Information Assessment for the Implementation of Electronic Informed Consent for Genetic Studies in a High Complexity Hospital

Autores
Descalzo, Juan Marcos; Frutos, Eliana Ludmila; Rebrij, Romina Astrid; Luna, Daniel Roberto; Benítez, Sonia
Año de publicación
2022
Idioma
inglés
Tipo de recurso
artículo
Estado
versión publicada
Descripción
The objective of this study was to investigate and analyze the most relevant aspects that influence the development and implementation of electronic informed consent for genetic studies. Interviews were conducted with experts in the area within our institution, the different informed consents available and the number of genetic studies requested in the last 5 years were analyzed. Professionals acknowledged the ethical dilemmas related to the genetic studies and the importance of having an electronic informed consent that not only provides the patient with the information necessary to understand the implications of the study, but also be flexible enough to adapt to the various genetic studies today. The development of informed consent is a challenge for health IT professionals, due to the complexity of the information it contains and the ethical implications it represents.
Fil: Descalzo, Juan Marcos. Hospital Italiano. Departamento de Informática En Salud.; Argentina
Fil: Frutos, Eliana Ludmila. Hospital Italiano. Departamento de Informática En Salud.; Argentina
Fil: Rebrij, Romina Astrid. Hospital Italiano. Departamento de Informática En Salud.; Argentina
Fil: Luna, Daniel Roberto. Hospital Italiano. Departamento de Informática En Salud.; Argentina. Consejo Nacional de Investigaciones Científicas y Técnicas. Oficina de Coordinación Administrativa Houssay. Instituto de Medicina Traslacional e Ingeniería Biomédica - Hospital Italiano. Instituto de Medicina Traslacional e Ingeniería Biomédica.- Instituto Universitario Hospital Italiano de Buenos Aires. Instituto de Medicina Traslacional e Ingeniería Biomédica; Argentina
Fil: Benítez, Sonia. Hospital Italiano. Departamento de Informática En Salud.; Argentina
Materia
ELECTRONIC HEALTH RECORD
GENETIC TEST
INFORMED CONSENT
Nivel de accesibilidad
acceso abierto
Condiciones de uso
https://creativecommons.org/licenses/by-nc/2.5/ar/
Repositorio
CONICET Digital (CONICET)
Institución
Consejo Nacional de Investigaciones Científicas y Técnicas
OAI Identificador
oai:ri.conicet.gov.ar:11336/210789
Acceder
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network_acronym_str CONICETDig
repository_id_str 3498
network_name_str CONICET Digital (CONICET)
spelling Information Assessment for the Implementation of Electronic Informed Consent for Genetic Studies in a High Complexity HospitalDescalzo, Juan MarcosFrutos, Eliana LudmilaRebrij, Romina AstridLuna, Daniel RobertoBenítez, SoniaELECTRONIC HEALTH RECORDGENETIC TESTINFORMED CONSENThttps://purl.org/becyt/ford/3.3https://purl.org/becyt/ford/3The objective of this study was to investigate and analyze the most relevant aspects that influence the development and implementation of electronic informed consent for genetic studies. Interviews were conducted with experts in the area within our institution, the different informed consents available and the number of genetic studies requested in the last 5 years were analyzed. Professionals acknowledged the ethical dilemmas related to the genetic studies and the importance of having an electronic informed consent that not only provides the patient with the information necessary to understand the implications of the study, but also be flexible enough to adapt to the various genetic studies today. The development of informed consent is a challenge for health IT professionals, due to the complexity of the information it contains and the ethical implications it represents.Fil: Descalzo, Juan Marcos. Hospital Italiano. Departamento de Informática En Salud.; ArgentinaFil: Frutos, Eliana Ludmila. Hospital Italiano. Departamento de Informática En Salud.; ArgentinaFil: Rebrij, Romina Astrid. Hospital Italiano. Departamento de Informática En Salud.; ArgentinaFil: Luna, Daniel Roberto. Hospital Italiano. Departamento de Informática En Salud.; Argentina. Consejo Nacional de Investigaciones Científicas y Técnicas. Oficina de Coordinación Administrativa Houssay. Instituto de Medicina Traslacional e Ingeniería Biomédica - Hospital Italiano. Instituto de Medicina Traslacional e Ingeniería Biomédica.- Instituto Universitario Hospital Italiano de Buenos Aires. Instituto de Medicina Traslacional e Ingeniería Biomédica; ArgentinaFil: Benítez, Sonia. Hospital Italiano. Departamento de Informática En Salud.; ArgentinaIOS Press2022-06info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionhttp://purl.org/coar/resource_type/c_6501info:ar-repo/semantics/articuloapplication/pdfapplication/pdfhttp://hdl.handle.net/11336/210789Descalzo, Juan Marcos; Frutos, Eliana Ludmila; Rebrij, Romina Astrid; Luna, Daniel Roberto; Benítez, Sonia; Information Assessment for the Implementation of Electronic Informed Consent for Genetic Studies in a High Complexity Hospital; IOS Press; Studies in Health Technology and Informatics; 290; 6-2022; 227-2290926-96301879-8365CONICET DigitalCONICETenginfo:eu-repo/semantics/altIdentifier/doi/10.3233/SHTI220067info:eu-repo/semantics/openAccesshttps://creativecommons.org/licenses/by-nc/2.5/ar/reponame:CONICET Digital (CONICET)instname:Consejo Nacional de Investigaciones Científicas y Técnicas2025-09-29T10:12:13Zoai:ri.conicet.gov.ar:11336/210789instacron:CONICETInstitucionalhttp://ri.conicet.gov.ar/Organismo científico-tecnológicoNo correspondehttp://ri.conicet.gov.ar/oai/requestdasensio@conicet.gov.ar; lcarlino@conicet.gov.arArgentinaNo correspondeNo correspondeNo correspondeopendoar:34982025-09-29 10:12:13.353CONICET Digital (CONICET) - Consejo Nacional de Investigaciones Científicas y Técnicasfalse
dc.title.none.fl_str_mv Information Assessment for the Implementation of Electronic Informed Consent for Genetic Studies in a High Complexity Hospital
title Information Assessment for the Implementation of Electronic Informed Consent for Genetic Studies in a High Complexity Hospital
spellingShingle Information Assessment for the Implementation of Electronic Informed Consent for Genetic Studies in a High Complexity Hospital
Descalzo, Juan Marcos
ELECTRONIC HEALTH RECORD
GENETIC TEST
INFORMED CONSENT
title_short Information Assessment for the Implementation of Electronic Informed Consent for Genetic Studies in a High Complexity Hospital
title_full Information Assessment for the Implementation of Electronic Informed Consent for Genetic Studies in a High Complexity Hospital
title_fullStr Information Assessment for the Implementation of Electronic Informed Consent for Genetic Studies in a High Complexity Hospital
title_full_unstemmed Information Assessment for the Implementation of Electronic Informed Consent for Genetic Studies in a High Complexity Hospital
title_sort Information Assessment for the Implementation of Electronic Informed Consent for Genetic Studies in a High Complexity Hospital
dc.creator.none.fl_str_mv Descalzo, Juan Marcos
Frutos, Eliana Ludmila
Rebrij, Romina Astrid
Luna, Daniel Roberto
Benítez, Sonia
author Descalzo, Juan Marcos
author_facet Descalzo, Juan Marcos
Frutos, Eliana Ludmila
Rebrij, Romina Astrid
Luna, Daniel Roberto
Benítez, Sonia
author_role author
author2 Frutos, Eliana Ludmila
Rebrij, Romina Astrid
Luna, Daniel Roberto
Benítez, Sonia
author2_role author
author
author
author
dc.subject.none.fl_str_mv ELECTRONIC HEALTH RECORD
GENETIC TEST
INFORMED CONSENT
topic ELECTRONIC HEALTH RECORD
GENETIC TEST
INFORMED CONSENT
purl_subject.fl_str_mv https://purl.org/becyt/ford/3.3
https://purl.org/becyt/ford/3
dc.description.none.fl_txt_mv The objective of this study was to investigate and analyze the most relevant aspects that influence the development and implementation of electronic informed consent for genetic studies. Interviews were conducted with experts in the area within our institution, the different informed consents available and the number of genetic studies requested in the last 5 years were analyzed. Professionals acknowledged the ethical dilemmas related to the genetic studies and the importance of having an electronic informed consent that not only provides the patient with the information necessary to understand the implications of the study, but also be flexible enough to adapt to the various genetic studies today. The development of informed consent is a challenge for health IT professionals, due to the complexity of the information it contains and the ethical implications it represents.
Fil: Descalzo, Juan Marcos. Hospital Italiano. Departamento de Informática En Salud.; Argentina
Fil: Frutos, Eliana Ludmila. Hospital Italiano. Departamento de Informática En Salud.; Argentina
Fil: Rebrij, Romina Astrid. Hospital Italiano. Departamento de Informática En Salud.; Argentina
Fil: Luna, Daniel Roberto. Hospital Italiano. Departamento de Informática En Salud.; Argentina. Consejo Nacional de Investigaciones Científicas y Técnicas. Oficina de Coordinación Administrativa Houssay. Instituto de Medicina Traslacional e Ingeniería Biomédica - Hospital Italiano. Instituto de Medicina Traslacional e Ingeniería Biomédica.- Instituto Universitario Hospital Italiano de Buenos Aires. Instituto de Medicina Traslacional e Ingeniería Biomédica; Argentina
Fil: Benítez, Sonia. Hospital Italiano. Departamento de Informática En Salud.; Argentina
description The objective of this study was to investigate and analyze the most relevant aspects that influence the development and implementation of electronic informed consent for genetic studies. Interviews were conducted with experts in the area within our institution, the different informed consents available and the number of genetic studies requested in the last 5 years were analyzed. Professionals acknowledged the ethical dilemmas related to the genetic studies and the importance of having an electronic informed consent that not only provides the patient with the information necessary to understand the implications of the study, but also be flexible enough to adapt to the various genetic studies today. The development of informed consent is a challenge for health IT professionals, due to the complexity of the information it contains and the ethical implications it represents.
publishDate 2022
dc.date.none.fl_str_mv 2022-06
dc.type.none.fl_str_mv info:eu-repo/semantics/article
info:eu-repo/semantics/publishedVersion
http://purl.org/coar/resource_type/c_6501
info:ar-repo/semantics/articulo
format article
status_str publishedVersion
dc.identifier.none.fl_str_mv http://hdl.handle.net/11336/210789
Descalzo, Juan Marcos; Frutos, Eliana Ludmila; Rebrij, Romina Astrid; Luna, Daniel Roberto; Benítez, Sonia; Information Assessment for the Implementation of Electronic Informed Consent for Genetic Studies in a High Complexity Hospital; IOS Press; Studies in Health Technology and Informatics; 290; 6-2022; 227-229
0926-9630
1879-8365
CONICET Digital
CONICET
url http://hdl.handle.net/11336/210789
identifier_str_mv Descalzo, Juan Marcos; Frutos, Eliana Ludmila; Rebrij, Romina Astrid; Luna, Daniel Roberto; Benítez, Sonia; Information Assessment for the Implementation of Electronic Informed Consent for Genetic Studies in a High Complexity Hospital; IOS Press; Studies in Health Technology and Informatics; 290; 6-2022; 227-229
0926-9630
1879-8365
CONICET Digital
CONICET
dc.language.none.fl_str_mv eng
language eng
dc.relation.none.fl_str_mv info:eu-repo/semantics/altIdentifier/doi/10.3233/SHTI220067
dc.rights.none.fl_str_mv info:eu-repo/semantics/openAccess
https://creativecommons.org/licenses/by-nc/2.5/ar/
eu_rights_str_mv openAccess
rights_invalid_str_mv https://creativecommons.org/licenses/by-nc/2.5/ar/
dc.format.none.fl_str_mv application/pdf
application/pdf
dc.publisher.none.fl_str_mv IOS Press
publisher.none.fl_str_mv IOS Press
dc.source.none.fl_str_mv reponame:CONICET Digital (CONICET)
instname:Consejo Nacional de Investigaciones Científicas y Técnicas
reponame_str CONICET Digital (CONICET)
collection CONICET Digital (CONICET)
instname_str Consejo Nacional de Investigaciones Científicas y Técnicas
repository.name.fl_str_mv CONICET Digital (CONICET) - Consejo Nacional de Investigaciones Científicas y Técnicas
repository.mail.fl_str_mv dasensio@conicet.gov.ar; lcarlino@conicet.gov.ar
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score 13.069144

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