Birth defects surveillance: experiences in Argentina and Colombia

Autores
Groisman, Boris; Liascovich, Rosa; Bidondo, Maria Paz; Barbero, Pablo Miguel; Duarte, Santiago Pablo; Tellechea, Ana Laura; Holguín, Jorge; Rodríguez, Catherine; Hurtado Villa, Paula; Caicedo, Natalia; Botta, Gabriela; Zarante Montoya, Ignacio Manuel
Año de publicación
2018
Idioma
inglés
Tipo de recurso
artículo
Estado
versión publicada
Descripción
Birth defects (BDs) are structural or functional anomalies, sporadic or hereditary, of prenatal origin. Public health surveillance is defined as the ongoing systematic collection, analysis, and interpretation of outcome-specific data for use in the planning, implementation, and evaluation of public health practice. BD surveillance systems may have different characteristics according to design, coverage, type of surveillance, case ascertainment, case definition, BD description, maximum age of diagnosis, pregnancy outcomes, coding systems, and the location of the coding process (central or local). The aim of this article is to describe and compare methodology, applications, and results of birth defect surveillance systems in two South-American countries: Colombia and Argentina. In both countries, the surveillance systems developed activities in relation to the Zika virus emergency. For most BDs, a statistically significant higher prevalence is observed in Argentina-RENAC than in Colombian registries. This may be due to methodological reasons or real differences in prevalence. The strengths, weaknesses, and the future perspectives of the Argentine and Colombian systems are presented. When developing a surveillance system, the objectives, the available resources, and previous experiences in similar contexts must be taken into account. In that sense, the experience of Argentina and Colombia can be useful for others when developing a birth defect surveillance system.
Fil: Groisman, Boris. Dirección Nacional de Instituto de Investigación. Administración Nacional de Laboratorios e Institutos de Salud "Dr. Carlos G. Malbrán". Centro Nacional de Genética Médica; Argentina
Fil: Liascovich, Rosa. Dirección Nacional de Instituto de Investigación. Administración Nacional de Laboratorios e Institutos de Salud "Dr. Carlos G. Malbrán". Centro Nacional de Genética Médica; Argentina
Fil: Bidondo, Maria Paz. Dirección Nacional de Instituto de Investigación. Administración Nacional de Laboratorios e Institutos de Salud "Dr. Carlos G. Malbrán". Centro Nacional de Genética Médica; Argentina
Fil: Barbero, Pablo Miguel. Dirección Nacional de Instituto de Investigación. Administración Nacional de Laboratorios e Institutos de Salud "Dr. Carlos G. Malbrán". Centro Nacional de Genética Médica; Argentina
Fil: Duarte, Santiago Pablo. Dirección Nacional de Instituto de Investigación. Administración Nacional de Laboratorios e Institutos de Salud "Dr. Carlos G. Malbrán". Centro Nacional de Genética Médica; Argentina
Fil: Tellechea, Ana Laura. Dirección Nacional de Instituto de Investigación. Administración Nacional de Laboratorios e Institutos de Salud "Dr. Carlos G. Malbrán". Centro Nacional de Genética Médica; Argentina
Fil: Holguín, Jorge. Pontificia Universidad Javeriana; Colombia
Fil: Rodríguez, Catherine. Secretaría Distrital de Salud; Colombia
Fil: Hurtado Villa, Paula. Pontificia Universidad Javeriana; Colombia
Fil: Caicedo, Natalia. Pontificia Universidad Javeriana; Colombia
Fil: Botta, Gabriela. Pontificia Universidad Javeriana; Colombia
Fil: Zarante Montoya, Ignacio Manuel. Pontificia Universidad Javeriana; Colombia
Materia
ARGENTINA
BIRTH DEFECTS
COLOMBIA
REGISTRIES
SURVEILLANCE
Nivel de accesibilidad
acceso abierto
Condiciones de uso
https://creativecommons.org/licenses/by-nc-sa/2.5/ar/
Repositorio
CONICET Digital (CONICET)
Institución
Consejo Nacional de Investigaciones Científicas y Técnicas
OAI Identificador
oai:ri.conicet.gov.ar:11336/104559
Acceder
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oai_identifier_str oai:ri.conicet.gov.ar:11336/104559
network_acronym_str CONICETDig
repository_id_str 3498
network_name_str CONICET Digital (CONICET)
spelling Birth defects surveillance: experiences in Argentina and ColombiaGroisman, BorisLiascovich, RosaBidondo, Maria PazBarbero, Pablo MiguelDuarte, Santiago PabloTellechea, Ana LauraHolguín, JorgeRodríguez, CatherineHurtado Villa, PaulaCaicedo, NataliaBotta, GabrielaZarante Montoya, Ignacio ManuelARGENTINABIRTH DEFECTSCOLOMBIAREGISTRIESSURVEILLANCEhttps://purl.org/becyt/ford/3.3https://purl.org/becyt/ford/3Birth defects (BDs) are structural or functional anomalies, sporadic or hereditary, of prenatal origin. Public health surveillance is defined as the ongoing systematic collection, analysis, and interpretation of outcome-specific data for use in the planning, implementation, and evaluation of public health practice. BD surveillance systems may have different characteristics according to design, coverage, type of surveillance, case ascertainment, case definition, BD description, maximum age of diagnosis, pregnancy outcomes, coding systems, and the location of the coding process (central or local). The aim of this article is to describe and compare methodology, applications, and results of birth defect surveillance systems in two South-American countries: Colombia and Argentina. In both countries, the surveillance systems developed activities in relation to the Zika virus emergency. For most BDs, a statistically significant higher prevalence is observed in Argentina-RENAC than in Colombian registries. This may be due to methodological reasons or real differences in prevalence. The strengths, weaknesses, and the future perspectives of the Argentine and Colombian systems are presented. When developing a surveillance system, the objectives, the available resources, and previous experiences in similar contexts must be taken into account. In that sense, the experience of Argentina and Colombia can be useful for others when developing a birth defect surveillance system.Fil: Groisman, Boris. Dirección Nacional de Instituto de Investigación. Administración Nacional de Laboratorios e Institutos de Salud "Dr. Carlos G. Malbrán". Centro Nacional de Genética Médica; ArgentinaFil: Liascovich, Rosa. Dirección Nacional de Instituto de Investigación. Administración Nacional de Laboratorios e Institutos de Salud "Dr. Carlos G. Malbrán". Centro Nacional de Genética Médica; ArgentinaFil: Bidondo, Maria Paz. Dirección Nacional de Instituto de Investigación. Administración Nacional de Laboratorios e Institutos de Salud "Dr. Carlos G. Malbrán". Centro Nacional de Genética Médica; ArgentinaFil: Barbero, Pablo Miguel. Dirección Nacional de Instituto de Investigación. Administración Nacional de Laboratorios e Institutos de Salud "Dr. Carlos G. Malbrán". Centro Nacional de Genética Médica; ArgentinaFil: Duarte, Santiago Pablo. Dirección Nacional de Instituto de Investigación. Administración Nacional de Laboratorios e Institutos de Salud "Dr. Carlos G. Malbrán". Centro Nacional de Genética Médica; ArgentinaFil: Tellechea, Ana Laura. Dirección Nacional de Instituto de Investigación. Administración Nacional de Laboratorios e Institutos de Salud "Dr. Carlos G. Malbrán". Centro Nacional de Genética Médica; ArgentinaFil: Holguín, Jorge. Pontificia Universidad Javeriana; ColombiaFil: Rodríguez, Catherine. Secretaría Distrital de Salud; ColombiaFil: Hurtado Villa, Paula. Pontificia Universidad Javeriana; ColombiaFil: Caicedo, Natalia. Pontificia Universidad Javeriana; ColombiaFil: Botta, Gabriela. Pontificia Universidad Javeriana; ColombiaFil: Zarante Montoya, Ignacio Manuel. Pontificia Universidad Javeriana; ColombiaSpringer Verlag Berlín2018-12info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionhttp://purl.org/coar/resource_type/c_6501info:ar-repo/semantics/articuloapplication/pdfapplication/pdfhttp://hdl.handle.net/11336/104559Groisman, Boris; Liascovich, Rosa; Bidondo, Maria Paz; Barbero, Pablo Miguel; Duarte, Santiago Pablo; et al.; Birth defects surveillance: experiences in Argentina and Colombia; Springer Verlag Berlín; Journal of Community Genetics; 10; 3; 12-2018; 385-3931868-310X1868-6001CONICET DigitalCONICETenginfo:eu-repo/semantics/altIdentifier/url/https://link.springer.com/article/10.1007%2Fs12687-018-00403-6info:eu-repo/semantics/altIdentifier/doi/10.1007/s12687-018-00403-6info:eu-repo/semantics/openAccesshttps://creativecommons.org/licenses/by-nc-sa/2.5/ar/reponame:CONICET Digital (CONICET)instname:Consejo Nacional de Investigaciones Científicas y Técnicas2025-09-29T09:38:10Zoai:ri.conicet.gov.ar:11336/104559instacron:CONICETInstitucionalhttp://ri.conicet.gov.ar/Organismo científico-tecnológicoNo correspondehttp://ri.conicet.gov.ar/oai/requestdasensio@conicet.gov.ar; lcarlino@conicet.gov.arArgentinaNo correspondeNo correspondeNo correspondeopendoar:34982025-09-29 09:38:10.765CONICET Digital (CONICET) - Consejo Nacional de Investigaciones Científicas y Técnicasfalse
dc.title.none.fl_str_mv Birth defects surveillance: experiences in Argentina and Colombia
title Birth defects surveillance: experiences in Argentina and Colombia
spellingShingle Birth defects surveillance: experiences in Argentina and Colombia
Groisman, Boris
ARGENTINA
BIRTH DEFECTS
COLOMBIA
REGISTRIES
SURVEILLANCE
title_short Birth defects surveillance: experiences in Argentina and Colombia
title_full Birth defects surveillance: experiences in Argentina and Colombia
title_fullStr Birth defects surveillance: experiences in Argentina and Colombia
title_full_unstemmed Birth defects surveillance: experiences in Argentina and Colombia
title_sort Birth defects surveillance: experiences in Argentina and Colombia
dc.creator.none.fl_str_mv Groisman, Boris
Liascovich, Rosa
Bidondo, Maria Paz
Barbero, Pablo Miguel
Duarte, Santiago Pablo
Tellechea, Ana Laura
Holguín, Jorge
Rodríguez, Catherine
Hurtado Villa, Paula
Caicedo, Natalia
Botta, Gabriela
Zarante Montoya, Ignacio Manuel
author Groisman, Boris
author_facet Groisman, Boris
Liascovich, Rosa
Bidondo, Maria Paz
Barbero, Pablo Miguel
Duarte, Santiago Pablo
Tellechea, Ana Laura
Holguín, Jorge
Rodríguez, Catherine
Hurtado Villa, Paula
Caicedo, Natalia
Botta, Gabriela
Zarante Montoya, Ignacio Manuel
author_role author
author2 Liascovich, Rosa
Bidondo, Maria Paz
Barbero, Pablo Miguel
Duarte, Santiago Pablo
Tellechea, Ana Laura
Holguín, Jorge
Rodríguez, Catherine
Hurtado Villa, Paula
Caicedo, Natalia
Botta, Gabriela
Zarante Montoya, Ignacio Manuel
author2_role author
author
author
author
author
author
author
author
author
author
author
dc.subject.none.fl_str_mv ARGENTINA
BIRTH DEFECTS
COLOMBIA
REGISTRIES
SURVEILLANCE
topic ARGENTINA
BIRTH DEFECTS
COLOMBIA
REGISTRIES
SURVEILLANCE
purl_subject.fl_str_mv https://purl.org/becyt/ford/3.3
https://purl.org/becyt/ford/3
dc.description.none.fl_txt_mv Birth defects (BDs) are structural or functional anomalies, sporadic or hereditary, of prenatal origin. Public health surveillance is defined as the ongoing systematic collection, analysis, and interpretation of outcome-specific data for use in the planning, implementation, and evaluation of public health practice. BD surveillance systems may have different characteristics according to design, coverage, type of surveillance, case ascertainment, case definition, BD description, maximum age of diagnosis, pregnancy outcomes, coding systems, and the location of the coding process (central or local). The aim of this article is to describe and compare methodology, applications, and results of birth defect surveillance systems in two South-American countries: Colombia and Argentina. In both countries, the surveillance systems developed activities in relation to the Zika virus emergency. For most BDs, a statistically significant higher prevalence is observed in Argentina-RENAC than in Colombian registries. This may be due to methodological reasons or real differences in prevalence. The strengths, weaknesses, and the future perspectives of the Argentine and Colombian systems are presented. When developing a surveillance system, the objectives, the available resources, and previous experiences in similar contexts must be taken into account. In that sense, the experience of Argentina and Colombia can be useful for others when developing a birth defect surveillance system.
Fil: Groisman, Boris. Dirección Nacional de Instituto de Investigación. Administración Nacional de Laboratorios e Institutos de Salud "Dr. Carlos G. Malbrán". Centro Nacional de Genética Médica; Argentina
Fil: Liascovich, Rosa. Dirección Nacional de Instituto de Investigación. Administración Nacional de Laboratorios e Institutos de Salud "Dr. Carlos G. Malbrán". Centro Nacional de Genética Médica; Argentina
Fil: Bidondo, Maria Paz. Dirección Nacional de Instituto de Investigación. Administración Nacional de Laboratorios e Institutos de Salud "Dr. Carlos G. Malbrán". Centro Nacional de Genética Médica; Argentina
Fil: Barbero, Pablo Miguel. Dirección Nacional de Instituto de Investigación. Administración Nacional de Laboratorios e Institutos de Salud "Dr. Carlos G. Malbrán". Centro Nacional de Genética Médica; Argentina
Fil: Duarte, Santiago Pablo. Dirección Nacional de Instituto de Investigación. Administración Nacional de Laboratorios e Institutos de Salud "Dr. Carlos G. Malbrán". Centro Nacional de Genética Médica; Argentina
Fil: Tellechea, Ana Laura. Dirección Nacional de Instituto de Investigación. Administración Nacional de Laboratorios e Institutos de Salud "Dr. Carlos G. Malbrán". Centro Nacional de Genética Médica; Argentina
Fil: Holguín, Jorge. Pontificia Universidad Javeriana; Colombia
Fil: Rodríguez, Catherine. Secretaría Distrital de Salud; Colombia
Fil: Hurtado Villa, Paula. Pontificia Universidad Javeriana; Colombia
Fil: Caicedo, Natalia. Pontificia Universidad Javeriana; Colombia
Fil: Botta, Gabriela. Pontificia Universidad Javeriana; Colombia
Fil: Zarante Montoya, Ignacio Manuel. Pontificia Universidad Javeriana; Colombia
description Birth defects (BDs) are structural or functional anomalies, sporadic or hereditary, of prenatal origin. Public health surveillance is defined as the ongoing systematic collection, analysis, and interpretation of outcome-specific data for use in the planning, implementation, and evaluation of public health practice. BD surveillance systems may have different characteristics according to design, coverage, type of surveillance, case ascertainment, case definition, BD description, maximum age of diagnosis, pregnancy outcomes, coding systems, and the location of the coding process (central or local). The aim of this article is to describe and compare methodology, applications, and results of birth defect surveillance systems in two South-American countries: Colombia and Argentina. In both countries, the surveillance systems developed activities in relation to the Zika virus emergency. For most BDs, a statistically significant higher prevalence is observed in Argentina-RENAC than in Colombian registries. This may be due to methodological reasons or real differences in prevalence. The strengths, weaknesses, and the future perspectives of the Argentine and Colombian systems are presented. When developing a surveillance system, the objectives, the available resources, and previous experiences in similar contexts must be taken into account. In that sense, the experience of Argentina and Colombia can be useful for others when developing a birth defect surveillance system.
publishDate 2018
dc.date.none.fl_str_mv 2018-12
dc.type.none.fl_str_mv info:eu-repo/semantics/article
info:eu-repo/semantics/publishedVersion
http://purl.org/coar/resource_type/c_6501
info:ar-repo/semantics/articulo
format article
status_str publishedVersion
dc.identifier.none.fl_str_mv http://hdl.handle.net/11336/104559
Groisman, Boris; Liascovich, Rosa; Bidondo, Maria Paz; Barbero, Pablo Miguel; Duarte, Santiago Pablo; et al.; Birth defects surveillance: experiences in Argentina and Colombia; Springer Verlag Berlín; Journal of Community Genetics; 10; 3; 12-2018; 385-393
1868-310X
1868-6001
CONICET Digital
CONICET
url http://hdl.handle.net/11336/104559
identifier_str_mv Groisman, Boris; Liascovich, Rosa; Bidondo, Maria Paz; Barbero, Pablo Miguel; Duarte, Santiago Pablo; et al.; Birth defects surveillance: experiences in Argentina and Colombia; Springer Verlag Berlín; Journal of Community Genetics; 10; 3; 12-2018; 385-393
1868-310X
1868-6001
CONICET Digital
CONICET
dc.language.none.fl_str_mv eng
language eng
dc.relation.none.fl_str_mv info:eu-repo/semantics/altIdentifier/url/https://link.springer.com/article/10.1007%2Fs12687-018-00403-6
info:eu-repo/semantics/altIdentifier/doi/10.1007/s12687-018-00403-6
dc.rights.none.fl_str_mv info:eu-repo/semantics/openAccess
https://creativecommons.org/licenses/by-nc-sa/2.5/ar/
eu_rights_str_mv openAccess
rights_invalid_str_mv https://creativecommons.org/licenses/by-nc-sa/2.5/ar/
dc.format.none.fl_str_mv application/pdf
application/pdf
dc.publisher.none.fl_str_mv Springer Verlag Berlín
publisher.none.fl_str_mv Springer Verlag Berlín
dc.source.none.fl_str_mv reponame:CONICET Digital (CONICET)
instname:Consejo Nacional de Investigaciones Científicas y Técnicas
reponame_str CONICET Digital (CONICET)
collection CONICET Digital (CONICET)
instname_str Consejo Nacional de Investigaciones Científicas y Técnicas
repository.name.fl_str_mv CONICET Digital (CONICET) - Consejo Nacional de Investigaciones Científicas y Técnicas
repository.mail.fl_str_mv dasensio@conicet.gov.ar; lcarlino@conicet.gov.ar
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score 13.070432

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