in Sex Development Using the ESPE E-Learning.Org P...

• Autores: Kranenburg, Laura J.C.; Reerds, Sam T.H.; Cools, Martine; Alderson, Julie; Muscarella, Miriam; Magrite, Ellie; Kuiper, Martijn; Abdelgaffar, Shereen; Balsamo, Antonio; Brauner, Raja; Chanoine, Jean Pierre; Deeb, Asma; Fechner, Patricia; German, Alina; Holterhus, Paul Martin; Juul, Anders; Mendonca, Berenice B.; Neville, Kristen; Nordenstrom, Anna; Oostdijk, Wilma; Rey, Rodolfo Alberto; Rutter, Meilan M.; Shah, Nalini; Luo, Xiaoping; Grijpink, Kalinka; Drop, Stenvert L.S.
• Año de publicación: 2017
• Idioma: inglés
• Tipo de recurso: artículo
• Materia: COMPETENCY ASSESSMENT; CONGENITAL ADRENAL HYPERPLASIA; DISORDERS OF SEX DEVELOPMENT; E-LEARNING; ONLINE LEARNING; SUBSPECIALTY TRAINING
• Institución: Consejo Nacional de Investigaciones Científicas y Técnicas

Background: Information sharing in chronic conditions such as disorders of/differences in sex development (DSD) is essential for a comprehensive understanding by parents and patients. We report on a qualitative analysis of communication skills of fellows undergoing training in paediatric endocrinology. Guidelines are created for the assessment of communication between health professionals and individuals with DSD and their parents. Methods: Paediatric endocrinology fellows worldwide were invited to study two interactive online cases (www.espe-elearning.org) and to describe a best practice communication with (i) the parents of a newborn with congenital adrenal hyperplasia and (ii) a young woman with 46,XY gonadal dysgenesis. The replies were analysed regarding completeness, quality, and evidence of empathy. Guidelines for structured assessment of responses were developed by 22 senior paediatric endocrinologists worldwide who assessed 10 selected replies. Consensus of assessors was established and the evaluation guidelines were created. Results: The replies of the fellows showed considerable variation in completeness, quality of wording, and evidence of empathy. Many relevant aspects of competent clinical communication were not mentioned; 15% (case 1) and 17% (case 2) of the replies were considered poor/insufficient. There was also marked variation between 17 senior experts in the application of the guidelines to assess communication skills. The guidelines were then adjusted to a 3-level assessment with empathy as a separate key item to better reflect the qualitative differences in the replies and for simplicity of use by evaluators. Conclusions: E-learning can play an important role in assessing communication skills. A practical tool is provided to assess how information is shared with patients with DSD and their families and should be refined by all stakeholders, notably interdisciplinary health professionals and patient representatives.
Fil: Kranenburg, Laura J.C.. Erasmus University Medical Center; Países Bajos
Fil: Reerds, Sam T.H.. Erasmus University Medical Center; Países Bajos
Fil: Cools, Martine. University of Ghent; Bélgica
Fil: Alderson, Julie. NHS Foundation Trust. University Hospitals Bristol; Reino Unido
Fil: Muscarella, Miriam. University of California; Estados Unidos
Fil: Magrite, Ellie. Ffounder And Trustee;
Fil: Kuiper, Martijn. Erasmus University Medical Center;
Fil: Abdelgaffar, Shereen. Cairo University; Egipto
Fil: Balsamo, Antonio. Universidad de Bologna; Italia
Fil: Brauner, Raja. Universite de Paris V; Francia
Fil: Chanoine, Jean Pierre. British Columbia Children’s Hospital. Department of Paediatrics; Canadá
Fil: Deeb, Asma. Mafraq Hospital; Emiratos Arabes Unidos
Fil: Fechner, Patricia. University of Washington; Estados Unidos
Fil: German, Alina. Technion - Israel Institute of Technology; Israel
Fil: Holterhus, Paul Martin. Universitätsklinikum Schleswig-Holstein; Alemania. Christian-Albrechts-Universität zu Kiel; Alemania
Fil: Juul, Anders. Universidad de Copenhagen; Dinamarca
Fil: Mendonca, Berenice B.. Universidade de Sao Paulo; Brasil
Fil: Neville, Kristen. Sydney Children's Hospital; Australia
Fil: Nordenstrom, Anna. Karolinka Institutet; Suiza
Fil: Oostdijk, Wilma. Leiden University; Países Bajos
Fil: Rey, Rodolfo Alberto. Consejo Nacional de Investigaciones Científicas y Técnicas. Oficina de Coordinación Administrativa Parque Centenario. Centro de Investigaciones Endocrinológicas "Dr. César Bergada". Gobierno de la Ciudad de Buenos Aires. Centro de Investigaciones Endocrinológicas "Dr. César Bergada". Fundación de Endocrinología Infantil. Centro de Investigaciones Endocrinológicas "Dr. César Bergada"; Argentina. Gobierno de la Ciudad de Buenos Aires. Hospital General de Niños "Ricardo Gutiérrez"; Argentina
Fil: Rutter, Meilan M.. University of Cincinnati; Estados Unidos
Fil: Shah, Nalini. Seth GS Medical College & KEM Hospital; India
Fil: Luo, Xiaoping. Tongji Hospital; China
Fil: Grijpink, Kalinka. Delft University of Technology; Países Bajos
Fil: Drop, Stenvert L.S.. Erasmus University Medical Center; Países Bajos