Advancing the management of primary immunodeficiency diseases in Latin America: Latin American Society for Immunodeficiencies (LASID) Initiatives

Autores
Condino Neto, A.; Franco, J. L.; Espinosa Rosales, F. J.; Leiva, L.E.; King, A.; Porras, O.; Oleastro, M.; Bezrodnik, Liliana; Grumach, A. S.; Costa Carvalho, B. T.; Sorensen, R. U.
Año de publicación
2012
Idioma
inglés
Tipo de recurso
artículo
Estado
versión publicada
Descripción
Primary immunodeficiency diseases (PIDD) are associated with significant morbidity and mortality and result in a significant public health burden. This is in part due to the lack of appropriate diagnosis and treatment of these patients. It is critical that governments become aware of this problem and provide necessary resources to reduce this impact on health care systems. Leading physicians in their respective countries must be supported by their own governments in order to implement tools and provide education and thus improve the diagnosis and treatment of PIDD. The Latin American Society of Primary Immunodeficiencies (LASID) has initiated a large number of activities aimed at achieving these goals, including the establishment of a PIDD registry, development of educational programmes and guidelines, and the introduction of a PIDD fellowship programme. These initiatives are positively impacting the identification and appropriate treatment of patients with PIDD in Latin America. Nevertheless, much remains to be done to ensure that every person with PIDD receives proper therapy.
Fil: Condino Neto, A.. Universidade de Sao Paulo; Brasil
Fil: Franco, J. L.. Universidad de Antioquia; Colombia
Fil: Espinosa Rosales, F. J.. Instituto Nacional de Pediatría; México
Fil: Leiva, L.E.. No especifíca;
Fil: King, A.. Hospital Dr. Luis Calvo Mackenna Hospital; Chile
Fil: Porras, O.. Hospital Nacional de Niños Dr. Carlos Sáenz Herrera; Costa Rica
Fil: Oleastro, M.. Gobierno de la Ciudad de Buenos Aires. Hospital de Pediatría "Juan P. Garrahan"; Argentina
Fil: Bezrodnik, Liliana. Gobierno de la Ciudad de Buenos Aires. Hospital General de Niños "Ricardo Gutiérrez". Área de Inmunología; Argentina. Consejo Nacional de Investigaciones Científicas y Técnicas; Argentina
Fil: Grumach, A. S.. No especifíca;
Fil: Costa Carvalho, B. T.. Universidade Federal de Sao Paulo; Brasil
Fil: Sorensen, R. U.. Universidad de La Frontera; Chile
Materia
GENETIC DISORDERS
IMMUNOGLOBULINS
LATIN AMERICA
PRIMARY IMMUNODEFICIENCY
RECURRENT INFECTIONS
Nivel de accesibilidad
acceso abierto
Condiciones de uso
https://creativecommons.org/licenses/by-nc-sa/2.5/ar/
Repositorio
CONICET Digital (CONICET)
Institución
Consejo Nacional de Investigaciones Científicas y Técnicas
OAI Identificador
oai:ri.conicet.gov.ar:11336/194443
Acceder
id CONICETDig_18fab3e32872dfe5f3457357d66f72a6
oai_identifier_str oai:ri.conicet.gov.ar:11336/194443
network_acronym_str CONICETDig
repository_id_str 3498
network_name_str CONICET Digital (CONICET)
spelling Advancing the management of primary immunodeficiency diseases in Latin America: Latin American Society for Immunodeficiencies (LASID) InitiativesCondino Neto, A.Franco, J. L.Espinosa Rosales, F. J.Leiva, L.E.King, A.Porras, O.Oleastro, M.Bezrodnik, LilianaGrumach, A. S.Costa Carvalho, B. T.Sorensen, R. U.GENETIC DISORDERSIMMUNOGLOBULINSLATIN AMERICAPRIMARY IMMUNODEFICIENCYRECURRENT INFECTIONShttps://purl.org/becyt/ford/3.2https://purl.org/becyt/ford/3Primary immunodeficiency diseases (PIDD) are associated with significant morbidity and mortality and result in a significant public health burden. This is in part due to the lack of appropriate diagnosis and treatment of these patients. It is critical that governments become aware of this problem and provide necessary resources to reduce this impact on health care systems. Leading physicians in their respective countries must be supported by their own governments in order to implement tools and provide education and thus improve the diagnosis and treatment of PIDD. The Latin American Society of Primary Immunodeficiencies (LASID) has initiated a large number of activities aimed at achieving these goals, including the establishment of a PIDD registry, development of educational programmes and guidelines, and the introduction of a PIDD fellowship programme. These initiatives are positively impacting the identification and appropriate treatment of patients with PIDD in Latin America. Nevertheless, much remains to be done to ensure that every person with PIDD receives proper therapy.Fil: Condino Neto, A.. Universidade de Sao Paulo; BrasilFil: Franco, J. L.. Universidad de Antioquia; ColombiaFil: Espinosa Rosales, F. J.. Instituto Nacional de Pediatría; MéxicoFil: Leiva, L.E.. No especifíca;Fil: King, A.. Hospital Dr. Luis Calvo Mackenna Hospital; ChileFil: Porras, O.. Hospital Nacional de Niños Dr. Carlos Sáenz Herrera; Costa RicaFil: Oleastro, M.. Gobierno de la Ciudad de Buenos Aires. Hospital de Pediatría "Juan P. Garrahan"; ArgentinaFil: Bezrodnik, Liliana. Gobierno de la Ciudad de Buenos Aires. Hospital General de Niños "Ricardo Gutiérrez". Área de Inmunología; Argentina. Consejo Nacional de Investigaciones Científicas y Técnicas; ArgentinaFil: Grumach, A. S.. No especifíca;Fil: Costa Carvalho, B. T.. Universidade Federal de Sao Paulo; BrasilFil: Sorensen, R. U.. Universidad de La Frontera; ChileElsevier Doyma Sl2012-01info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionhttp://purl.org/coar/resource_type/c_6501info:ar-repo/semantics/articuloapplication/pdfapplication/pdfhttp://hdl.handle.net/11336/194443Condino Neto, A.; Franco, J. L.; Espinosa Rosales, F. J.; Leiva, L.E.; King, A.; et al.; Advancing the management of primary immunodeficiency diseases in Latin America: Latin American Society for Immunodeficiencies (LASID) Initiatives; Elsevier Doyma Sl; Allergologia Et Immunopathologia.; 40; 3; 1-2012; 187-1930301-0546CONICET DigitalCONICETenginfo:eu-repo/semantics/altIdentifier/doi/10.1016/j.aller.2012.01.003info:eu-repo/semantics/openAccesshttps://creativecommons.org/licenses/by-nc-sa/2.5/ar/reponame:CONICET Digital (CONICET)instname:Consejo Nacional de Investigaciones Científicas y Técnicas2025-10-22T11:55:07Zoai:ri.conicet.gov.ar:11336/194443instacron:CONICETInstitucionalhttp://ri.conicet.gov.ar/Organismo científico-tecnológicoNo correspondehttp://ri.conicet.gov.ar/oai/requestdasensio@conicet.gov.ar; lcarlino@conicet.gov.arArgentinaNo correspondeNo correspondeNo correspondeopendoar:34982025-10-22 11:55:08.038CONICET Digital (CONICET) - Consejo Nacional de Investigaciones Científicas y Técnicasfalse
dc.title.none.fl_str_mv Advancing the management of primary immunodeficiency diseases in Latin America: Latin American Society for Immunodeficiencies (LASID) Initiatives
title Advancing the management of primary immunodeficiency diseases in Latin America: Latin American Society for Immunodeficiencies (LASID) Initiatives
spellingShingle Advancing the management of primary immunodeficiency diseases in Latin America: Latin American Society for Immunodeficiencies (LASID) Initiatives
Condino Neto, A.
GENETIC DISORDERS
IMMUNOGLOBULINS
LATIN AMERICA
PRIMARY IMMUNODEFICIENCY
RECURRENT INFECTIONS
title_short Advancing the management of primary immunodeficiency diseases in Latin America: Latin American Society for Immunodeficiencies (LASID) Initiatives
title_full Advancing the management of primary immunodeficiency diseases in Latin America: Latin American Society for Immunodeficiencies (LASID) Initiatives
title_fullStr Advancing the management of primary immunodeficiency diseases in Latin America: Latin American Society for Immunodeficiencies (LASID) Initiatives
title_full_unstemmed Advancing the management of primary immunodeficiency diseases in Latin America: Latin American Society for Immunodeficiencies (LASID) Initiatives
title_sort Advancing the management of primary immunodeficiency diseases in Latin America: Latin American Society for Immunodeficiencies (LASID) Initiatives
dc.creator.none.fl_str_mv Condino Neto, A.
Franco, J. L.
Espinosa Rosales, F. J.
Leiva, L.E.
King, A.
Porras, O.
Oleastro, M.
Bezrodnik, Liliana
Grumach, A. S.
Costa Carvalho, B. T.
Sorensen, R. U.
author Condino Neto, A.
author_facet Condino Neto, A.
Franco, J. L.
Espinosa Rosales, F. J.
Leiva, L.E.
King, A.
Porras, O.
Oleastro, M.
Bezrodnik, Liliana
Grumach, A. S.
Costa Carvalho, B. T.
Sorensen, R. U.
author_role author
author2 Franco, J. L.
Espinosa Rosales, F. J.
Leiva, L.E.
King, A.
Porras, O.
Oleastro, M.
Bezrodnik, Liliana
Grumach, A. S.
Costa Carvalho, B. T.
Sorensen, R. U.
author2_role author
author
author
author
author
author
author
author
author
author
dc.subject.none.fl_str_mv GENETIC DISORDERS
IMMUNOGLOBULINS
LATIN AMERICA
PRIMARY IMMUNODEFICIENCY
RECURRENT INFECTIONS
topic GENETIC DISORDERS
IMMUNOGLOBULINS
LATIN AMERICA
PRIMARY IMMUNODEFICIENCY
RECURRENT INFECTIONS
purl_subject.fl_str_mv https://purl.org/becyt/ford/3.2
https://purl.org/becyt/ford/3
dc.description.none.fl_txt_mv Primary immunodeficiency diseases (PIDD) are associated with significant morbidity and mortality and result in a significant public health burden. This is in part due to the lack of appropriate diagnosis and treatment of these patients. It is critical that governments become aware of this problem and provide necessary resources to reduce this impact on health care systems. Leading physicians in their respective countries must be supported by their own governments in order to implement tools and provide education and thus improve the diagnosis and treatment of PIDD. The Latin American Society of Primary Immunodeficiencies (LASID) has initiated a large number of activities aimed at achieving these goals, including the establishment of a PIDD registry, development of educational programmes and guidelines, and the introduction of a PIDD fellowship programme. These initiatives are positively impacting the identification and appropriate treatment of patients with PIDD in Latin America. Nevertheless, much remains to be done to ensure that every person with PIDD receives proper therapy.
Fil: Condino Neto, A.. Universidade de Sao Paulo; Brasil
Fil: Franco, J. L.. Universidad de Antioquia; Colombia
Fil: Espinosa Rosales, F. J.. Instituto Nacional de Pediatría; México
Fil: Leiva, L.E.. No especifíca;
Fil: King, A.. Hospital Dr. Luis Calvo Mackenna Hospital; Chile
Fil: Porras, O.. Hospital Nacional de Niños Dr. Carlos Sáenz Herrera; Costa Rica
Fil: Oleastro, M.. Gobierno de la Ciudad de Buenos Aires. Hospital de Pediatría "Juan P. Garrahan"; Argentina
Fil: Bezrodnik, Liliana. Gobierno de la Ciudad de Buenos Aires. Hospital General de Niños "Ricardo Gutiérrez". Área de Inmunología; Argentina. Consejo Nacional de Investigaciones Científicas y Técnicas; Argentina
Fil: Grumach, A. S.. No especifíca;
Fil: Costa Carvalho, B. T.. Universidade Federal de Sao Paulo; Brasil
Fil: Sorensen, R. U.. Universidad de La Frontera; Chile
description Primary immunodeficiency diseases (PIDD) are associated with significant morbidity and mortality and result in a significant public health burden. This is in part due to the lack of appropriate diagnosis and treatment of these patients. It is critical that governments become aware of this problem and provide necessary resources to reduce this impact on health care systems. Leading physicians in their respective countries must be supported by their own governments in order to implement tools and provide education and thus improve the diagnosis and treatment of PIDD. The Latin American Society of Primary Immunodeficiencies (LASID) has initiated a large number of activities aimed at achieving these goals, including the establishment of a PIDD registry, development of educational programmes and guidelines, and the introduction of a PIDD fellowship programme. These initiatives are positively impacting the identification and appropriate treatment of patients with PIDD in Latin America. Nevertheless, much remains to be done to ensure that every person with PIDD receives proper therapy.
publishDate 2012
dc.date.none.fl_str_mv 2012-01
dc.type.none.fl_str_mv info:eu-repo/semantics/article
info:eu-repo/semantics/publishedVersion
http://purl.org/coar/resource_type/c_6501
info:ar-repo/semantics/articulo
format article
status_str publishedVersion
dc.identifier.none.fl_str_mv http://hdl.handle.net/11336/194443
Condino Neto, A.; Franco, J. L.; Espinosa Rosales, F. J.; Leiva, L.E.; King, A.; et al.; Advancing the management of primary immunodeficiency diseases in Latin America: Latin American Society for Immunodeficiencies (LASID) Initiatives; Elsevier Doyma Sl; Allergologia Et Immunopathologia.; 40; 3; 1-2012; 187-193
0301-0546
CONICET Digital
CONICET
url http://hdl.handle.net/11336/194443
identifier_str_mv Condino Neto, A.; Franco, J. L.; Espinosa Rosales, F. J.; Leiva, L.E.; King, A.; et al.; Advancing the management of primary immunodeficiency diseases in Latin America: Latin American Society for Immunodeficiencies (LASID) Initiatives; Elsevier Doyma Sl; Allergologia Et Immunopathologia.; 40; 3; 1-2012; 187-193
0301-0546
CONICET Digital
CONICET
dc.language.none.fl_str_mv eng
language eng
dc.relation.none.fl_str_mv info:eu-repo/semantics/altIdentifier/doi/10.1016/j.aller.2012.01.003
dc.rights.none.fl_str_mv info:eu-repo/semantics/openAccess
https://creativecommons.org/licenses/by-nc-sa/2.5/ar/
eu_rights_str_mv openAccess
rights_invalid_str_mv https://creativecommons.org/licenses/by-nc-sa/2.5/ar/
dc.format.none.fl_str_mv application/pdf
application/pdf
dc.publisher.none.fl_str_mv Elsevier Doyma Sl
publisher.none.fl_str_mv Elsevier Doyma Sl
dc.source.none.fl_str_mv reponame:CONICET Digital (CONICET)
instname:Consejo Nacional de Investigaciones Científicas y Técnicas
reponame_str CONICET Digital (CONICET)
collection CONICET Digital (CONICET)
instname_str Consejo Nacional de Investigaciones Científicas y Técnicas
repository.name.fl_str_mv CONICET Digital (CONICET) - Consejo Nacional de Investigaciones Científicas y Técnicas
repository.mail.fl_str_mv dasensio@conicet.gov.ar; lcarlino@conicet.gov.ar
_version_ 1846782252870008832
score 12.982451

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