ICF-based functioning profiles in children and adolescents with cerebral palsy: Evidence from a population-based study in Argentina

Autores
Escobar Zuluaga, Leidy Johana; Ruiz Brunner, María de Las Mercedes; Cuestas, Eduardo; Cieri, Maria Elisabeth; Condinanzi, Ana Laura; Ayllon, Carolina; Schiariti, Verónica
Año de publicación
2025
Idioma
inglés
Tipo de recurso
artículo
Estado
versión publicada
Descripción
Purpose: In Argentina, there is no consensus on the functional assessment of children with cerebral palsy (CP). The International Classification of Functioning, Disability and Health (ICF) Core Sets for children with CP are tools that standardize clinical functional assessments. The aim was to build functioning profiles of children with CP aged 2 to 18 years in eight Argentine cities, to identify their functional needs and contribute to improving assessment processes. Methods: Cross-sectional study, developed in stages. This article describes the last stage, the creation of the functional profile of a sample surveyed in eight cities. Twenty-five categories established in the common abbreviated core set of CP were evaluated through the application of a protocol called PC-CIFuncional (previously created). This protocol consists of scales or culturally sensitive instruments, assessed through clinical evaluations and questionnaires for children and families. Results: One hundred thirty-three functioning profiles were built using the previously developed PC-CIFuncional protocol. Of the participants, 52.7% had severe motor compromise with Gross Motor Function Classification System (GMFCS) levels IV and V. In children at GMFCS level IV-V, most categories in activities and participation—including recreation, communication and physical activity—showed severe limitations and restrictions, compared with their peers. The use of technology for daily living and mobility in children with less motor compromise (GMFCS level I-III) was neither a facilitator nor a barrier, but in children with greater compromise it was a complete facilitator. Conclusions: Differences in functional needs were identified in children with CP according to motor involvement. This project standardizes the identification of functional needs and therapeutic goals based on ICF language, creating novel functioning profiles in Argentina.
Fil: Escobar Zuluaga, Leidy Johana. Consejo Nacional de Investigaciones Científicas y Técnicas. Centro Científico Tecnológico Conicet - Córdoba. Instituto de Investigaciones en Ciencias de la Salud. Universidad Nacional de Córdoba. Instituto de Investigaciones en Ciencias de la Salud; Argentina
Fil: Ruiz Brunner, María de Las Mercedes. Consejo Nacional de Investigaciones Científicas y Técnicas. Centro Científico Tecnológico Conicet - Córdoba. Instituto de Investigaciones en Ciencias de la Salud. Universidad Nacional de Córdoba. Instituto de Investigaciones en Ciencias de la Salud; Argentina
Fil: Cuestas, Eduardo. Consejo Nacional de Investigaciones Científicas y Técnicas. Centro Científico Tecnológico Conicet - Córdoba. Instituto de Investigaciones en Ciencias de la Salud. Universidad Nacional de Córdoba. Instituto de Investigaciones en Ciencias de la Salud; Argentina
Fil: Cieri, Maria Elisabeth. Consejo Nacional de Investigaciones Científicas y Técnicas. Centro Científico Tecnológico Conicet - Córdoba. Instituto de Investigaciones en Ciencias de la Salud. Universidad Nacional de Córdoba. Instituto de Investigaciones en Ciencias de la Salud; Argentina
Fil: Condinanzi, Ana Laura. Consejo Nacional de Investigaciones Científicas y Técnicas. Centro Científico Tecnológico Conicet - Córdoba. Instituto de Investigaciones en Ciencias de la Salud. Universidad Nacional de Córdoba. Instituto de Investigaciones en Ciencias de la Salud; Argentina
Fil: Ayllon, Carolina. Provincia de Buenos Aires. Ministerio de Salud. Hospital de Niños "Sor María Ludovica" de La Plata; Argentina
Fil: Schiariti, Verónica. University of Victoria; Canadá
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https://creativecommons.org/licenses/by-nc/2.5/ar/
Repositorio
CONICET Digital (CONICET)
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Consejo Nacional de Investigaciones Científicas y Técnicas
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oai:ri.conicet.gov.ar:11336/278632
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spelling ICF-based functioning profiles in children and adolescents with cerebral palsy: Evidence from a population-based study in ArgentinaEscobar Zuluaga, Leidy JohanaRuiz Brunner, María de Las MercedesCuestas, EduardoCieri, Maria ElisabethCondinanzi, Ana LauraAyllon, CarolinaSchiariti, VerónicaDISCAPACIDADNIÑOSPARÁLISIS CEREBRALhttps://purl.org/becyt/ford/3.2https://purl.org/becyt/ford/3Purpose: In Argentina, there is no consensus on the functional assessment of children with cerebral palsy (CP). The International Classification of Functioning, Disability and Health (ICF) Core Sets for children with CP are tools that standardize clinical functional assessments. The aim was to build functioning profiles of children with CP aged 2 to 18 years in eight Argentine cities, to identify their functional needs and contribute to improving assessment processes. Methods: Cross-sectional study, developed in stages. This article describes the last stage, the creation of the functional profile of a sample surveyed in eight cities. Twenty-five categories established in the common abbreviated core set of CP were evaluated through the application of a protocol called PC-CIFuncional (previously created). This protocol consists of scales or culturally sensitive instruments, assessed through clinical evaluations and questionnaires for children and families. Results: One hundred thirty-three functioning profiles were built using the previously developed PC-CIFuncional protocol. Of the participants, 52.7% had severe motor compromise with Gross Motor Function Classification System (GMFCS) levels IV and V. In children at GMFCS level IV-V, most categories in activities and participation—including recreation, communication and physical activity—showed severe limitations and restrictions, compared with their peers. The use of technology for daily living and mobility in children with less motor compromise (GMFCS level I-III) was neither a facilitator nor a barrier, but in children with greater compromise it was a complete facilitator. Conclusions: Differences in functional needs were identified in children with CP according to motor involvement. This project standardizes the identification of functional needs and therapeutic goals based on ICF language, creating novel functioning profiles in Argentina.Fil: Escobar Zuluaga, Leidy Johana. Consejo Nacional de Investigaciones Científicas y Técnicas. Centro Científico Tecnológico Conicet - Córdoba. Instituto de Investigaciones en Ciencias de la Salud. Universidad Nacional de Córdoba. Instituto de Investigaciones en Ciencias de la Salud; ArgentinaFil: Ruiz Brunner, María de Las Mercedes. Consejo Nacional de Investigaciones Científicas y Técnicas. Centro Científico Tecnológico Conicet - Córdoba. Instituto de Investigaciones en Ciencias de la Salud. Universidad Nacional de Córdoba. Instituto de Investigaciones en Ciencias de la Salud; ArgentinaFil: Cuestas, Eduardo. Consejo Nacional de Investigaciones Científicas y Técnicas. Centro Científico Tecnológico Conicet - Córdoba. Instituto de Investigaciones en Ciencias de la Salud. Universidad Nacional de Córdoba. Instituto de Investigaciones en Ciencias de la Salud; ArgentinaFil: Cieri, Maria Elisabeth. Consejo Nacional de Investigaciones Científicas y Técnicas. Centro Científico Tecnológico Conicet - Córdoba. Instituto de Investigaciones en Ciencias de la Salud. Universidad Nacional de Córdoba. Instituto de Investigaciones en Ciencias de la Salud; ArgentinaFil: Condinanzi, Ana Laura. Consejo Nacional de Investigaciones Científicas y Técnicas. Centro Científico Tecnológico Conicet - Córdoba. Instituto de Investigaciones en Ciencias de la Salud. Universidad Nacional de Córdoba. Instituto de Investigaciones en Ciencias de la Salud; ArgentinaFil: Ayllon, Carolina. Provincia de Buenos Aires. Ministerio de Salud. Hospital de Niños "Sor María Ludovica" de La Plata; ArgentinaFil: Schiariti, Verónica. University of Victoria; CanadáSAGE Publications2025-11info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionhttp://purl.org/coar/resource_type/c_6501info:ar-repo/semantics/articuloapplication/pdfapplication/pdfhttp://hdl.handle.net/11336/278632Escobar Zuluaga, Leidy Johana; Ruiz Brunner, María de Las Mercedes; Cuestas, Eduardo; Cieri, Maria Elisabeth; Condinanzi, Ana Laura; et al.; ICF-based functioning profiles in children and adolescents with cerebral palsy: Evidence from a population-based study in Argentina; SAGE Publications; Journal of Pediatric Rehabilitation Medicine; 18; 4; 11-2025; 282-2941874-53931875-8894CONICET DigitalCONICETenginfo:eu-repo/semantics/altIdentifier/url/https://journals.sagepub.com/doi/10.1177/18758894251391909info:eu-repo/semantics/altIdentifier/doi/10.1177/18758894251391909info:eu-repo/semantics/openAccesshttps://creativecommons.org/licenses/by-nc/2.5/ar/reponame:CONICET Digital (CONICET)instname:Consejo Nacional de Investigaciones Científicas y Técnicas2026-01-14T11:47:50Zoai:ri.conicet.gov.ar:11336/278632instacron:CONICETInstitucionalhttp://ri.conicet.gov.ar/Organismo científico-tecnológicoNo correspondehttp://ri.conicet.gov.ar/oai/requestdasensio@conicet.gov.ar; lcarlino@conicet.gov.arArgentinaNo correspondeNo correspondeNo correspondeopendoar:34982026-01-14 11:47:50.584CONICET Digital (CONICET) - Consejo Nacional de Investigaciones Científicas y Técnicasfalse
dc.title.none.fl_str_mv ICF-based functioning profiles in children and adolescents with cerebral palsy: Evidence from a population-based study in Argentina
title ICF-based functioning profiles in children and adolescents with cerebral palsy: Evidence from a population-based study in Argentina
spellingShingle ICF-based functioning profiles in children and adolescents with cerebral palsy: Evidence from a population-based study in Argentina
Escobar Zuluaga, Leidy Johana
DISCAPACIDAD
NIÑOS
PARÁLISIS CEREBRAL
title_short ICF-based functioning profiles in children and adolescents with cerebral palsy: Evidence from a population-based study in Argentina
title_full ICF-based functioning profiles in children and adolescents with cerebral palsy: Evidence from a population-based study in Argentina
title_fullStr ICF-based functioning profiles in children and adolescents with cerebral palsy: Evidence from a population-based study in Argentina
title_full_unstemmed ICF-based functioning profiles in children and adolescents with cerebral palsy: Evidence from a population-based study in Argentina
title_sort ICF-based functioning profiles in children and adolescents with cerebral palsy: Evidence from a population-based study in Argentina
dc.creator.none.fl_str_mv Escobar Zuluaga, Leidy Johana
Ruiz Brunner, María de Las Mercedes
Cuestas, Eduardo
Cieri, Maria Elisabeth
Condinanzi, Ana Laura
Ayllon, Carolina
Schiariti, Verónica
author Escobar Zuluaga, Leidy Johana
author_facet Escobar Zuluaga, Leidy Johana
Ruiz Brunner, María de Las Mercedes
Cuestas, Eduardo
Cieri, Maria Elisabeth
Condinanzi, Ana Laura
Ayllon, Carolina
Schiariti, Verónica
author_role author
author2 Ruiz Brunner, María de Las Mercedes
Cuestas, Eduardo
Cieri, Maria Elisabeth
Condinanzi, Ana Laura
Ayllon, Carolina
Schiariti, Verónica
author2_role author
author
author
author
author
author
dc.subject.none.fl_str_mv DISCAPACIDAD
NIÑOS
PARÁLISIS CEREBRAL
topic DISCAPACIDAD
NIÑOS
PARÁLISIS CEREBRAL
purl_subject.fl_str_mv https://purl.org/becyt/ford/3.2
https://purl.org/becyt/ford/3
dc.description.none.fl_txt_mv Purpose: In Argentina, there is no consensus on the functional assessment of children with cerebral palsy (CP). The International Classification of Functioning, Disability and Health (ICF) Core Sets for children with CP are tools that standardize clinical functional assessments. The aim was to build functioning profiles of children with CP aged 2 to 18 years in eight Argentine cities, to identify their functional needs and contribute to improving assessment processes. Methods: Cross-sectional study, developed in stages. This article describes the last stage, the creation of the functional profile of a sample surveyed in eight cities. Twenty-five categories established in the common abbreviated core set of CP were evaluated through the application of a protocol called PC-CIFuncional (previously created). This protocol consists of scales or culturally sensitive instruments, assessed through clinical evaluations and questionnaires for children and families. Results: One hundred thirty-three functioning profiles were built using the previously developed PC-CIFuncional protocol. Of the participants, 52.7% had severe motor compromise with Gross Motor Function Classification System (GMFCS) levels IV and V. In children at GMFCS level IV-V, most categories in activities and participation—including recreation, communication and physical activity—showed severe limitations and restrictions, compared with their peers. The use of technology for daily living and mobility in children with less motor compromise (GMFCS level I-III) was neither a facilitator nor a barrier, but in children with greater compromise it was a complete facilitator. Conclusions: Differences in functional needs were identified in children with CP according to motor involvement. This project standardizes the identification of functional needs and therapeutic goals based on ICF language, creating novel functioning profiles in Argentina.
Fil: Escobar Zuluaga, Leidy Johana. Consejo Nacional de Investigaciones Científicas y Técnicas. Centro Científico Tecnológico Conicet - Córdoba. Instituto de Investigaciones en Ciencias de la Salud. Universidad Nacional de Córdoba. Instituto de Investigaciones en Ciencias de la Salud; Argentina
Fil: Ruiz Brunner, María de Las Mercedes. Consejo Nacional de Investigaciones Científicas y Técnicas. Centro Científico Tecnológico Conicet - Córdoba. Instituto de Investigaciones en Ciencias de la Salud. Universidad Nacional de Córdoba. Instituto de Investigaciones en Ciencias de la Salud; Argentina
Fil: Cuestas, Eduardo. Consejo Nacional de Investigaciones Científicas y Técnicas. Centro Científico Tecnológico Conicet - Córdoba. Instituto de Investigaciones en Ciencias de la Salud. Universidad Nacional de Córdoba. Instituto de Investigaciones en Ciencias de la Salud; Argentina
Fil: Cieri, Maria Elisabeth. Consejo Nacional de Investigaciones Científicas y Técnicas. Centro Científico Tecnológico Conicet - Córdoba. Instituto de Investigaciones en Ciencias de la Salud. Universidad Nacional de Córdoba. Instituto de Investigaciones en Ciencias de la Salud; Argentina
Fil: Condinanzi, Ana Laura. Consejo Nacional de Investigaciones Científicas y Técnicas. Centro Científico Tecnológico Conicet - Córdoba. Instituto de Investigaciones en Ciencias de la Salud. Universidad Nacional de Córdoba. Instituto de Investigaciones en Ciencias de la Salud; Argentina
Fil: Ayllon, Carolina. Provincia de Buenos Aires. Ministerio de Salud. Hospital de Niños "Sor María Ludovica" de La Plata; Argentina
Fil: Schiariti, Verónica. University of Victoria; Canadá
description Purpose: In Argentina, there is no consensus on the functional assessment of children with cerebral palsy (CP). The International Classification of Functioning, Disability and Health (ICF) Core Sets for children with CP are tools that standardize clinical functional assessments. The aim was to build functioning profiles of children with CP aged 2 to 18 years in eight Argentine cities, to identify their functional needs and contribute to improving assessment processes. Methods: Cross-sectional study, developed in stages. This article describes the last stage, the creation of the functional profile of a sample surveyed in eight cities. Twenty-five categories established in the common abbreviated core set of CP were evaluated through the application of a protocol called PC-CIFuncional (previously created). This protocol consists of scales or culturally sensitive instruments, assessed through clinical evaluations and questionnaires for children and families. Results: One hundred thirty-three functioning profiles were built using the previously developed PC-CIFuncional protocol. Of the participants, 52.7% had severe motor compromise with Gross Motor Function Classification System (GMFCS) levels IV and V. In children at GMFCS level IV-V, most categories in activities and participation—including recreation, communication and physical activity—showed severe limitations and restrictions, compared with their peers. The use of technology for daily living and mobility in children with less motor compromise (GMFCS level I-III) was neither a facilitator nor a barrier, but in children with greater compromise it was a complete facilitator. Conclusions: Differences in functional needs were identified in children with CP according to motor involvement. This project standardizes the identification of functional needs and therapeutic goals based on ICF language, creating novel functioning profiles in Argentina.
publishDate 2025
dc.date.none.fl_str_mv 2025-11
dc.type.none.fl_str_mv info:eu-repo/semantics/article
info:eu-repo/semantics/publishedVersion
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info:ar-repo/semantics/articulo
format article
status_str publishedVersion
dc.identifier.none.fl_str_mv http://hdl.handle.net/11336/278632
Escobar Zuluaga, Leidy Johana; Ruiz Brunner, María de Las Mercedes; Cuestas, Eduardo; Cieri, Maria Elisabeth; Condinanzi, Ana Laura; et al.; ICF-based functioning profiles in children and adolescents with cerebral palsy: Evidence from a population-based study in Argentina; SAGE Publications; Journal of Pediatric Rehabilitation Medicine; 18; 4; 11-2025; 282-294
1874-5393
1875-8894
CONICET Digital
CONICET
url http://hdl.handle.net/11336/278632
identifier_str_mv Escobar Zuluaga, Leidy Johana; Ruiz Brunner, María de Las Mercedes; Cuestas, Eduardo; Cieri, Maria Elisabeth; Condinanzi, Ana Laura; et al.; ICF-based functioning profiles in children and adolescents with cerebral palsy: Evidence from a population-based study in Argentina; SAGE Publications; Journal of Pediatric Rehabilitation Medicine; 18; 4; 11-2025; 282-294
1874-5393
1875-8894
CONICET Digital
CONICET
dc.language.none.fl_str_mv eng
language eng
dc.relation.none.fl_str_mv info:eu-repo/semantics/altIdentifier/url/https://journals.sagepub.com/doi/10.1177/18758894251391909
info:eu-repo/semantics/altIdentifier/doi/10.1177/18758894251391909
dc.rights.none.fl_str_mv info:eu-repo/semantics/openAccess
https://creativecommons.org/licenses/by-nc/2.5/ar/
eu_rights_str_mv openAccess
rights_invalid_str_mv https://creativecommons.org/licenses/by-nc/2.5/ar/
dc.format.none.fl_str_mv application/pdf
application/pdf
dc.publisher.none.fl_str_mv SAGE Publications
publisher.none.fl_str_mv SAGE Publications
dc.source.none.fl_str_mv reponame:CONICET Digital (CONICET)
instname:Consejo Nacional de Investigaciones Científicas y Técnicas
reponame_str CONICET Digital (CONICET)
collection CONICET Digital (CONICET)
instname_str Consejo Nacional de Investigaciones Científicas y Técnicas
repository.name.fl_str_mv CONICET Digital (CONICET) - Consejo Nacional de Investigaciones Científicas y Técnicas
repository.mail.fl_str_mv dasensio@conicet.gov.ar; lcarlino@conicet.gov.ar
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