Provisional best practices guidelines for the evaluation of bulbar dysfunction in amyotrophic lateral sclerosis

Autores
Pattee, Gary L.; Plowman, Emily K.; Garand, Kendrea L.; Costello, John; Brooks, Benjamin Rix; Berry, James D.; Smith, Richard A.; Atassi, Nazem; Chapin, Jennifer L.; Yunusova, Yana; McIlduff, Courtney E.; Young, Eufrosina; Macklin, Eric A.; Locatelli, Eduardo R.; Silani, Vincenzo; Heitzman, Daragh; Wymer, James; Goutman, Stephen A.; Gelinas, Deborah F.; Perry, Bridget; Nalipinski, Paige; Stipancic, Kaila; O'Brien, Meghan; Sullivan, Stacey L.; Pioro, Erik P.; Gargiulo Monachelli, Gisella Mariana; Green, Jordan R.
Año de publicación
2019
Idioma
inglés
Tipo de recurso
artículo
Estado
versión publicada
Descripción
Introduction: Universally established comprehensive clinical bulbar scales objectively assessing disease progression in amyotrophic lateral sclerosis (ALS) are currently lacking. The goal of this working group project is to design a best practice set of provisional bulbar ALS guidelines, available for immediate implementation within all ALS clinics. Methods: ALS specialists across multiple related disciplines participated in a series of clinical bulbar symposia, intending to identify and summarize the currently accepted best practices for the assessment and management of bulbar dysfunction in ALS Results: Summary group recommendations for individual speech, Augmentative and Alternative Communication (AAC), and swallowing sections were achieved, focusing on the optimal proposed level of care within each domain. Discussion: We have identified specific clinical recommendations for each of the 3 domains of bulbar functioning, available for incorporation within all ALS clinics. Future directions will be to establish a formal set of bulbar guidelines through a methodological and evidence-based approach. Muscle Nerve 59:531–531, 2019.
Fil: Pattee, Gary L.. No especifíca;
Fil: Plowman, Emily K.. University of Florida; Estados Unidos
Fil: Garand, Kendrea L.. University of Alabama at Birmingahm; Estados Unidos
Fil: Costello, John. No especifíca;
Fil: Brooks, Benjamin Rix. No especifíca;
Fil: Berry, James D.. No especifíca;
Fil: Smith, Richard A.. No especifíca;
Fil: Atassi, Nazem. No especifíca;
Fil: Chapin, Jennifer L.. University of Florida; Estados Unidos
Fil: Yunusova, Yana. University of Toronto; Canadá
Fil: McIlduff, Courtney E.. No especifíca;
Fil: Young, Eufrosina. No especifíca;
Fil: Macklin, Eric A.. No especifíca;
Fil: Locatelli, Eduardo R.. No especifíca;
Fil: Silani, Vincenzo. Università degli Studi di Milano; Italia
Fil: Heitzman, Daragh. No especifíca;
Fil: Wymer, James. University of Florida; Estados Unidos
Fil: Goutman, Stephen A.. No especifíca;
Fil: Gelinas, Deborah F.. No especifíca;
Fil: Perry, Bridget. No especifíca;
Fil: Nalipinski, Paige. No especifíca;
Fil: Stipancic, Kaila. Children's Hospital Boston; Estados Unidos
Fil: O'Brien, Meghan. Children's Hospital Boston; Estados Unidos
Fil: Sullivan, Stacey L.. No especifíca;
Fil: Pioro, Erik P.. No especifíca;
Fil: Gargiulo Monachelli, Gisella Mariana. Consejo Nacional de Investigaciones Científicas y Técnicas; Argentina. Consejo Nacional de Investigaciones Científicas y Técnicas. Oficina de Coordinación Administrativa Parque Centenario. CEMIC-CONICET. Centro de Educaciones Médicas e Investigaciones Clínicas "Norberto Quirno". CEMIC-CONICET; Argentina
Fil: Green, Jordan R.. No especifíca;
Materia
AAC
BULBAR
GUIDELINES
SPEECH
SWALLOWING
Nivel de accesibilidad
acceso abierto
Condiciones de uso
https://creativecommons.org/licenses/by-nc-sa/2.5/ar/
Repositorio
CONICET Digital (CONICET)
Institución
Consejo Nacional de Investigaciones Científicas y Técnicas
OAI Identificador
oai:ri.conicet.gov.ar:11336/147943
Acceder
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oai_identifier_str oai:ri.conicet.gov.ar:11336/147943
network_acronym_str CONICETDig
repository_id_str 3498
network_name_str CONICET Digital (CONICET)
spelling Provisional best practices guidelines for the evaluation of bulbar dysfunction in amyotrophic lateral sclerosisPattee, Gary L.Plowman, Emily K.Garand, Kendrea L.Costello, JohnBrooks, Benjamin RixBerry, James D.Smith, Richard A.Atassi, NazemChapin, Jennifer L.Yunusova, YanaMcIlduff, Courtney E.Young, EufrosinaMacklin, Eric A.Locatelli, Eduardo R.Silani, VincenzoHeitzman, DaraghWymer, JamesGoutman, Stephen A.Gelinas, Deborah F.Perry, BridgetNalipinski, PaigeStipancic, KailaO'Brien, MeghanSullivan, Stacey L.Pioro, Erik P.Gargiulo Monachelli, Gisella MarianaGreen, Jordan R.AACBULBARGUIDELINESSPEECHSWALLOWINGhttps://purl.org/becyt/ford/3.2https://purl.org/becyt/ford/3Introduction: Universally established comprehensive clinical bulbar scales objectively assessing disease progression in amyotrophic lateral sclerosis (ALS) are currently lacking. The goal of this working group project is to design a best practice set of provisional bulbar ALS guidelines, available for immediate implementation within all ALS clinics. Methods: ALS specialists across multiple related disciplines participated in a series of clinical bulbar symposia, intending to identify and summarize the currently accepted best practices for the assessment and management of bulbar dysfunction in ALS Results: Summary group recommendations for individual speech, Augmentative and Alternative Communication (AAC), and swallowing sections were achieved, focusing on the optimal proposed level of care within each domain. Discussion: We have identified specific clinical recommendations for each of the 3 domains of bulbar functioning, available for incorporation within all ALS clinics. Future directions will be to establish a formal set of bulbar guidelines through a methodological and evidence-based approach. Muscle Nerve 59:531–531, 2019.Fil: Pattee, Gary L.. No especifíca;Fil: Plowman, Emily K.. University of Florida; Estados UnidosFil: Garand, Kendrea L.. University of Alabama at Birmingahm; Estados UnidosFil: Costello, John. No especifíca;Fil: Brooks, Benjamin Rix. No especifíca;Fil: Berry, James D.. No especifíca;Fil: Smith, Richard A.. No especifíca;Fil: Atassi, Nazem. No especifíca;Fil: Chapin, Jennifer L.. University of Florida; Estados UnidosFil: Yunusova, Yana. University of Toronto; CanadáFil: McIlduff, Courtney E.. No especifíca;Fil: Young, Eufrosina. No especifíca;Fil: Macklin, Eric A.. No especifíca;Fil: Locatelli, Eduardo R.. No especifíca;Fil: Silani, Vincenzo. Università degli Studi di Milano; ItaliaFil: Heitzman, Daragh. No especifíca;Fil: Wymer, James. University of Florida; Estados UnidosFil: Goutman, Stephen A.. No especifíca;Fil: Gelinas, Deborah F.. No especifíca;Fil: Perry, Bridget. No especifíca;Fil: Nalipinski, Paige. No especifíca;Fil: Stipancic, Kaila. Children's Hospital Boston; Estados UnidosFil: O'Brien, Meghan. Children's Hospital Boston; Estados UnidosFil: Sullivan, Stacey L.. No especifíca;Fil: Pioro, Erik P.. No especifíca;Fil: Gargiulo Monachelli, Gisella Mariana. Consejo Nacional de Investigaciones Científicas y Técnicas; Argentina. Consejo Nacional de Investigaciones Científicas y Técnicas. Oficina de Coordinación Administrativa Parque Centenario. CEMIC-CONICET. Centro de Educaciones Médicas e Investigaciones Clínicas "Norberto Quirno". CEMIC-CONICET; ArgentinaFil: Green, Jordan R.. No especifíca;John Wiley & Sons Inc2019-01info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionhttp://purl.org/coar/resource_type/c_6501info:ar-repo/semantics/articuloapplication/pdfapplication/pdfhttp://hdl.handle.net/11336/147943Pattee, Gary L.; Plowman, Emily K.; Garand, Kendrea L.; Costello, John; Brooks, Benjamin Rix; et al.; Provisional best practices guidelines for the evaluation of bulbar dysfunction in amyotrophic lateral sclerosis; John Wiley & Sons Inc; Muscle & Nerve; 59; 5; 1-2019; 531-5360148-639XCONICET DigitalCONICETenginfo:eu-repo/semantics/altIdentifier/url/https://onlinelibrary.wiley.com/doi/abs/10.1002/mus.26408info:eu-repo/semantics/altIdentifier/doi/10.1002/mus.26408info:eu-repo/semantics/openAccesshttps://creativecommons.org/licenses/by-nc-sa/2.5/ar/reponame:CONICET Digital (CONICET)instname:Consejo Nacional de Investigaciones Científicas y Técnicas2025-10-22T11:52:41Zoai:ri.conicet.gov.ar:11336/147943instacron:CONICETInstitucionalhttp://ri.conicet.gov.ar/Organismo científico-tecnológicoNo correspondehttp://ri.conicet.gov.ar/oai/requestdasensio@conicet.gov.ar; lcarlino@conicet.gov.arArgentinaNo correspondeNo correspondeNo correspondeopendoar:34982025-10-22 11:52:41.312CONICET Digital (CONICET) - Consejo Nacional de Investigaciones Científicas y Técnicasfalse
dc.title.none.fl_str_mv Provisional best practices guidelines for the evaluation of bulbar dysfunction in amyotrophic lateral sclerosis
title Provisional best practices guidelines for the evaluation of bulbar dysfunction in amyotrophic lateral sclerosis
spellingShingle Provisional best practices guidelines for the evaluation of bulbar dysfunction in amyotrophic lateral sclerosis
Pattee, Gary L.
AAC
BULBAR
GUIDELINES
SPEECH
SWALLOWING
title_short Provisional best practices guidelines for the evaluation of bulbar dysfunction in amyotrophic lateral sclerosis
title_full Provisional best practices guidelines for the evaluation of bulbar dysfunction in amyotrophic lateral sclerosis
title_fullStr Provisional best practices guidelines for the evaluation of bulbar dysfunction in amyotrophic lateral sclerosis
title_full_unstemmed Provisional best practices guidelines for the evaluation of bulbar dysfunction in amyotrophic lateral sclerosis
title_sort Provisional best practices guidelines for the evaluation of bulbar dysfunction in amyotrophic lateral sclerosis
dc.creator.none.fl_str_mv Pattee, Gary L.
Plowman, Emily K.
Garand, Kendrea L.
Costello, John
Brooks, Benjamin Rix
Berry, James D.
Smith, Richard A.
Atassi, Nazem
Chapin, Jennifer L.
Yunusova, Yana
McIlduff, Courtney E.
Young, Eufrosina
Macklin, Eric A.
Locatelli, Eduardo R.
Silani, Vincenzo
Heitzman, Daragh
Wymer, James
Goutman, Stephen A.
Gelinas, Deborah F.
Perry, Bridget
Nalipinski, Paige
Stipancic, Kaila
O'Brien, Meghan
Sullivan, Stacey L.
Pioro, Erik P.
Gargiulo Monachelli, Gisella Mariana
Green, Jordan R.
author Pattee, Gary L.
author_facet Pattee, Gary L.
Plowman, Emily K.
Garand, Kendrea L.
Costello, John
Brooks, Benjamin Rix
Berry, James D.
Smith, Richard A.
Atassi, Nazem
Chapin, Jennifer L.
Yunusova, Yana
McIlduff, Courtney E.
Young, Eufrosina
Macklin, Eric A.
Locatelli, Eduardo R.
Silani, Vincenzo
Heitzman, Daragh
Wymer, James
Goutman, Stephen A.
Gelinas, Deborah F.
Perry, Bridget
Nalipinski, Paige
Stipancic, Kaila
O'Brien, Meghan
Sullivan, Stacey L.
Pioro, Erik P.
Gargiulo Monachelli, Gisella Mariana
Green, Jordan R.
author_role author
author2 Plowman, Emily K.
Garand, Kendrea L.
Costello, John
Brooks, Benjamin Rix
Berry, James D.
Smith, Richard A.
Atassi, Nazem
Chapin, Jennifer L.
Yunusova, Yana
McIlduff, Courtney E.
Young, Eufrosina
Macklin, Eric A.
Locatelli, Eduardo R.
Silani, Vincenzo
Heitzman, Daragh
Wymer, James
Goutman, Stephen A.
Gelinas, Deborah F.
Perry, Bridget
Nalipinski, Paige
Stipancic, Kaila
O'Brien, Meghan
Sullivan, Stacey L.
Pioro, Erik P.
Gargiulo Monachelli, Gisella Mariana
Green, Jordan R.
author2_role author
author
author
author
author
author
author
author
author
author
author
author
author
author
author
author
author
author
author
author
author
author
author
author
author
author
dc.subject.none.fl_str_mv AAC
BULBAR
GUIDELINES
SPEECH
SWALLOWING
topic AAC
BULBAR
GUIDELINES
SPEECH
SWALLOWING
purl_subject.fl_str_mv https://purl.org/becyt/ford/3.2
https://purl.org/becyt/ford/3
dc.description.none.fl_txt_mv Introduction: Universally established comprehensive clinical bulbar scales objectively assessing disease progression in amyotrophic lateral sclerosis (ALS) are currently lacking. The goal of this working group project is to design a best practice set of provisional bulbar ALS guidelines, available for immediate implementation within all ALS clinics. Methods: ALS specialists across multiple related disciplines participated in a series of clinical bulbar symposia, intending to identify and summarize the currently accepted best practices for the assessment and management of bulbar dysfunction in ALS Results: Summary group recommendations for individual speech, Augmentative and Alternative Communication (AAC), and swallowing sections were achieved, focusing on the optimal proposed level of care within each domain. Discussion: We have identified specific clinical recommendations for each of the 3 domains of bulbar functioning, available for incorporation within all ALS clinics. Future directions will be to establish a formal set of bulbar guidelines through a methodological and evidence-based approach. Muscle Nerve 59:531–531, 2019.
Fil: Pattee, Gary L.. No especifíca;
Fil: Plowman, Emily K.. University of Florida; Estados Unidos
Fil: Garand, Kendrea L.. University of Alabama at Birmingahm; Estados Unidos
Fil: Costello, John. No especifíca;
Fil: Brooks, Benjamin Rix. No especifíca;
Fil: Berry, James D.. No especifíca;
Fil: Smith, Richard A.. No especifíca;
Fil: Atassi, Nazem. No especifíca;
Fil: Chapin, Jennifer L.. University of Florida; Estados Unidos
Fil: Yunusova, Yana. University of Toronto; Canadá
Fil: McIlduff, Courtney E.. No especifíca;
Fil: Young, Eufrosina. No especifíca;
Fil: Macklin, Eric A.. No especifíca;
Fil: Locatelli, Eduardo R.. No especifíca;
Fil: Silani, Vincenzo. Università degli Studi di Milano; Italia
Fil: Heitzman, Daragh. No especifíca;
Fil: Wymer, James. University of Florida; Estados Unidos
Fil: Goutman, Stephen A.. No especifíca;
Fil: Gelinas, Deborah F.. No especifíca;
Fil: Perry, Bridget. No especifíca;
Fil: Nalipinski, Paige. No especifíca;
Fil: Stipancic, Kaila. Children's Hospital Boston; Estados Unidos
Fil: O'Brien, Meghan. Children's Hospital Boston; Estados Unidos
Fil: Sullivan, Stacey L.. No especifíca;
Fil: Pioro, Erik P.. No especifíca;
Fil: Gargiulo Monachelli, Gisella Mariana. Consejo Nacional de Investigaciones Científicas y Técnicas; Argentina. Consejo Nacional de Investigaciones Científicas y Técnicas. Oficina de Coordinación Administrativa Parque Centenario. CEMIC-CONICET. Centro de Educaciones Médicas e Investigaciones Clínicas "Norberto Quirno". CEMIC-CONICET; Argentina
Fil: Green, Jordan R.. No especifíca;
description Introduction: Universally established comprehensive clinical bulbar scales objectively assessing disease progression in amyotrophic lateral sclerosis (ALS) are currently lacking. The goal of this working group project is to design a best practice set of provisional bulbar ALS guidelines, available for immediate implementation within all ALS clinics. Methods: ALS specialists across multiple related disciplines participated in a series of clinical bulbar symposia, intending to identify and summarize the currently accepted best practices for the assessment and management of bulbar dysfunction in ALS Results: Summary group recommendations for individual speech, Augmentative and Alternative Communication (AAC), and swallowing sections were achieved, focusing on the optimal proposed level of care within each domain. Discussion: We have identified specific clinical recommendations for each of the 3 domains of bulbar functioning, available for incorporation within all ALS clinics. Future directions will be to establish a formal set of bulbar guidelines through a methodological and evidence-based approach. Muscle Nerve 59:531–531, 2019.
publishDate 2019
dc.date.none.fl_str_mv 2019-01
dc.type.none.fl_str_mv info:eu-repo/semantics/article
info:eu-repo/semantics/publishedVersion
http://purl.org/coar/resource_type/c_6501
info:ar-repo/semantics/articulo
format article
status_str publishedVersion
dc.identifier.none.fl_str_mv http://hdl.handle.net/11336/147943
Pattee, Gary L.; Plowman, Emily K.; Garand, Kendrea L.; Costello, John; Brooks, Benjamin Rix; et al.; Provisional best practices guidelines for the evaluation of bulbar dysfunction in amyotrophic lateral sclerosis; John Wiley & Sons Inc; Muscle & Nerve; 59; 5; 1-2019; 531-536
0148-639X
CONICET Digital
CONICET
url http://hdl.handle.net/11336/147943
identifier_str_mv Pattee, Gary L.; Plowman, Emily K.; Garand, Kendrea L.; Costello, John; Brooks, Benjamin Rix; et al.; Provisional best practices guidelines for the evaluation of bulbar dysfunction in amyotrophic lateral sclerosis; John Wiley & Sons Inc; Muscle & Nerve; 59; 5; 1-2019; 531-536
0148-639X
CONICET Digital
CONICET
dc.language.none.fl_str_mv eng
language eng
dc.relation.none.fl_str_mv info:eu-repo/semantics/altIdentifier/url/https://onlinelibrary.wiley.com/doi/abs/10.1002/mus.26408
info:eu-repo/semantics/altIdentifier/doi/10.1002/mus.26408
dc.rights.none.fl_str_mv info:eu-repo/semantics/openAccess
https://creativecommons.org/licenses/by-nc-sa/2.5/ar/
eu_rights_str_mv openAccess
rights_invalid_str_mv https://creativecommons.org/licenses/by-nc-sa/2.5/ar/
dc.format.none.fl_str_mv application/pdf
application/pdf
dc.publisher.none.fl_str_mv John Wiley & Sons Inc
publisher.none.fl_str_mv John Wiley & Sons Inc
dc.source.none.fl_str_mv reponame:CONICET Digital (CONICET)
instname:Consejo Nacional de Investigaciones Científicas y Técnicas
reponame_str CONICET Digital (CONICET)
collection CONICET Digital (CONICET)
instname_str Consejo Nacional de Investigaciones Científicas y Técnicas
repository.name.fl_str_mv CONICET Digital (CONICET) - Consejo Nacional de Investigaciones Científicas y Técnicas
repository.mail.fl_str_mv dasensio@conicet.gov.ar; lcarlino@conicet.gov.ar
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score 12.982451

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