Representations of Chagas disease among Bolivian immigrants in the city of São Paulo

Autores
Silveira, Cássio; Forsyth, Colin; Junior, Nivaldo Carneiro; Goldberg, Alejandro; Britto da Silva, Lia Maria; da Silva, Rubens Antonio; Shikanai Yasuda, Maria Aparecida
Año de publicación
2024
Idioma
inglés
Tipo de recurso
artículo
Estado
versión publicada
Descripción
Background: Transnational immigrants are particularly impactedbyneglecteddiseases,which take a heavy biological, social, and emotional toll in these marginalizedcommunities. Chagas disease has transformed from an exclusively rural to anincreasingly urban phenomenon encompassing non-endemic areas in Latin America.Methods: Through semi-structured interviews, we investigated representations ofChagas disease in Bolivian immigrants in São Paulo, Brazil. Between August andSeptember 2015, 27 adult migrants were interviewed, 11 of them with Chagasdisease. We explored problems of access to health services and essentialknowledge about the disease, as well as related conceptions and health practices.Results: Participants constructed social representations of Chagas through interactionswith family and social networks, drawing on earlier experiences in Bolivia. Diagnosis oftenprovoked fear, and participants faced barriers to care based on language differences anduncertainties about the disease and treatment options. Healthcare personnel played animportant role in alleviating concerns and facilitating access to information.Discussion: The complex intersection of migration and neglected diseases createschallenges for local and national health programs, requiring innovative responsesincorporating the perspectives and needs of the often vulnerable affected communities.
Fil: Silveira, Cássio. No especifíca;
Fil: Forsyth, Colin. University of Florida; Estados Unidos
Fil: Junior, Nivaldo Carneiro. Universidad Federal Do Abc; Brasil
Fil: Goldberg, Alejandro. Universidad de Buenos Aires. Facultad de Filosofía y Letras. Instituto de Ciencias Antropológicas; Argentina. Consejo Nacional de Investigaciones Científicas y Técnicas; Argentina
Fil: Britto da Silva, Lia Maria. Universidade de Sao Paulo; Brasil
Fil: da Silva, Rubens Antonio. Universidade de Sao Paulo; Brasil
Fil: Shikanai Yasuda, Maria Aparecida. Universidade de Sao Paulo; Brasil
Materia
HUMAN MIGRATION
BOLIVIANS
CHAGAS DISEASE
SOCIAL REPRESENTATIONS
Nivel de accesibilidad
acceso abierto
Condiciones de uso
https://creativecommons.org/licenses/by-nc-sa/2.5/ar/
Repositorio
CONICET Digital (CONICET)
Institución
Consejo Nacional de Investigaciones Científicas y Técnicas
OAI Identificador
oai:ri.conicet.gov.ar:11336/234736
Acceder
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network_acronym_str CONICETDig
repository_id_str 3498
network_name_str CONICET Digital (CONICET)
spelling Representations of Chagas disease among Bolivian immigrants in the city of São PauloSilveira, CássioForsyth, ColinJunior, Nivaldo CarneiroGoldberg, AlejandroBritto da Silva, Lia Mariada Silva, Rubens AntonioShikanai Yasuda, Maria AparecidaHUMAN MIGRATIONBOLIVIANSCHAGAS DISEASESOCIAL REPRESENTATIONShttps://purl.org/becyt/ford/5.4https://purl.org/becyt/ford/5Background: Transnational immigrants are particularly impactedbyneglecteddiseases,which take a heavy biological, social, and emotional toll in these marginalizedcommunities. Chagas disease has transformed from an exclusively rural to anincreasingly urban phenomenon encompassing non-endemic areas in Latin America.Methods: Through semi-structured interviews, we investigated representations ofChagas disease in Bolivian immigrants in São Paulo, Brazil. Between August andSeptember 2015, 27 adult migrants were interviewed, 11 of them with Chagasdisease. We explored problems of access to health services and essentialknowledge about the disease, as well as related conceptions and health practices.Results: Participants constructed social representations of Chagas through interactionswith family and social networks, drawing on earlier experiences in Bolivia. Diagnosis oftenprovoked fear, and participants faced barriers to care based on language differences anduncertainties about the disease and treatment options. Healthcare personnel played animportant role in alleviating concerns and facilitating access to information.Discussion: The complex intersection of migration and neglected diseases createschallenges for local and national health programs, requiring innovative responsesincorporating the perspectives and needs of the often vulnerable affected communities.Fil: Silveira, Cássio. No especifíca;Fil: Forsyth, Colin. University of Florida; Estados UnidosFil: Junior, Nivaldo Carneiro. Universidad Federal Do Abc; BrasilFil: Goldberg, Alejandro. Universidad de Buenos Aires. Facultad de Filosofía y Letras. Instituto de Ciencias Antropológicas; Argentina. Consejo Nacional de Investigaciones Científicas y Técnicas; ArgentinaFil: Britto da Silva, Lia Maria. Universidade de Sao Paulo; BrasilFil: da Silva, Rubens Antonio. Universidade de Sao Paulo; BrasilFil: Shikanai Yasuda, Maria Aparecida. Universidade de Sao Paulo; BrasilFrontiers Media2024-04info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionhttp://purl.org/coar/resource_type/c_6501info:ar-repo/semantics/articuloapplication/pdfapplication/pdfhttp://hdl.handle.net/11336/234736Silveira, Cássio; Forsyth, Colin; Junior, Nivaldo Carneiro; Goldberg, Alejandro; Britto da Silva, Lia Maria; et al.; Representations of Chagas disease among Bolivian immigrants in the city of São Paulo; Frontiers Media; Frontiers in Tropical Diseases; 5; 4-2024; 1-102673-7515CONICET DigitalCONICETenginfo:eu-repo/semantics/altIdentifier/url/https://www.frontiersin.org/articles/10.3389/fitd.2024.1331026/fullinfo:eu-repo/semantics/altIdentifier/doi/10.3389/fitd.2024.1331026info:eu-repo/semantics/openAccesshttps://creativecommons.org/licenses/by-nc-sa/2.5/ar/reponame:CONICET Digital (CONICET)instname:Consejo Nacional de Investigaciones Científicas y Técnicas2025-09-29T10:29:36Zoai:ri.conicet.gov.ar:11336/234736instacron:CONICETInstitucionalhttp://ri.conicet.gov.ar/Organismo científico-tecnológicoNo correspondehttp://ri.conicet.gov.ar/oai/requestdasensio@conicet.gov.ar; lcarlino@conicet.gov.arArgentinaNo correspondeNo correspondeNo correspondeopendoar:34982025-09-29 10:29:36.917CONICET Digital (CONICET) - Consejo Nacional de Investigaciones Científicas y Técnicasfalse
dc.title.none.fl_str_mv Representations of Chagas disease among Bolivian immigrants in the city of São Paulo
title Representations of Chagas disease among Bolivian immigrants in the city of São Paulo
spellingShingle Representations of Chagas disease among Bolivian immigrants in the city of São Paulo
Silveira, Cássio
HUMAN MIGRATION
BOLIVIANS
CHAGAS DISEASE
SOCIAL REPRESENTATIONS
title_short Representations of Chagas disease among Bolivian immigrants in the city of São Paulo
title_full Representations of Chagas disease among Bolivian immigrants in the city of São Paulo
title_fullStr Representations of Chagas disease among Bolivian immigrants in the city of São Paulo
title_full_unstemmed Representations of Chagas disease among Bolivian immigrants in the city of São Paulo
title_sort Representations of Chagas disease among Bolivian immigrants in the city of São Paulo
dc.creator.none.fl_str_mv Silveira, Cássio
Forsyth, Colin
Junior, Nivaldo Carneiro
Goldberg, Alejandro
Britto da Silva, Lia Maria
da Silva, Rubens Antonio
Shikanai Yasuda, Maria Aparecida
author Silveira, Cássio
author_facet Silveira, Cássio
Forsyth, Colin
Junior, Nivaldo Carneiro
Goldberg, Alejandro
Britto da Silva, Lia Maria
da Silva, Rubens Antonio
Shikanai Yasuda, Maria Aparecida
author_role author
author2 Forsyth, Colin
Junior, Nivaldo Carneiro
Goldberg, Alejandro
Britto da Silva, Lia Maria
da Silva, Rubens Antonio
Shikanai Yasuda, Maria Aparecida
author2_role author
author
author
author
author
author
dc.subject.none.fl_str_mv HUMAN MIGRATION
BOLIVIANS
CHAGAS DISEASE
SOCIAL REPRESENTATIONS
topic HUMAN MIGRATION
BOLIVIANS
CHAGAS DISEASE
SOCIAL REPRESENTATIONS
purl_subject.fl_str_mv https://purl.org/becyt/ford/5.4
https://purl.org/becyt/ford/5
dc.description.none.fl_txt_mv Background: Transnational immigrants are particularly impactedbyneglecteddiseases,which take a heavy biological, social, and emotional toll in these marginalizedcommunities. Chagas disease has transformed from an exclusively rural to anincreasingly urban phenomenon encompassing non-endemic areas in Latin America.Methods: Through semi-structured interviews, we investigated representations ofChagas disease in Bolivian immigrants in São Paulo, Brazil. Between August andSeptember 2015, 27 adult migrants were interviewed, 11 of them with Chagasdisease. We explored problems of access to health services and essentialknowledge about the disease, as well as related conceptions and health practices.Results: Participants constructed social representations of Chagas through interactionswith family and social networks, drawing on earlier experiences in Bolivia. Diagnosis oftenprovoked fear, and participants faced barriers to care based on language differences anduncertainties about the disease and treatment options. Healthcare personnel played animportant role in alleviating concerns and facilitating access to information.Discussion: The complex intersection of migration and neglected diseases createschallenges for local and national health programs, requiring innovative responsesincorporating the perspectives and needs of the often vulnerable affected communities.
Fil: Silveira, Cássio. No especifíca;
Fil: Forsyth, Colin. University of Florida; Estados Unidos
Fil: Junior, Nivaldo Carneiro. Universidad Federal Do Abc; Brasil
Fil: Goldberg, Alejandro. Universidad de Buenos Aires. Facultad de Filosofía y Letras. Instituto de Ciencias Antropológicas; Argentina. Consejo Nacional de Investigaciones Científicas y Técnicas; Argentina
Fil: Britto da Silva, Lia Maria. Universidade de Sao Paulo; Brasil
Fil: da Silva, Rubens Antonio. Universidade de Sao Paulo; Brasil
Fil: Shikanai Yasuda, Maria Aparecida. Universidade de Sao Paulo; Brasil
description Background: Transnational immigrants are particularly impactedbyneglecteddiseases,which take a heavy biological, social, and emotional toll in these marginalizedcommunities. Chagas disease has transformed from an exclusively rural to anincreasingly urban phenomenon encompassing non-endemic areas in Latin America.Methods: Through semi-structured interviews, we investigated representations ofChagas disease in Bolivian immigrants in São Paulo, Brazil. Between August andSeptember 2015, 27 adult migrants were interviewed, 11 of them with Chagasdisease. We explored problems of access to health services and essentialknowledge about the disease, as well as related conceptions and health practices.Results: Participants constructed social representations of Chagas through interactionswith family and social networks, drawing on earlier experiences in Bolivia. Diagnosis oftenprovoked fear, and participants faced barriers to care based on language differences anduncertainties about the disease and treatment options. Healthcare personnel played animportant role in alleviating concerns and facilitating access to information.Discussion: The complex intersection of migration and neglected diseases createschallenges for local and national health programs, requiring innovative responsesincorporating the perspectives and needs of the often vulnerable affected communities.
publishDate 2024
dc.date.none.fl_str_mv 2024-04
dc.type.none.fl_str_mv info:eu-repo/semantics/article
info:eu-repo/semantics/publishedVersion
http://purl.org/coar/resource_type/c_6501
info:ar-repo/semantics/articulo
format article
status_str publishedVersion
dc.identifier.none.fl_str_mv http://hdl.handle.net/11336/234736
Silveira, Cássio; Forsyth, Colin; Junior, Nivaldo Carneiro; Goldberg, Alejandro; Britto da Silva, Lia Maria; et al.; Representations of Chagas disease among Bolivian immigrants in the city of São Paulo; Frontiers Media; Frontiers in Tropical Diseases; 5; 4-2024; 1-10
2673-7515
CONICET Digital
CONICET
url http://hdl.handle.net/11336/234736
identifier_str_mv Silveira, Cássio; Forsyth, Colin; Junior, Nivaldo Carneiro; Goldberg, Alejandro; Britto da Silva, Lia Maria; et al.; Representations of Chagas disease among Bolivian immigrants in the city of São Paulo; Frontiers Media; Frontiers in Tropical Diseases; 5; 4-2024; 1-10
2673-7515
CONICET Digital
CONICET
dc.language.none.fl_str_mv eng
language eng
dc.relation.none.fl_str_mv info:eu-repo/semantics/altIdentifier/url/https://www.frontiersin.org/articles/10.3389/fitd.2024.1331026/full
info:eu-repo/semantics/altIdentifier/doi/10.3389/fitd.2024.1331026
dc.rights.none.fl_str_mv info:eu-repo/semantics/openAccess
https://creativecommons.org/licenses/by-nc-sa/2.5/ar/
eu_rights_str_mv openAccess
rights_invalid_str_mv https://creativecommons.org/licenses/by-nc-sa/2.5/ar/
dc.format.none.fl_str_mv application/pdf
application/pdf
dc.publisher.none.fl_str_mv Frontiers Media
publisher.none.fl_str_mv Frontiers Media
dc.source.none.fl_str_mv reponame:CONICET Digital (CONICET)
instname:Consejo Nacional de Investigaciones Científicas y Técnicas
reponame_str CONICET Digital (CONICET)
collection CONICET Digital (CONICET)
instname_str Consejo Nacional de Investigaciones Científicas y Técnicas
repository.name.fl_str_mv CONICET Digital (CONICET) - Consejo Nacional de Investigaciones Científicas y Técnicas
repository.mail.fl_str_mv dasensio@conicet.gov.ar; lcarlino@conicet.gov.ar
_version_ 1844614302767513600
score 13.070432

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