Care in subsequent pregnancies following stillbirth: an international survey of parents
- Autores
- Wojcieszek, A.M.; Boyle, F.M.; Belizan, Jose; Cassidy, J; Cassidy, P; Erwich, J.J.H.M.; Farrales, L; Gross, MM; Heazell, A.E.P; Leisher, S.H.; Mills, T; Murphy, M; Pettersson, K; Ravaldi, C; Ruidiaz, J; Siassakos, D; Silver, R.M.; Storey, C; Vannacci, A; Middleton, P; Ellwood, D; Flenady, V
- Año de publicación
- 2016
- Idioma
- inglés
- Tipo de recurso
- artículo
- Estado
- versión publicada
- Descripción
- OBJECTIVE: To assess the frequency of additional care, and parents' perceptions of quality, respectful care, in pregnancies subsequent to stillbirth. DESIGN: Multi-language web-based survey. SETTING: International. POPULATION: A total of 2716 parents, from 40 high- and middle-income countries. METHODS: Data were obtained from a broader survey of parents' experiences following stillbirth. Data were analysed using descriptive statistics and stratified by geographic region. Subgroup analyses explored variation in additional care by gestational age at index stillbirth. MAIN OUTCOME MEASURES: Frequency of additional care, and perceptions of quality, respectful care. RESULTS: The majority (66%) of parents conceived their subsequent pregnancy within 1 year of stillbirth. Additional antenatal care visits and ultrasound scans were provided for 67% and 70% of all parents, respectively, although there was wide variation across geographic regions. Care addressing psychosocial needs was less frequently provided, such as additional visits to a bereavement counsellor (10%) and access to named care provider's phone number (27%). Compared with parents whose stillbirth occurred at ≤ 29 weeks of gestation, parents whose stillbirth occurred at ≥ 30 weeks of gestation were more likely to receive various forms of additional care, particularly the option for early delivery after 37 weeks. Around half (47-63%) of all parents felt that elements of quality, respectful care were consistently applied, such as spending enough time with parents and involving parents in decision-making. CONCLUSIONS: Greater attention is required to providing thoughtful, empathic and collaborative care in all pregnancies following stillbirth. Specific education and training for health professionals is needed.
Fil: Wojcieszek, A.M.. The University Of Queensland; Australia
Fil: Boyle, F.M.. The University Of Queensland; Australia
Fil: Belizan, Jose. Consejo Nacional de Investigaciones Científicas y Técnicas; Argentina. International Stillbirth Alliance; Reino Unido. Instituto de Eficacia Clínica y Política de Salud; Argentina
Fil: Cassidy, J. International Stillbirth Alliance; Reino Unido. Umamanita; España
Fil: Cassidy, P. International Stillbirth Alliance; Reino Unido. Umamanita; España
Fil: Erwich, J.J.H.M.. International Stillbirth Alliance; Reino Unido. University of Groningen; Países Bajos
Fil: Farrales, L. International Stillbirth Alliance; Reino Unido. University of British Columbia; Canadá. Research and Support Society; Canadá
Fil: Gross, MM. International Stillbirth Alliance; Reino Unido. Hannover Medical School; Alemania. Universitat Zurich; Suiza
Fil: Heazell, A.E.P. International Stillbirth Alliance; Reino Unido. University of Manchester; Reino Unido. Manchester Academic Health Science Centre; Reino Unido
Fil: Leisher, S.H.. International Stillbirth Alliance; Reino Unido. The University Of Queensland; Australia
Fil: Mills, T. University of Manchester; Reino Unido
Fil: Murphy, M. International Stillbirth Alliance; Reino Unido. University College Cork; Irlanda
Fil: Pettersson, K. International Stillbirth Alliance; Reino Unido. Karolinska University; Suecia
Fil: Ravaldi, C. International Stillbirth Alliance; Reino Unido. Ciao Lapo Onlus; Italia
Fil: Ruidiaz, J. International Stillbirth Alliance; Reino Unido. Era en Abril; Argentina
Fil: Siassakos, D. International Stillbirth Alliance; Reino Unido. University of Bristol; Reino Unido
Fil: Silver, R.M.. International Stillbirth Alliance; Reino Unido. University of Utah; Estados Unidos
Fil: Storey, C. International Stillbirth Alliance; Reino Unido
Fil: Vannacci, A. International Stillbirth Alliance; Reino Unido. Ciao Lapo Onlus; Italia. University of Florence; Italia
Fil: Middleton, P. International Stillbirth Alliance; Reino Unido. South Australian Health and Medical Research Institute; Australia
Fil: Ellwood, D. International Stillbirth Alliance; Reino Unido. Griffith University and Gold Coast University ; Australia
Fil: Flenady, V. International Stillbirth Alliance; Reino Unido. University of Queensland; Australia - Materia
- Stillbirth
- Nivel de accesibilidad
- acceso abierto
- Condiciones de uso
- https://creativecommons.org/licenses/by-nc-sa/2.5/ar/
- Repositorio
.jpg)
- Institución
- Consejo Nacional de Investigaciones Científicas y Técnicas
- OAI Identificador
- oai:ri.conicet.gov.ar:11336/47650
Ver los metadatos del registro completo
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Care in subsequent pregnancies following stillbirth: an international survey of parentsWojcieszek, A.M.Boyle, F.M.Belizan, JoseCassidy, JCassidy, PErwich, J.J.H.M.Farrales, LGross, MMHeazell, A.E.PLeisher, S.H.Mills, TMurphy, MPettersson, KRavaldi, CRuidiaz, JSiassakos, DSilver, R.M.Storey, CVannacci, AMiddleton, PEllwood, DFlenady, VStillbirthhttps://purl.org/becyt/ford/3.2https://purl.org/becyt/ford/3OBJECTIVE: To assess the frequency of additional care, and parents' perceptions of quality, respectful care, in pregnancies subsequent to stillbirth. DESIGN: Multi-language web-based survey. SETTING: International. POPULATION: A total of 2716 parents, from 40 high- and middle-income countries. METHODS: Data were obtained from a broader survey of parents' experiences following stillbirth. Data were analysed using descriptive statistics and stratified by geographic region. Subgroup analyses explored variation in additional care by gestational age at index stillbirth. MAIN OUTCOME MEASURES: Frequency of additional care, and perceptions of quality, respectful care. RESULTS: The majority (66%) of parents conceived their subsequent pregnancy within 1 year of stillbirth. Additional antenatal care visits and ultrasound scans were provided for 67% and 70% of all parents, respectively, although there was wide variation across geographic regions. Care addressing psychosocial needs was less frequently provided, such as additional visits to a bereavement counsellor (10%) and access to named care provider's phone number (27%). Compared with parents whose stillbirth occurred at ≤ 29 weeks of gestation, parents whose stillbirth occurred at ≥ 30 weeks of gestation were more likely to receive various forms of additional care, particularly the option for early delivery after 37 weeks. Around half (47-63%) of all parents felt that elements of quality, respectful care were consistently applied, such as spending enough time with parents and involving parents in decision-making. CONCLUSIONS: Greater attention is required to providing thoughtful, empathic and collaborative care in all pregnancies following stillbirth. Specific education and training for health professionals is needed.Fil: Wojcieszek, A.M.. The University Of Queensland; AustraliaFil: Boyle, F.M.. The University Of Queensland; AustraliaFil: Belizan, Jose. Consejo Nacional de Investigaciones Científicas y Técnicas; Argentina. International Stillbirth Alliance; Reino Unido. Instituto de Eficacia Clínica y Política de Salud; ArgentinaFil: Cassidy, J. International Stillbirth Alliance; Reino Unido. Umamanita; EspañaFil: Cassidy, P. International Stillbirth Alliance; Reino Unido. Umamanita; EspañaFil: Erwich, J.J.H.M.. International Stillbirth Alliance; Reino Unido. University of Groningen; Países BajosFil: Farrales, L. International Stillbirth Alliance; Reino Unido. University of British Columbia; Canadá. Research and Support Society; CanadáFil: Gross, MM. International Stillbirth Alliance; Reino Unido. Hannover Medical School; Alemania. Universitat Zurich; SuizaFil: Heazell, A.E.P. International Stillbirth Alliance; Reino Unido. University of Manchester; Reino Unido. Manchester Academic Health Science Centre; Reino UnidoFil: Leisher, S.H.. International Stillbirth Alliance; Reino Unido. The University Of Queensland; AustraliaFil: Mills, T. University of Manchester; Reino UnidoFil: Murphy, M. International Stillbirth Alliance; Reino Unido. University College Cork; IrlandaFil: Pettersson, K. International Stillbirth Alliance; Reino Unido. Karolinska University; SueciaFil: Ravaldi, C. International Stillbirth Alliance; Reino Unido. Ciao Lapo Onlus; ItaliaFil: Ruidiaz, J. International Stillbirth Alliance; Reino Unido. Era en Abril; ArgentinaFil: Siassakos, D. International Stillbirth Alliance; Reino Unido. University of Bristol; Reino UnidoFil: Silver, R.M.. International Stillbirth Alliance; Reino Unido. University of Utah; Estados UnidosFil: Storey, C. International Stillbirth Alliance; Reino UnidoFil: Vannacci, A. International Stillbirth Alliance; Reino Unido. Ciao Lapo Onlus; Italia. University of Florence; ItaliaFil: Middleton, P. International Stillbirth Alliance; Reino Unido. South Australian Health and Medical Research Institute; AustraliaFil: Ellwood, D. International Stillbirth Alliance; Reino Unido. Griffith University and Gold Coast University ; AustraliaFil: Flenady, V. International Stillbirth Alliance; Reino Unido. University of Queensland; AustraliaWiley Blackwell Publishing, Inc2016-11info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionhttp://purl.org/coar/resource_type/c_6501info:ar-repo/semantics/articuloapplication/pdfapplication/vnd.openxmlformats-officedocument.wordprocessingml.documentapplication/pdfhttp://hdl.handle.net/11336/47650Wojcieszek, A.M.; Boyle, F.M.; Belizan, Jose; Cassidy, J; Cassidy, P; et al.; Care in subsequent pregnancies following stillbirth: an international survey of parents; Wiley Blackwell Publishing, Inc; BJOG - An International Journal of Obstetrics and Gynaecology; 125; 2; 11-20161470-0328CONICET DigitalCONICETenginfo:eu-repo/semantics/altIdentifier/doi/10.1111/1471-0528.14424info:eu-repo/semantics/altIdentifier/url/https://obgyn.onlinelibrary.wiley.com/doi/abs/10.1111/1471-0528.14424info:eu-repo/semantics/openAccesshttps://creativecommons.org/licenses/by-nc-sa/2.5/ar/reponame:CONICET Digital (CONICET)instname:Consejo Nacional de Investigaciones Científicas y Técnicas2025-10-15T15:17:28Zoai:ri.conicet.gov.ar:11336/47650instacron:CONICETInstitucionalhttp://ri.conicet.gov.ar/Organismo científico-tecnológicoNo correspondehttp://ri.conicet.gov.ar/oai/requestdasensio@conicet.gov.ar; lcarlino@conicet.gov.arArgentinaNo correspondeNo correspondeNo correspondeopendoar:34982025-10-15 15:17:28.559CONICET Digital (CONICET) - Consejo Nacional de Investigaciones Científicas y Técnicasfalse |
| dc.title.none.fl_str_mv |
Care in subsequent pregnancies following stillbirth: an international survey of parents |
| title |
Care in subsequent pregnancies following stillbirth: an international survey of parents |
| spellingShingle |
Care in subsequent pregnancies following stillbirth: an international survey of parents Wojcieszek, A.M. Stillbirth |
| title_short |
Care in subsequent pregnancies following stillbirth: an international survey of parents |
| title_full |
Care in subsequent pregnancies following stillbirth: an international survey of parents |
| title_fullStr |
Care in subsequent pregnancies following stillbirth: an international survey of parents |
| title_full_unstemmed |
Care in subsequent pregnancies following stillbirth: an international survey of parents |
| title_sort |
Care in subsequent pregnancies following stillbirth: an international survey of parents |
| dc.creator.none.fl_str_mv |
Wojcieszek, A.M. Boyle, F.M. Belizan, Jose Cassidy, J Cassidy, P Erwich, J.J.H.M. Farrales, L Gross, MM Heazell, A.E.P Leisher, S.H. Mills, T Murphy, M Pettersson, K Ravaldi, C Ruidiaz, J Siassakos, D Silver, R.M. Storey, C Vannacci, A Middleton, P Ellwood, D Flenady, V |
| author |
Wojcieszek, A.M. |
| author_facet |
Wojcieszek, A.M. Boyle, F.M. Belizan, Jose Cassidy, J Cassidy, P Erwich, J.J.H.M. Farrales, L Gross, MM Heazell, A.E.P Leisher, S.H. Mills, T Murphy, M Pettersson, K Ravaldi, C Ruidiaz, J Siassakos, D Silver, R.M. Storey, C Vannacci, A Middleton, P Ellwood, D Flenady, V |
| author_role |
author |
| author2 |
Boyle, F.M. Belizan, Jose Cassidy, J Cassidy, P Erwich, J.J.H.M. Farrales, L Gross, MM Heazell, A.E.P Leisher, S.H. Mills, T Murphy, M Pettersson, K Ravaldi, C Ruidiaz, J Siassakos, D Silver, R.M. Storey, C Vannacci, A Middleton, P Ellwood, D Flenady, V |
| author2_role |
author author author author author author author author author author author author author author author author author author author author author |
| dc.subject.none.fl_str_mv |
Stillbirth |
| topic |
Stillbirth |
| purl_subject.fl_str_mv |
https://purl.org/becyt/ford/3.2 https://purl.org/becyt/ford/3 |
| dc.description.none.fl_txt_mv |
OBJECTIVE: To assess the frequency of additional care, and parents' perceptions of quality, respectful care, in pregnancies subsequent to stillbirth. DESIGN: Multi-language web-based survey. SETTING: International. POPULATION: A total of 2716 parents, from 40 high- and middle-income countries. METHODS: Data were obtained from a broader survey of parents' experiences following stillbirth. Data were analysed using descriptive statistics and stratified by geographic region. Subgroup analyses explored variation in additional care by gestational age at index stillbirth. MAIN OUTCOME MEASURES: Frequency of additional care, and perceptions of quality, respectful care. RESULTS: The majority (66%) of parents conceived their subsequent pregnancy within 1 year of stillbirth. Additional antenatal care visits and ultrasound scans were provided for 67% and 70% of all parents, respectively, although there was wide variation across geographic regions. Care addressing psychosocial needs was less frequently provided, such as additional visits to a bereavement counsellor (10%) and access to named care provider's phone number (27%). Compared with parents whose stillbirth occurred at ≤ 29 weeks of gestation, parents whose stillbirth occurred at ≥ 30 weeks of gestation were more likely to receive various forms of additional care, particularly the option for early delivery after 37 weeks. Around half (47-63%) of all parents felt that elements of quality, respectful care were consistently applied, such as spending enough time with parents and involving parents in decision-making. CONCLUSIONS: Greater attention is required to providing thoughtful, empathic and collaborative care in all pregnancies following stillbirth. Specific education and training for health professionals is needed. Fil: Wojcieszek, A.M.. The University Of Queensland; Australia Fil: Boyle, F.M.. The University Of Queensland; Australia Fil: Belizan, Jose. Consejo Nacional de Investigaciones Científicas y Técnicas; Argentina. International Stillbirth Alliance; Reino Unido. Instituto de Eficacia Clínica y Política de Salud; Argentina Fil: Cassidy, J. International Stillbirth Alliance; Reino Unido. Umamanita; España Fil: Cassidy, P. International Stillbirth Alliance; Reino Unido. Umamanita; España Fil: Erwich, J.J.H.M.. International Stillbirth Alliance; Reino Unido. University of Groningen; Países Bajos Fil: Farrales, L. International Stillbirth Alliance; Reino Unido. University of British Columbia; Canadá. Research and Support Society; Canadá Fil: Gross, MM. International Stillbirth Alliance; Reino Unido. Hannover Medical School; Alemania. Universitat Zurich; Suiza Fil: Heazell, A.E.P. International Stillbirth Alliance; Reino Unido. University of Manchester; Reino Unido. Manchester Academic Health Science Centre; Reino Unido Fil: Leisher, S.H.. International Stillbirth Alliance; Reino Unido. The University Of Queensland; Australia Fil: Mills, T. University of Manchester; Reino Unido Fil: Murphy, M. International Stillbirth Alliance; Reino Unido. University College Cork; Irlanda Fil: Pettersson, K. International Stillbirth Alliance; Reino Unido. Karolinska University; Suecia Fil: Ravaldi, C. International Stillbirth Alliance; Reino Unido. Ciao Lapo Onlus; Italia Fil: Ruidiaz, J. International Stillbirth Alliance; Reino Unido. Era en Abril; Argentina Fil: Siassakos, D. International Stillbirth Alliance; Reino Unido. University of Bristol; Reino Unido Fil: Silver, R.M.. International Stillbirth Alliance; Reino Unido. University of Utah; Estados Unidos Fil: Storey, C. International Stillbirth Alliance; Reino Unido Fil: Vannacci, A. International Stillbirth Alliance; Reino Unido. Ciao Lapo Onlus; Italia. University of Florence; Italia Fil: Middleton, P. International Stillbirth Alliance; Reino Unido. South Australian Health and Medical Research Institute; Australia Fil: Ellwood, D. International Stillbirth Alliance; Reino Unido. Griffith University and Gold Coast University ; Australia Fil: Flenady, V. International Stillbirth Alliance; Reino Unido. University of Queensland; Australia |
| description |
OBJECTIVE: To assess the frequency of additional care, and parents' perceptions of quality, respectful care, in pregnancies subsequent to stillbirth. DESIGN: Multi-language web-based survey. SETTING: International. POPULATION: A total of 2716 parents, from 40 high- and middle-income countries. METHODS: Data were obtained from a broader survey of parents' experiences following stillbirth. Data were analysed using descriptive statistics and stratified by geographic region. Subgroup analyses explored variation in additional care by gestational age at index stillbirth. MAIN OUTCOME MEASURES: Frequency of additional care, and perceptions of quality, respectful care. RESULTS: The majority (66%) of parents conceived their subsequent pregnancy within 1 year of stillbirth. Additional antenatal care visits and ultrasound scans were provided for 67% and 70% of all parents, respectively, although there was wide variation across geographic regions. Care addressing psychosocial needs was less frequently provided, such as additional visits to a bereavement counsellor (10%) and access to named care provider's phone number (27%). Compared with parents whose stillbirth occurred at ≤ 29 weeks of gestation, parents whose stillbirth occurred at ≥ 30 weeks of gestation were more likely to receive various forms of additional care, particularly the option for early delivery after 37 weeks. Around half (47-63%) of all parents felt that elements of quality, respectful care were consistently applied, such as spending enough time with parents and involving parents in decision-making. CONCLUSIONS: Greater attention is required to providing thoughtful, empathic and collaborative care in all pregnancies following stillbirth. Specific education and training for health professionals is needed. |
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2016 |
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2016-11 |
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http://hdl.handle.net/11336/47650 Wojcieszek, A.M.; Boyle, F.M.; Belizan, Jose; Cassidy, J; Cassidy, P; et al.; Care in subsequent pregnancies following stillbirth: an international survey of parents; Wiley Blackwell Publishing, Inc; BJOG - An International Journal of Obstetrics and Gynaecology; 125; 2; 11-2016 1470-0328 CONICET Digital CONICET |
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http://hdl.handle.net/11336/47650 |
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Wojcieszek, A.M.; Boyle, F.M.; Belizan, Jose; Cassidy, J; Cassidy, P; et al.; Care in subsequent pregnancies following stillbirth: an international survey of parents; Wiley Blackwell Publishing, Inc; BJOG - An International Journal of Obstetrics and Gynaecology; 125; 2; 11-2016 1470-0328 CONICET Digital CONICET |
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eng |
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Wiley Blackwell Publishing, Inc |
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