Keeping people with epilepsy safe during the COVID-19 pandemic

Autores
French, Jacqueline A.; Brodie, Martin J.; Caraballo, Roberto Horacio; Devinsky, Orrin; Ding, Ding; Jehi, Lara; Jette, Nathalie; Kanner, Andres; Modi, Avani C.; Newton, Charles R.; Patel, Archana A.; Pennell, Page B.; Perucca, Emilio; Sander, Josemir W.; Scheffer, Ingrid E.; Singh, Gagandeep; Williams, Emma; Wilmshurst, Jo; Cross, J. Helen
Año de publicación
2020
Idioma
inglés
Tipo de recurso
artículo
Estado
versión publicada
Descripción
OBJECTIVES: To provide information on the effect of the coronavirus disease of 2019 (COVID-19) pandemic on people with epilepsy and provide consensus recommendations on how to provide the best possible care for people with epilepsy while avoiding visits to urgent care facilities and hospitalizations during the novel coronavirus pandemic. METHODS: The authors developed consensus statements in 2 sections. The first was "How should we/clinicians modify our clinical care pathway for people with epilepsy during the COVID-19 pandemic?" The second was "What general advice should we give to people with epilepsy during this crisis? The authors individually scored statements on a scale of -10 (strongly disagree) to +10 (strongly agree). Five of 11 recommendations for physicians and 3/5 recommendations for individuals/families were rated by all the authors as 7 or above (strongly agree) on the first round of rating. Subsequently, a teleconference was held where statements for which there was a lack of strong consensus were revised. RESULTS: After revision, all consensus recommendations received a score of 7 or above. The recommendations focus on administration of as much care as possible at home to keep people with epilepsy out of health care facilities, where they are likely to encounter COVID-19 (including strategies for rescue therapy), as well as minimization of risk of seizure exacerbation through adherence, and through ensuring a regular supply of medication. We also provide helpful links to additional helpful information for people with epilepsy and health providers. CONCLUSION: These recommendations may help health care professionals provide optimal care to people with epilepsy during the coronavirus pandemic.
Fil: French, Jacqueline A.. No especifíca;
Fil: Brodie, Martin J.. No especifíca;
Fil: Caraballo, Roberto Horacio. Consejo Nacional de Investigaciones Científicas y Técnicas; Argentina. Gobierno de la Ciudad de Buenos Aires. Hospital de Pediatría "Juan P. Garrahan"; Argentina
Fil: Devinsky, Orrin. Grossman School of Medicine; Estados Unidos
Fil: Ding, Ding. Huashan Hospital; China
Fil: Jehi, Lara. No especifíca;
Fil: Jette, Nathalie. No especifíca;
Fil: Kanner, Andres. No especifíca;
Fil: Modi, Avani C.. No especifíca;
Fil: Newton, Charles R.. University of Oxford; Reino Unido
Fil: Patel, Archana A.. Harvard Medical School; Estados Unidos
Fil: Pennell, Page B.. Brigham and Women’s Hospital; Estados Unidos
Fil: Perucca, Emilio. Universita degli Studi di Pavia; Italia
Fil: Sander, Josemir W.. Queen Square Institute of Neurology; Reino Unido
Fil: Scheffer, Ingrid E.. Austin and Royal Children’s Hospitals; Australia
Fil: Singh, Gagandeep. No especifíca;
Fil: Williams, Emma. No especifíca;
Fil: Wilmshurst, Jo. Red Cross War Memorial Children’s Hospital; Sudáfrica
Fil: Cross, J. Helen. No especifíca;
Materia
COVID-19
Neurology
Nivel de accesibilidad
acceso abierto
Condiciones de uso
https://creativecommons.org/licenses/by-nc-sa/2.5/ar/
Repositorio
CONICET Digital (CONICET)
Institución
Consejo Nacional de Investigaciones Científicas y Técnicas
OAI Identificador
oai:ri.conicet.gov.ar:11336/160300

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network_acronym_str CONICETDig
repository_id_str 3498
network_name_str CONICET Digital (CONICET)
spelling Keeping people with epilepsy safe during the COVID-19 pandemicFrench, Jacqueline A.Brodie, Martin J.Caraballo, Roberto HoracioDevinsky, OrrinDing, DingJehi, LaraJette, NathalieKanner, AndresModi, Avani C.Newton, Charles R.Patel, Archana A.Pennell, Page B.Perucca, EmilioSander, Josemir W.Scheffer, Ingrid E.Singh, GagandeepWilliams, EmmaWilmshurst, JoCross, J. HelenCOVID-19Neurologyhttps://purl.org/becyt/ford/3.2https://purl.org/becyt/ford/3OBJECTIVES: To provide information on the effect of the coronavirus disease of 2019 (COVID-19) pandemic on people with epilepsy and provide consensus recommendations on how to provide the best possible care for people with epilepsy while avoiding visits to urgent care facilities and hospitalizations during the novel coronavirus pandemic. METHODS: The authors developed consensus statements in 2 sections. The first was "How should we/clinicians modify our clinical care pathway for people with epilepsy during the COVID-19 pandemic?" The second was "What general advice should we give to people with epilepsy during this crisis? The authors individually scored statements on a scale of -10 (strongly disagree) to +10 (strongly agree). Five of 11 recommendations for physicians and 3/5 recommendations for individuals/families were rated by all the authors as 7 or above (strongly agree) on the first round of rating. Subsequently, a teleconference was held where statements for which there was a lack of strong consensus were revised. RESULTS: After revision, all consensus recommendations received a score of 7 or above. The recommendations focus on administration of as much care as possible at home to keep people with epilepsy out of health care facilities, where they are likely to encounter COVID-19 (including strategies for rescue therapy), as well as minimization of risk of seizure exacerbation through adherence, and through ensuring a regular supply of medication. We also provide helpful links to additional helpful information for people with epilepsy and health providers. CONCLUSION: These recommendations may help health care professionals provide optimal care to people with epilepsy during the coronavirus pandemic.Fil: French, Jacqueline A.. No especifíca;Fil: Brodie, Martin J.. No especifíca;Fil: Caraballo, Roberto Horacio. Consejo Nacional de Investigaciones Científicas y Técnicas; Argentina. Gobierno de la Ciudad de Buenos Aires. Hospital de Pediatría "Juan P. Garrahan"; ArgentinaFil: Devinsky, Orrin. Grossman School of Medicine; Estados UnidosFil: Ding, Ding. Huashan Hospital; ChinaFil: Jehi, Lara. No especifíca;Fil: Jette, Nathalie. No especifíca;Fil: Kanner, Andres. No especifíca;Fil: Modi, Avani C.. No especifíca;Fil: Newton, Charles R.. University of Oxford; Reino UnidoFil: Patel, Archana A.. Harvard Medical School; Estados UnidosFil: Pennell, Page B.. Brigham and Women’s Hospital; Estados UnidosFil: Perucca, Emilio. Universita degli Studi di Pavia; ItaliaFil: Sander, Josemir W.. Queen Square Institute of Neurology; Reino UnidoFil: Scheffer, Ingrid E.. Austin and Royal Children’s Hospitals; AustraliaFil: Singh, Gagandeep. No especifíca;Fil: Williams, Emma. No especifíca;Fil: Wilmshurst, Jo. Red Cross War Memorial Children’s Hospital; SudáfricaFil: Cross, J. Helen. No especifíca;American Academy of Neurology2020-06info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionhttp://purl.org/coar/resource_type/c_6501info:ar-repo/semantics/articuloapplication/pdfapplication/pdfhttp://hdl.handle.net/11336/160300French, Jacqueline A.; Brodie, Martin J.; Caraballo, Roberto Horacio; Devinsky, Orrin; Ding, Ding; et al.; Keeping people with epilepsy safe during the COVID-19 pandemic; American Academy of Neurology; Neurology; 94; 23; 6-2020; 1032-10371526-632XCONICET DigitalCONICETenginfo:eu-repo/semantics/altIdentifier/doi/10.1212/WNL.0000000000009632info:eu-repo/semantics/openAccesshttps://creativecommons.org/licenses/by-nc-sa/2.5/ar/reponame:CONICET Digital (CONICET)instname:Consejo Nacional de Investigaciones Científicas y Técnicas2025-09-03T09:47:44Zoai:ri.conicet.gov.ar:11336/160300instacron:CONICETInstitucionalhttp://ri.conicet.gov.ar/Organismo científico-tecnológicoNo correspondehttp://ri.conicet.gov.ar/oai/requestdasensio@conicet.gov.ar; lcarlino@conicet.gov.arArgentinaNo correspondeNo correspondeNo correspondeopendoar:34982025-09-03 09:47:44.47CONICET Digital (CONICET) - Consejo Nacional de Investigaciones Científicas y Técnicasfalse
dc.title.none.fl_str_mv Keeping people with epilepsy safe during the COVID-19 pandemic
title Keeping people with epilepsy safe during the COVID-19 pandemic
spellingShingle Keeping people with epilepsy safe during the COVID-19 pandemic
French, Jacqueline A.
COVID-19
Neurology
title_short Keeping people with epilepsy safe during the COVID-19 pandemic
title_full Keeping people with epilepsy safe during the COVID-19 pandemic
title_fullStr Keeping people with epilepsy safe during the COVID-19 pandemic
title_full_unstemmed Keeping people with epilepsy safe during the COVID-19 pandemic
title_sort Keeping people with epilepsy safe during the COVID-19 pandemic
dc.creator.none.fl_str_mv French, Jacqueline A.
Brodie, Martin J.
Caraballo, Roberto Horacio
Devinsky, Orrin
Ding, Ding
Jehi, Lara
Jette, Nathalie
Kanner, Andres
Modi, Avani C.
Newton, Charles R.
Patel, Archana A.
Pennell, Page B.
Perucca, Emilio
Sander, Josemir W.
Scheffer, Ingrid E.
Singh, Gagandeep
Williams, Emma
Wilmshurst, Jo
Cross, J. Helen
author French, Jacqueline A.
author_facet French, Jacqueline A.
Brodie, Martin J.
Caraballo, Roberto Horacio
Devinsky, Orrin
Ding, Ding
Jehi, Lara
Jette, Nathalie
Kanner, Andres
Modi, Avani C.
Newton, Charles R.
Patel, Archana A.
Pennell, Page B.
Perucca, Emilio
Sander, Josemir W.
Scheffer, Ingrid E.
Singh, Gagandeep
Williams, Emma
Wilmshurst, Jo
Cross, J. Helen
author_role author
author2 Brodie, Martin J.
Caraballo, Roberto Horacio
Devinsky, Orrin
Ding, Ding
Jehi, Lara
Jette, Nathalie
Kanner, Andres
Modi, Avani C.
Newton, Charles R.
Patel, Archana A.
Pennell, Page B.
Perucca, Emilio
Sander, Josemir W.
Scheffer, Ingrid E.
Singh, Gagandeep
Williams, Emma
Wilmshurst, Jo
Cross, J. Helen
author2_role author
author
author
author
author
author
author
author
author
author
author
author
author
author
author
author
author
author
dc.subject.none.fl_str_mv COVID-19
Neurology
topic COVID-19
Neurology
purl_subject.fl_str_mv https://purl.org/becyt/ford/3.2
https://purl.org/becyt/ford/3
dc.description.none.fl_txt_mv OBJECTIVES: To provide information on the effect of the coronavirus disease of 2019 (COVID-19) pandemic on people with epilepsy and provide consensus recommendations on how to provide the best possible care for people with epilepsy while avoiding visits to urgent care facilities and hospitalizations during the novel coronavirus pandemic. METHODS: The authors developed consensus statements in 2 sections. The first was "How should we/clinicians modify our clinical care pathway for people with epilepsy during the COVID-19 pandemic?" The second was "What general advice should we give to people with epilepsy during this crisis? The authors individually scored statements on a scale of -10 (strongly disagree) to +10 (strongly agree). Five of 11 recommendations for physicians and 3/5 recommendations for individuals/families were rated by all the authors as 7 or above (strongly agree) on the first round of rating. Subsequently, a teleconference was held where statements for which there was a lack of strong consensus were revised. RESULTS: After revision, all consensus recommendations received a score of 7 or above. The recommendations focus on administration of as much care as possible at home to keep people with epilepsy out of health care facilities, where they are likely to encounter COVID-19 (including strategies for rescue therapy), as well as minimization of risk of seizure exacerbation through adherence, and through ensuring a regular supply of medication. We also provide helpful links to additional helpful information for people with epilepsy and health providers. CONCLUSION: These recommendations may help health care professionals provide optimal care to people with epilepsy during the coronavirus pandemic.
Fil: French, Jacqueline A.. No especifíca;
Fil: Brodie, Martin J.. No especifíca;
Fil: Caraballo, Roberto Horacio. Consejo Nacional de Investigaciones Científicas y Técnicas; Argentina. Gobierno de la Ciudad de Buenos Aires. Hospital de Pediatría "Juan P. Garrahan"; Argentina
Fil: Devinsky, Orrin. Grossman School of Medicine; Estados Unidos
Fil: Ding, Ding. Huashan Hospital; China
Fil: Jehi, Lara. No especifíca;
Fil: Jette, Nathalie. No especifíca;
Fil: Kanner, Andres. No especifíca;
Fil: Modi, Avani C.. No especifíca;
Fil: Newton, Charles R.. University of Oxford; Reino Unido
Fil: Patel, Archana A.. Harvard Medical School; Estados Unidos
Fil: Pennell, Page B.. Brigham and Women’s Hospital; Estados Unidos
Fil: Perucca, Emilio. Universita degli Studi di Pavia; Italia
Fil: Sander, Josemir W.. Queen Square Institute of Neurology; Reino Unido
Fil: Scheffer, Ingrid E.. Austin and Royal Children’s Hospitals; Australia
Fil: Singh, Gagandeep. No especifíca;
Fil: Williams, Emma. No especifíca;
Fil: Wilmshurst, Jo. Red Cross War Memorial Children’s Hospital; Sudáfrica
Fil: Cross, J. Helen. No especifíca;
description OBJECTIVES: To provide information on the effect of the coronavirus disease of 2019 (COVID-19) pandemic on people with epilepsy and provide consensus recommendations on how to provide the best possible care for people with epilepsy while avoiding visits to urgent care facilities and hospitalizations during the novel coronavirus pandemic. METHODS: The authors developed consensus statements in 2 sections. The first was "How should we/clinicians modify our clinical care pathway for people with epilepsy during the COVID-19 pandemic?" The second was "What general advice should we give to people with epilepsy during this crisis? The authors individually scored statements on a scale of -10 (strongly disagree) to +10 (strongly agree). Five of 11 recommendations for physicians and 3/5 recommendations for individuals/families were rated by all the authors as 7 or above (strongly agree) on the first round of rating. Subsequently, a teleconference was held where statements for which there was a lack of strong consensus were revised. RESULTS: After revision, all consensus recommendations received a score of 7 or above. The recommendations focus on administration of as much care as possible at home to keep people with epilepsy out of health care facilities, where they are likely to encounter COVID-19 (including strategies for rescue therapy), as well as minimization of risk of seizure exacerbation through adherence, and through ensuring a regular supply of medication. We also provide helpful links to additional helpful information for people with epilepsy and health providers. CONCLUSION: These recommendations may help health care professionals provide optimal care to people with epilepsy during the coronavirus pandemic.
publishDate 2020
dc.date.none.fl_str_mv 2020-06
dc.type.none.fl_str_mv info:eu-repo/semantics/article
info:eu-repo/semantics/publishedVersion
http://purl.org/coar/resource_type/c_6501
info:ar-repo/semantics/articulo
format article
status_str publishedVersion
dc.identifier.none.fl_str_mv http://hdl.handle.net/11336/160300
French, Jacqueline A.; Brodie, Martin J.; Caraballo, Roberto Horacio; Devinsky, Orrin; Ding, Ding; et al.; Keeping people with epilepsy safe during the COVID-19 pandemic; American Academy of Neurology; Neurology; 94; 23; 6-2020; 1032-1037
1526-632X
CONICET Digital
CONICET
url http://hdl.handle.net/11336/160300
identifier_str_mv French, Jacqueline A.; Brodie, Martin J.; Caraballo, Roberto Horacio; Devinsky, Orrin; Ding, Ding; et al.; Keeping people with epilepsy safe during the COVID-19 pandemic; American Academy of Neurology; Neurology; 94; 23; 6-2020; 1032-1037
1526-632X
CONICET Digital
CONICET
dc.language.none.fl_str_mv eng
language eng
dc.relation.none.fl_str_mv info:eu-repo/semantics/altIdentifier/doi/10.1212/WNL.0000000000009632
dc.rights.none.fl_str_mv info:eu-repo/semantics/openAccess
https://creativecommons.org/licenses/by-nc-sa/2.5/ar/
eu_rights_str_mv openAccess
rights_invalid_str_mv https://creativecommons.org/licenses/by-nc-sa/2.5/ar/
dc.format.none.fl_str_mv application/pdf
application/pdf
dc.publisher.none.fl_str_mv American Academy of Neurology
publisher.none.fl_str_mv American Academy of Neurology
dc.source.none.fl_str_mv reponame:CONICET Digital (CONICET)
instname:Consejo Nacional de Investigaciones Científicas y Técnicas
reponame_str CONICET Digital (CONICET)
collection CONICET Digital (CONICET)
instname_str Consejo Nacional de Investigaciones Científicas y Técnicas
repository.name.fl_str_mv CONICET Digital (CONICET) - Consejo Nacional de Investigaciones Científicas y Técnicas
repository.mail.fl_str_mv dasensio@conicet.gov.ar; lcarlino@conicet.gov.ar
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