“I’m neither here, which would be bad, nor there, which would be good”: the information needs of HPV+ women. A qualitative study based on in-depth interviews and counselling sessio...

Autores
Szwarc, Lucila; Sánchez Antelo, Victoria Inés María; Paolino, Melisa Delia; Arrossi, Silvina
Año de publicación
2021
Idioma
inglés
Tipo de recurso
artículo
Estado
versión publicada
Descripción
The objective of this qualitative study was to explore the information needs of HPV+ women. We conducted 38 in-depth interviews with HPV+ women in the province of Jujuy, Argentina. The interviews included a counselling session to respond to women’s concerns and questions. Women perceived the information provided as good, despite having several doubts and misconceptions after receiving results of an HPV+ test. They expressed difficulties in formulating questions during the consultation due to shame, excess of information provided or lack of familiarity with technical language. They valued emotional support and being treated kindly by professionals. The perceived information needs that emerged as most important were: (1) the meaning of an HPV+ result and its relationship with cervical cancer evolution and severity; (2) continuity and timing of the care process; (3) information on the sexual transmission of the virus; (4) explanation of the presence or absence of symptoms. Women’s primary unperceived information needs were: (1) detailed information about colposcopy, biopsy and treatments and their effects (including fertility consequences); and (2) deconstructing the association of sexual transmission with infidelity. Sources of information included: (1) the health care system; (2) the internet; and (3) social encounters (close friends and relatives). It is crucial to strengthen the processes for delivering results, with more thorough information, improved emotional support and active listening focused on the patient, as well as to conceive new formats to provide information in stages and/or gradually, in order to facilitate women’s access to the health care system and the information they need.
Fil: Szwarc, Lucila. Centro de Estudios de Estado y Sociedad; Argentina. Consejo Nacional de Investigaciones Científicas y Técnicas; Argentina
Fil: Sánchez Antelo, Victoria Inés María. Centro de Estudios de Estado y Sociedad; Argentina. Consejo Nacional de Investigaciones Científicas y Técnicas; Argentina
Fil: Paolino, Melisa Delia. Centro de Estudios de Estado y Sociedad; Argentina. Consejo Nacional de Investigaciones Científicas y Técnicas; Argentina
Fil: Arrossi, Silvina. Centro de Estudios de Estado y Sociedad; Argentina. Consejo Nacional de Investigaciones Científicas y Técnicas; Argentina
Materia
CERVICAL CANCER SCREENING
DNA TESTING
HPV SCREENING
HUMAN PAPILLOMAVIRUS
INFORMATION NEEDS
SEXUALLY TRANSMITTED DISEASES
Nivel de accesibilidad
acceso abierto
Condiciones de uso
https://creativecommons.org/licenses/by-nc-sa/2.5/ar/
Repositorio
CONICET Digital (CONICET)
Institución
Consejo Nacional de Investigaciones Científicas y Técnicas
OAI Identificador
oai:ri.conicet.gov.ar:11336/161326
Acceder
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repository_id_str 3498
network_name_str CONICET Digital (CONICET)
spelling “I’m neither here, which would be bad, nor there, which would be good”: the information needs of HPV+ women. A qualitative study based on in-depth interviews and counselling sessions in Jujuy, ArgentinaSzwarc, LucilaSánchez Antelo, Victoria Inés MaríaPaolino, Melisa DeliaArrossi, SilvinaCERVICAL CANCER SCREENINGDNA TESTINGHPV SCREENINGHUMAN PAPILLOMAVIRUSINFORMATION NEEDSSEXUALLY TRANSMITTED DISEASEShttps://purl.org/becyt/ford/5.4https://purl.org/becyt/ford/5The objective of this qualitative study was to explore the information needs of HPV+ women. We conducted 38 in-depth interviews with HPV+ women in the province of Jujuy, Argentina. The interviews included a counselling session to respond to women’s concerns and questions. Women perceived the information provided as good, despite having several doubts and misconceptions after receiving results of an HPV+ test. They expressed difficulties in formulating questions during the consultation due to shame, excess of information provided or lack of familiarity with technical language. They valued emotional support and being treated kindly by professionals. The perceived information needs that emerged as most important were: (1) the meaning of an HPV+ result and its relationship with cervical cancer evolution and severity; (2) continuity and timing of the care process; (3) information on the sexual transmission of the virus; (4) explanation of the presence or absence of symptoms. Women’s primary unperceived information needs were: (1) detailed information about colposcopy, biopsy and treatments and their effects (including fertility consequences); and (2) deconstructing the association of sexual transmission with infidelity. Sources of information included: (1) the health care system; (2) the internet; and (3) social encounters (close friends and relatives). It is crucial to strengthen the processes for delivering results, with more thorough information, improved emotional support and active listening focused on the patient, as well as to conceive new formats to provide information in stages and/or gradually, in order to facilitate women’s access to the health care system and the information they need.Fil: Szwarc, Lucila. Centro de Estudios de Estado y Sociedad; Argentina. Consejo Nacional de Investigaciones Científicas y Técnicas; ArgentinaFil: Sánchez Antelo, Victoria Inés María. Centro de Estudios de Estado y Sociedad; Argentina. Consejo Nacional de Investigaciones Científicas y Técnicas; ArgentinaFil: Paolino, Melisa Delia. Centro de Estudios de Estado y Sociedad; Argentina. Consejo Nacional de Investigaciones Científicas y Técnicas; ArgentinaFil: Arrossi, Silvina. Centro de Estudios de Estado y Sociedad; Argentina. Consejo Nacional de Investigaciones Científicas y Técnicas; ArgentinaTaylor & Francis Ltd2021-07info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionhttp://purl.org/coar/resource_type/c_6501info:ar-repo/semantics/articuloapplication/pdfapplication/pdfhttp://hdl.handle.net/11336/161326Szwarc, Lucila; Sánchez Antelo, Victoria Inés María; Paolino, Melisa Delia; Arrossi, Silvina; “I’m neither here, which would be bad, nor there, which would be good”: the information needs of HPV+ women. A qualitative study based on in-depth interviews and counselling sessions in Jujuy, Argentina; Taylor & Francis Ltd; Sexual and Reproductive Health Matters; 29; 1; 7-2021; 1-122641-0397CONICET DigitalCONICETenginfo:eu-repo/semantics/altIdentifier/doi/10.1080/26410397.2021.1991101info:eu-repo/semantics/altIdentifier/url/https://www.tandfonline.com/doi/full/10.1080/26410397.2021.1991101info:eu-repo/semantics/openAccesshttps://creativecommons.org/licenses/by-nc-sa/2.5/ar/reponame:CONICET Digital (CONICET)instname:Consejo Nacional de Investigaciones Científicas y Técnicas2025-10-22T11:16:10Zoai:ri.conicet.gov.ar:11336/161326instacron:CONICETInstitucionalhttp://ri.conicet.gov.ar/Organismo científico-tecnológicoNo correspondehttp://ri.conicet.gov.ar/oai/requestdasensio@conicet.gov.ar; lcarlino@conicet.gov.arArgentinaNo correspondeNo correspondeNo correspondeopendoar:34982025-10-22 11:16:11.194CONICET Digital (CONICET) - Consejo Nacional de Investigaciones Científicas y Técnicasfalse
dc.title.none.fl_str_mv “I’m neither here, which would be bad, nor there, which would be good”: the information needs of HPV+ women. A qualitative study based on in-depth interviews and counselling sessions in Jujuy, Argentina
title “I’m neither here, which would be bad, nor there, which would be good”: the information needs of HPV+ women. A qualitative study based on in-depth interviews and counselling sessions in Jujuy, Argentina
spellingShingle “I’m neither here, which would be bad, nor there, which would be good”: the information needs of HPV+ women. A qualitative study based on in-depth interviews and counselling sessions in Jujuy, Argentina
Szwarc, Lucila
CERVICAL CANCER SCREENING
DNA TESTING
HPV SCREENING
HUMAN PAPILLOMAVIRUS
INFORMATION NEEDS
SEXUALLY TRANSMITTED DISEASES
title_short “I’m neither here, which would be bad, nor there, which would be good”: the information needs of HPV+ women. A qualitative study based on in-depth interviews and counselling sessions in Jujuy, Argentina
title_full “I’m neither here, which would be bad, nor there, which would be good”: the information needs of HPV+ women. A qualitative study based on in-depth interviews and counselling sessions in Jujuy, Argentina
title_fullStr “I’m neither here, which would be bad, nor there, which would be good”: the information needs of HPV+ women. A qualitative study based on in-depth interviews and counselling sessions in Jujuy, Argentina
title_full_unstemmed “I’m neither here, which would be bad, nor there, which would be good”: the information needs of HPV+ women. A qualitative study based on in-depth interviews and counselling sessions in Jujuy, Argentina
title_sort “I’m neither here, which would be bad, nor there, which would be good”: the information needs of HPV+ women. A qualitative study based on in-depth interviews and counselling sessions in Jujuy, Argentina
dc.creator.none.fl_str_mv Szwarc, Lucila
Sánchez Antelo, Victoria Inés María
Paolino, Melisa Delia
Arrossi, Silvina
author Szwarc, Lucila
author_facet Szwarc, Lucila
Sánchez Antelo, Victoria Inés María
Paolino, Melisa Delia
Arrossi, Silvina
author_role author
author2 Sánchez Antelo, Victoria Inés María
Paolino, Melisa Delia
Arrossi, Silvina
author2_role author
author
author
dc.subject.none.fl_str_mv CERVICAL CANCER SCREENING
DNA TESTING
HPV SCREENING
HUMAN PAPILLOMAVIRUS
INFORMATION NEEDS
SEXUALLY TRANSMITTED DISEASES
topic CERVICAL CANCER SCREENING
DNA TESTING
HPV SCREENING
HUMAN PAPILLOMAVIRUS
INFORMATION NEEDS
SEXUALLY TRANSMITTED DISEASES
purl_subject.fl_str_mv https://purl.org/becyt/ford/5.4
https://purl.org/becyt/ford/5
dc.description.none.fl_txt_mv The objective of this qualitative study was to explore the information needs of HPV+ women. We conducted 38 in-depth interviews with HPV+ women in the province of Jujuy, Argentina. The interviews included a counselling session to respond to women’s concerns and questions. Women perceived the information provided as good, despite having several doubts and misconceptions after receiving results of an HPV+ test. They expressed difficulties in formulating questions during the consultation due to shame, excess of information provided or lack of familiarity with technical language. They valued emotional support and being treated kindly by professionals. The perceived information needs that emerged as most important were: (1) the meaning of an HPV+ result and its relationship with cervical cancer evolution and severity; (2) continuity and timing of the care process; (3) information on the sexual transmission of the virus; (4) explanation of the presence or absence of symptoms. Women’s primary unperceived information needs were: (1) detailed information about colposcopy, biopsy and treatments and their effects (including fertility consequences); and (2) deconstructing the association of sexual transmission with infidelity. Sources of information included: (1) the health care system; (2) the internet; and (3) social encounters (close friends and relatives). It is crucial to strengthen the processes for delivering results, with more thorough information, improved emotional support and active listening focused on the patient, as well as to conceive new formats to provide information in stages and/or gradually, in order to facilitate women’s access to the health care system and the information they need.
Fil: Szwarc, Lucila. Centro de Estudios de Estado y Sociedad; Argentina. Consejo Nacional de Investigaciones Científicas y Técnicas; Argentina
Fil: Sánchez Antelo, Victoria Inés María. Centro de Estudios de Estado y Sociedad; Argentina. Consejo Nacional de Investigaciones Científicas y Técnicas; Argentina
Fil: Paolino, Melisa Delia. Centro de Estudios de Estado y Sociedad; Argentina. Consejo Nacional de Investigaciones Científicas y Técnicas; Argentina
Fil: Arrossi, Silvina. Centro de Estudios de Estado y Sociedad; Argentina. Consejo Nacional de Investigaciones Científicas y Técnicas; Argentina
description The objective of this qualitative study was to explore the information needs of HPV+ women. We conducted 38 in-depth interviews with HPV+ women in the province of Jujuy, Argentina. The interviews included a counselling session to respond to women’s concerns and questions. Women perceived the information provided as good, despite having several doubts and misconceptions after receiving results of an HPV+ test. They expressed difficulties in formulating questions during the consultation due to shame, excess of information provided or lack of familiarity with technical language. They valued emotional support and being treated kindly by professionals. The perceived information needs that emerged as most important were: (1) the meaning of an HPV+ result and its relationship with cervical cancer evolution and severity; (2) continuity and timing of the care process; (3) information on the sexual transmission of the virus; (4) explanation of the presence or absence of symptoms. Women’s primary unperceived information needs were: (1) detailed information about colposcopy, biopsy and treatments and their effects (including fertility consequences); and (2) deconstructing the association of sexual transmission with infidelity. Sources of information included: (1) the health care system; (2) the internet; and (3) social encounters (close friends and relatives). It is crucial to strengthen the processes for delivering results, with more thorough information, improved emotional support and active listening focused on the patient, as well as to conceive new formats to provide information in stages and/or gradually, in order to facilitate women’s access to the health care system and the information they need.
publishDate 2021
dc.date.none.fl_str_mv 2021-07
dc.type.none.fl_str_mv info:eu-repo/semantics/article
info:eu-repo/semantics/publishedVersion
http://purl.org/coar/resource_type/c_6501
info:ar-repo/semantics/articulo
format article
status_str publishedVersion
dc.identifier.none.fl_str_mv http://hdl.handle.net/11336/161326
Szwarc, Lucila; Sánchez Antelo, Victoria Inés María; Paolino, Melisa Delia; Arrossi, Silvina; “I’m neither here, which would be bad, nor there, which would be good”: the information needs of HPV+ women. A qualitative study based on in-depth interviews and counselling sessions in Jujuy, Argentina; Taylor & Francis Ltd; Sexual and Reproductive Health Matters; 29; 1; 7-2021; 1-12
2641-0397
CONICET Digital
CONICET
url http://hdl.handle.net/11336/161326
identifier_str_mv Szwarc, Lucila; Sánchez Antelo, Victoria Inés María; Paolino, Melisa Delia; Arrossi, Silvina; “I’m neither here, which would be bad, nor there, which would be good”: the information needs of HPV+ women. A qualitative study based on in-depth interviews and counselling sessions in Jujuy, Argentina; Taylor & Francis Ltd; Sexual and Reproductive Health Matters; 29; 1; 7-2021; 1-12
2641-0397
CONICET Digital
CONICET
dc.language.none.fl_str_mv eng
language eng
dc.relation.none.fl_str_mv info:eu-repo/semantics/altIdentifier/doi/10.1080/26410397.2021.1991101
info:eu-repo/semantics/altIdentifier/url/https://www.tandfonline.com/doi/full/10.1080/26410397.2021.1991101
dc.rights.none.fl_str_mv info:eu-repo/semantics/openAccess
https://creativecommons.org/licenses/by-nc-sa/2.5/ar/
eu_rights_str_mv openAccess
rights_invalid_str_mv https://creativecommons.org/licenses/by-nc-sa/2.5/ar/
dc.format.none.fl_str_mv application/pdf
application/pdf
dc.publisher.none.fl_str_mv Taylor & Francis Ltd
publisher.none.fl_str_mv Taylor & Francis Ltd
dc.source.none.fl_str_mv reponame:CONICET Digital (CONICET)
instname:Consejo Nacional de Investigaciones Científicas y Técnicas
reponame_str CONICET Digital (CONICET)
collection CONICET Digital (CONICET)
instname_str Consejo Nacional de Investigaciones Científicas y Técnicas
repository.name.fl_str_mv CONICET Digital (CONICET) - Consejo Nacional de Investigaciones Científicas y Técnicas
repository.mail.fl_str_mv dasensio@conicet.gov.ar; lcarlino@conicet.gov.ar
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