An examination of advanced cancer caregivers' support provided by staff interventions at hospices in Argentina

Autores
Luxardo, Natalia; Brage, Eugenia; Alvarado, Cynthia
Año de publicación
2012
Idioma
inglés
Tipo de recurso
artículo
Estado
versión publicada
Descripción
The aim of the study was to describe the type of intervention provided by hospice staff in order to address the pragmatic, psycho-social, and spiritual needs of home-caregivers for patients in the last stage of cancer. The qualitative inquiry was carried out in real life contexts. The explicit demands that caregivers (n = 40) identified in the first interviews were: (1) helping to organize the care of the patient at home; (2) unspecific demands, with unclear or unrealistic purposes (e.g., curative treatment or a miracle expected to occur); (3) specific resources (such as formal caregivers to replace them), and (4) a place to leave the patient either for a temporary period (a respite for the family) or in a permanent way. The main issues discussed were the delays in the patients' referral to the hospice and the lack of time for long-term interventions; explicit focus is placed on the care by addressing the spiritual and emotional needs of caregivers, unlike in hospital settings where professionals avoid discussions of spiritual needs due to a lack of time, inadequate training and poor understanding of spirituality; hospices' interventions are based upon an ethos similar to the movement's original Christian spirit with emphasis placed on qualities of care such as love, charity, and compassion besides expertise and end-of-life competence, all while tolerating a sense of abandonment by health and social security systems following the patient's referral.
Fil: Luxardo, Natalia. Consejo Nacional de Investigaciones Científicas y Técnicas; Argentina. Universidad de Buenos Aires; Argentina
Fil: Brage, Eugenia. Consejo Nacional de Investigaciones Científicas y Técnicas; Argentina. Universidad de Buenos Aires; Argentina
Fil: Alvarado, Cynthia. Hospital San Camilo; Argentina
Materia
END-OF-LIFE CARE
FAMILY CAREGIVER
HOSPICE SUPPORT
Nivel de accesibilidad
acceso abierto
Condiciones de uso
https://creativecommons.org/licenses/by/2.5/ar/
Repositorio
CONICET Digital (CONICET)
Institución
Consejo Nacional de Investigaciones Científicas y Técnicas
OAI Identificador
oai:ri.conicet.gov.ar:11336/199410
Acceder
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oai_identifier_str oai:ri.conicet.gov.ar:11336/199410
network_acronym_str CONICETDig
repository_id_str 3498
network_name_str CONICET Digital (CONICET)
spelling An examination of advanced cancer caregivers' support provided by staff interventions at hospices in ArgentinaLuxardo, NataliaBrage, EugeniaAlvarado, CynthiaEND-OF-LIFE CAREFAMILY CAREGIVERHOSPICE SUPPORThttps://purl.org/becyt/ford/5.9https://purl.org/becyt/ford/5The aim of the study was to describe the type of intervention provided by hospice staff in order to address the pragmatic, psycho-social, and spiritual needs of home-caregivers for patients in the last stage of cancer. The qualitative inquiry was carried out in real life contexts. The explicit demands that caregivers (n = 40) identified in the first interviews were: (1) helping to organize the care of the patient at home; (2) unspecific demands, with unclear or unrealistic purposes (e.g., curative treatment or a miracle expected to occur); (3) specific resources (such as formal caregivers to replace them), and (4) a place to leave the patient either for a temporary period (a respite for the family) or in a permanent way. The main issues discussed were the delays in the patients' referral to the hospice and the lack of time for long-term interventions; explicit focus is placed on the care by addressing the spiritual and emotional needs of caregivers, unlike in hospital settings where professionals avoid discussions of spiritual needs due to a lack of time, inadequate training and poor understanding of spirituality; hospices' interventions are based upon an ethos similar to the movement's original Christian spirit with emphasis placed on qualities of care such as love, charity, and compassion besides expertise and end-of-life competence, all while tolerating a sense of abandonment by health and social security systems following the patient's referral.Fil: Luxardo, Natalia. Consejo Nacional de Investigaciones Científicas y Técnicas; Argentina. Universidad de Buenos Aires; ArgentinaFil: Brage, Eugenia. Consejo Nacional de Investigaciones Científicas y Técnicas; Argentina. Universidad de Buenos Aires; ArgentinaFil: Alvarado, Cynthia. Hospital San Camilo; ArgentinaEcancer2012-11info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionhttp://purl.org/coar/resource_type/c_6501info:ar-repo/semantics/articuloapplication/pdfapplication/pdfhttp://hdl.handle.net/11336/199410Luxardo, Natalia; Brage, Eugenia; Alvarado, Cynthia; An examination of advanced cancer caregivers' support provided by staff interventions at hospices in Argentina; Ecancer; ecancermedicalscience; 6; 1; 11-2012; 1-101097-01421754-6605CONICET DigitalCONICETenginfo:eu-repo/semantics/altIdentifier/url/https://ecancer.org/es/journal/article/281-an-examination-of-advanced-cancer-caregivers-support-provided-by-staff-interventions-at-hospices-in-argentinainfo:eu-repo/semantics/altIdentifier/doi/10.3332/ecancer.2012.281info:eu-repo/semantics/openAccesshttps://creativecommons.org/licenses/by/2.5/ar/reponame:CONICET Digital (CONICET)instname:Consejo Nacional de Investigaciones Científicas y Técnicas2025-09-03T09:50:16Zoai:ri.conicet.gov.ar:11336/199410instacron:CONICETInstitucionalhttp://ri.conicet.gov.ar/Organismo científico-tecnológicoNo correspondehttp://ri.conicet.gov.ar/oai/requestdasensio@conicet.gov.ar; lcarlino@conicet.gov.arArgentinaNo correspondeNo correspondeNo correspondeopendoar:34982025-09-03 09:50:16.656CONICET Digital (CONICET) - Consejo Nacional de Investigaciones Científicas y Técnicasfalse
dc.title.none.fl_str_mv An examination of advanced cancer caregivers' support provided by staff interventions at hospices in Argentina
title An examination of advanced cancer caregivers' support provided by staff interventions at hospices in Argentina
spellingShingle An examination of advanced cancer caregivers' support provided by staff interventions at hospices in Argentina
Luxardo, Natalia
END-OF-LIFE CARE
FAMILY CAREGIVER
HOSPICE SUPPORT
title_short An examination of advanced cancer caregivers' support provided by staff interventions at hospices in Argentina
title_full An examination of advanced cancer caregivers' support provided by staff interventions at hospices in Argentina
title_fullStr An examination of advanced cancer caregivers' support provided by staff interventions at hospices in Argentina
title_full_unstemmed An examination of advanced cancer caregivers' support provided by staff interventions at hospices in Argentina
title_sort An examination of advanced cancer caregivers' support provided by staff interventions at hospices in Argentina
dc.creator.none.fl_str_mv Luxardo, Natalia
Brage, Eugenia
Alvarado, Cynthia
author Luxardo, Natalia
author_facet Luxardo, Natalia
Brage, Eugenia
Alvarado, Cynthia
author_role author
author2 Brage, Eugenia
Alvarado, Cynthia
author2_role author
author
dc.subject.none.fl_str_mv END-OF-LIFE CARE
FAMILY CAREGIVER
HOSPICE SUPPORT
topic END-OF-LIFE CARE
FAMILY CAREGIVER
HOSPICE SUPPORT
purl_subject.fl_str_mv https://purl.org/becyt/ford/5.9
https://purl.org/becyt/ford/5
dc.description.none.fl_txt_mv The aim of the study was to describe the type of intervention provided by hospice staff in order to address the pragmatic, psycho-social, and spiritual needs of home-caregivers for patients in the last stage of cancer. The qualitative inquiry was carried out in real life contexts. The explicit demands that caregivers (n = 40) identified in the first interviews were: (1) helping to organize the care of the patient at home; (2) unspecific demands, with unclear or unrealistic purposes (e.g., curative treatment or a miracle expected to occur); (3) specific resources (such as formal caregivers to replace them), and (4) a place to leave the patient either for a temporary period (a respite for the family) or in a permanent way. The main issues discussed were the delays in the patients' referral to the hospice and the lack of time for long-term interventions; explicit focus is placed on the care by addressing the spiritual and emotional needs of caregivers, unlike in hospital settings where professionals avoid discussions of spiritual needs due to a lack of time, inadequate training and poor understanding of spirituality; hospices' interventions are based upon an ethos similar to the movement's original Christian spirit with emphasis placed on qualities of care such as love, charity, and compassion besides expertise and end-of-life competence, all while tolerating a sense of abandonment by health and social security systems following the patient's referral.
Fil: Luxardo, Natalia. Consejo Nacional de Investigaciones Científicas y Técnicas; Argentina. Universidad de Buenos Aires; Argentina
Fil: Brage, Eugenia. Consejo Nacional de Investigaciones Científicas y Técnicas; Argentina. Universidad de Buenos Aires; Argentina
Fil: Alvarado, Cynthia. Hospital San Camilo; Argentina
description The aim of the study was to describe the type of intervention provided by hospice staff in order to address the pragmatic, psycho-social, and spiritual needs of home-caregivers for patients in the last stage of cancer. The qualitative inquiry was carried out in real life contexts. The explicit demands that caregivers (n = 40) identified in the first interviews were: (1) helping to organize the care of the patient at home; (2) unspecific demands, with unclear or unrealistic purposes (e.g., curative treatment or a miracle expected to occur); (3) specific resources (such as formal caregivers to replace them), and (4) a place to leave the patient either for a temporary period (a respite for the family) or in a permanent way. The main issues discussed were the delays in the patients' referral to the hospice and the lack of time for long-term interventions; explicit focus is placed on the care by addressing the spiritual and emotional needs of caregivers, unlike in hospital settings where professionals avoid discussions of spiritual needs due to a lack of time, inadequate training and poor understanding of spirituality; hospices' interventions are based upon an ethos similar to the movement's original Christian spirit with emphasis placed on qualities of care such as love, charity, and compassion besides expertise and end-of-life competence, all while tolerating a sense of abandonment by health and social security systems following the patient's referral.
publishDate 2012
dc.date.none.fl_str_mv 2012-11
dc.type.none.fl_str_mv info:eu-repo/semantics/article
info:eu-repo/semantics/publishedVersion
http://purl.org/coar/resource_type/c_6501
info:ar-repo/semantics/articulo
format article
status_str publishedVersion
dc.identifier.none.fl_str_mv http://hdl.handle.net/11336/199410
Luxardo, Natalia; Brage, Eugenia; Alvarado, Cynthia; An examination of advanced cancer caregivers' support provided by staff interventions at hospices in Argentina; Ecancer; ecancermedicalscience; 6; 1; 11-2012; 1-10
1097-0142
1754-6605
CONICET Digital
CONICET
url http://hdl.handle.net/11336/199410
identifier_str_mv Luxardo, Natalia; Brage, Eugenia; Alvarado, Cynthia; An examination of advanced cancer caregivers' support provided by staff interventions at hospices in Argentina; Ecancer; ecancermedicalscience; 6; 1; 11-2012; 1-10
1097-0142
1754-6605
CONICET Digital
CONICET
dc.language.none.fl_str_mv eng
language eng
dc.relation.none.fl_str_mv info:eu-repo/semantics/altIdentifier/url/https://ecancer.org/es/journal/article/281-an-examination-of-advanced-cancer-caregivers-support-provided-by-staff-interventions-at-hospices-in-argentina
info:eu-repo/semantics/altIdentifier/doi/10.3332/ecancer.2012.281
dc.rights.none.fl_str_mv info:eu-repo/semantics/openAccess
https://creativecommons.org/licenses/by/2.5/ar/
eu_rights_str_mv openAccess
rights_invalid_str_mv https://creativecommons.org/licenses/by/2.5/ar/
dc.format.none.fl_str_mv application/pdf
application/pdf
dc.publisher.none.fl_str_mv Ecancer
publisher.none.fl_str_mv Ecancer
dc.source.none.fl_str_mv reponame:CONICET Digital (CONICET)
instname:Consejo Nacional de Investigaciones Científicas y Técnicas
reponame_str CONICET Digital (CONICET)
collection CONICET Digital (CONICET)
instname_str Consejo Nacional de Investigaciones Científicas y Técnicas
repository.name.fl_str_mv CONICET Digital (CONICET) - Consejo Nacional de Investigaciones Científicas y Técnicas
repository.mail.fl_str_mv dasensio@conicet.gov.ar; lcarlino@conicet.gov.ar
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score 13.13397

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